Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Nail fold - Raynaud's- what does it look like?


  • Please log in to reply
13 replies to this topic

#1 mando621

mando621

    Silver Member

  • Members
  • PipPipPipPip
  • 210 posts
  • Location:Wisconsin

Posted 13 May 2008 - 03:56 AM

Could someone describe what their nail folds look like to the eye?

I have really horrible cuticles. They are always getting little "hang nails" for lack of better description. They are dry and peel back. There are slightly red halos in the skin just before the cuticle which I understand is the nail fold. These halos come and go, at times they are really red and other times I can't see them.

I don't have bad Reynaud's problems, but my hands do turn white and then purple/blue if I get a full body chill. Up until this year my hands have been cold most of the time. I have a sweater at all times.

At my appointment with the rheumatologist about 3 years ago, he looked at my nails through a small magnifying glass like a jeweler's loupe, but didn't seem to find anything significant. He didn't have a special lighted magnifier so I don't know if he would have been able to see anything.

Mando.

#2 KarenL

KarenL

    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 13 May 2008 - 04:29 AM

The color changes you describe ARE Raynaud's. From my understanding, the nail fold is not something you see with the naked eye, the rheumatologist will put a special oil on the nail and then look through a special glass tool, as you described. They are looking at the cappillaries and how they react. I think. Anyway, don't underestimate raynaud's, any color changes are bad, and need to be taken care of and avoided. My doctor says that you should treat every episode of Raynaud's as a medical emergency. Take it from me, I've had gangrene and it takes MONTHS to heal. Very painful too, VERY. Good luck and keep warm!
Karen

#3 Bird Lady

Bird Lady

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Southport NC

Posted 13 May 2008 - 04:44 AM

Hi Mando621, I believe I have something similar to what you're describing with your nails. I get those red splotches right at the cuticles. Mine itch like crazy and sometimes they crack open and ooze. I don't know if it's the same thing or not but my doctor gave me some steroid cream and it seems to help. Good luck, Birdman
Hugs for All,

Julie (Bird Lady)

#4 omaeva

omaeva

    Silver Member

  • Members
  • PipPipPipPip
  • 161 posts
  • Location:CA

Posted 13 May 2008 - 04:52 AM

I have the same thing, only the halos never go away. But they're burst capillaries. I also have really thick yellow cuticles, I tend to cut them off, same with the hang nails. If I keep a nice manicure going barely notice any of that. But I have to be careful with the cuticle trimmer because if you get to the halo, it's pain galore and takes a very long time to heal. Found that one out the hard way, when I went to the nail salon. So now I just do my own nails, gently.

#5 Bird Lady

Bird Lady

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Southport NC

Posted 13 May 2008 - 05:23 AM

Hi Mando 621, One more thing about nails. Do you or anyone else have pits in there fingernails? Mine are becoming pitted and I don't know why. They don't hurt, they're just getting these pits. Birdman
Hugs for All,

Julie (Bird Lady)

#6 Buttons

Buttons

    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 608 posts
  • Location:UK

Posted 13 May 2008 - 05:58 AM

Mando I have the looping capillaries and Raynaud's which for me is getting worse. I have the red halo at base of cuticles but you can also see with the naked eye little red dots where the blood vessels are broken, they are there all the time for me. My consultant did use some sort of clear gel & one those instruments for looking into the back of the eye - opthlmascope(spelling?) to look at them. It was one of the things that my he used to help with my diagnose of Limited SSc.
My cuticles are also very thick, dry and ragged and often split at the sides which is quite painful. I use hand cream with a cuticle softening cream to try to stop them drying out completely.

Jensue

#7 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 13 May 2008 - 06:22 AM

Mando,
Looking at the nailfold capillaries is one way to diagnosis secondary Raynaud's and assist in the diagnosis of Scleroderma. However, the capillaries can't be seen with the naked eye. A good magnifying glass or even a video capillaroscope are used. I found an abstract on our Raynaud's diagnosis page. It's got some great pictures of what scleroderma capillaries look like.

The Handheld Dermatoscope as a Nail-Fold Capillaroscopic Instrument.

Big Hugs,


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#8 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 13 May 2008 - 06:30 AM

I knew there was one, but couldn't find it Janey. Perhaps you could cross reference this one on the page that mentions nailfold capillaroscopy.

.


Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#9 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 13 May 2008 - 07:10 AM

I have nasty ragged cuticles that grow up over my nails, red shiny areas about 1cm deep below my nails, sometimes splinter heamorrhages in my nails and always splinter like haemoeehages in the cuticles - very attractive!
Lizzie

#10 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 13 May 2008 - 01:34 PM

If you click on the Raynaud's diagnosis link in my previous posting it will take you to the Nailfold Capillaroscopy section,
There is another link under Medical Tests with more information
We use to have another one with even more good pictures, but the link probably went bad so it got deleted. Thanks for the other link Carrie!
There are several articles about the significance of the nailfold to diagnosis of Raynaud's and scleroderma. I'm surprised more rheumatologist don't use it. It was one of the first things my rheumatologist did on the first visit.

Big Hugs,


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#11 oneuncoolmom

oneuncoolmom

    Bronze Member

  • Members
  • PipPip
  • 21 posts

Posted 13 May 2008 - 07:40 PM

Ditto, ditto, everybody. I have had, GORGEOUS sad.gif thick, yellow cuticles with brown dots (blood spots) and little red dots on the nailfold for somewhere between 7 to 10 years, not knowing that I had Sclero. My regular doctor didn't know what caused this condition even though she knew I had Raynaud's. It wasn't until I went to a dermatologist last month that I was finally diagnosed with Sclero.

Now that I've seen a rheumatologist, who said that she didn't need to do the capillary microscopy because she could see enough evidence that I have Sclero, do any of you know if the microscopic appearance of the nailfold capillaries give any indication of what might be going on in any of our internal organs?
 

Curiously,
Margo



#12 summer

summer

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 522 posts

Posted 13 May 2008 - 10:44 PM

During my first visit to my Rheumatologist in 2007, my rheumatologist looked at my hands and noticed that my nail fold capillaries were very red, and noticeable to the eye. She never used any special instrument or put any type of cream on them. I have Limited/Crest Scleroderma, it seems to me that every doctor does things differently, which can be frustrating.

Take care
Celia

#13 mando621

mando621

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 210 posts
  • Location:Wisconsin

Posted 14 May 2008 - 12:44 AM

Thanks everybody for your input. I wish there were more pictures of hands up close from the back.


Birdman, I read somewhere that pitting in your nails can be caused by psoriasis. Actually, I think the rhuematologist was looking for pitting in my nails rather than the nailfolds. He didn't use any oil on my fingers.

Mando.

#14 marjimaybe

marjimaybe

    Newbie

  • Members
  • Pip
  • 6 posts

Posted 15 May 2008 - 05:16 PM

I have pitted ridges on my nails that then split on the ridges and the nail peels down which is very painful. I endup super gluing my nails together when they split on the ridges. My cuticles have become overgrown with the onset of my autoimmune disease and also painful. I get black "splinter" looking things in the nail at times and the cuticle is no longer rounded but goes way back in some places on my pinky and ring fingers, which are curved, and bleed easily. As a child, they were red and shiny and peeled and I used to chew the skin off them that peeled because it hurt when it got caught on something or rubbed the wrong way. I don't have that problem any more. Instead, my cuticle and nail are completely flat, dented in. The sides of my fingers are swollen and the corners of the nails get ingrown and hurt. The skin is too hard to cut out of the way and very sore if I do. I thought the changes were due to vitamins, but my mom, whose immune system is totally broken down and gone, has worse problems, but they started like mine.