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My Mom Has Scleroderma.... Need Suggestions For Itchy Skin

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9 replies to this topic

#1 sharon



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Posted 09 December 2006 - 08:07 AM


I am so glad that we found this site, it has been a great help. My mom has scleroderma, and the itchy skin has been pretty bad. It is especially bad at night that keeps her from sleeping.
Any suggestions to relieve the itching? Any lotions or creams that help?


#2 Bird Lady

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Posted 09 December 2006 - 08:14 AM

Sharon I buy my husband Cetaphil he says it seems to help a little.
Birdmans Wife
Hugs for All,

Julie (Bird Lady)

#3 Sweet


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Posted 09 December 2006 - 10:14 AM

Hi Sharon,

Sorry to hear about your mom's itchy skin. I think we've all had that problem at one time or another.

I found a site that may be of help to you!


Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 deeter



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Posted 09 December 2006 - 01:04 PM

Hi Sharon,

I use liquid body wash and then a lotion for bathing. I also use a moisturizing lotion after my shower. Everyones reacts differently and we sometimes learn by trial and error.

The best to you. deeter

#5 janey


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Posted 10 December 2006 - 05:31 AM

Hi Sharon,
Like Deeter said - everyone is different so a lot of finding the right cream is trial and error. Sweet gave you a great link with lots of good suggestions to try. I use an oatmeal based lotion after my shower and on any spots that start to itch during the day. Also, there is prescription stuff that the doctor can prescribe if it's really bad but most of us take enough prescription medicine as it is that an external solution might be best.
I hope your mom find something that works for her.
Big Hugs,

#6 marg



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Posted 07 June 2007 - 06:25 PM




#7 jefa


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Posted 07 June 2007 - 07:30 PM

Hello, Margaret, Welcome to the Sclero Forums -- glad to see you posting. I am sure you will find this place is great for both information and support. Yes, the antihistamine drug you are taking is listed in the link Sweet provided. Glad it is working for you.

Please feel free to post something about yourself in the Getting to Know You Thread at the top of the topic list.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#8 Timo


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Posted 07 June 2007 - 08:27 PM

Hi Sharon,

I recently started having problems with my itchy skin and I have found a few creams that work well for me. I use cocoa butter cream, which I love and I also use the shower wash as it doesn't dry my skin out as much as soap. But what I have found to be the best is topical vitamin E. I have pure vitamin E oil and also a high potency cream that I swear by. I guess the key is trial and error. Before I found these I tried all sorts of creams and lotions and none seemed to do the trick.

Hope that helped some.


#9 whirlway


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Posted 07 June 2007 - 10:35 PM

Sharon, I also use a body wash and then before drying off, slather on the lotion, it seems to soak into the skin better for some reason. When I get a really bothersome itch that just won't go away I have some cream the dr prescribed that really helps, otherwise I will scratch until I bleed.
Good luck!

#10 RememberingToSmile


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Posted 08 June 2007 - 03:51 AM

Years before the scleroderma started, I had a bad case of eczema (from a virus). I tried everything anyone told me about to relieve the itching/pain. Finally, a woman who had a child with allergy induced eczema gave me some suggestions and they were the first thing to work for me.

These products were all plant oil based [safflower, etc; non-petrolium] and focused on correcting pH... It was the only non-prescription thing that I could find at the time that didn't actually cause more pain.

When the diffuse sclero started, with all the itching and inflammation pain, these products really helped me. They work best when I use them after after shower/bath. [Also, a hand therapist showed me how to massage the lotion towards the lymph nodes to increase circulation and help reduce some of the edema and inflammation]

So- please don't give up trying everthing people are recommending until you find something that works.

Also - make sure you are telling the doctor that it is still an issue in case she should be on higher medication doses.

Just my 2 cents...