Posted 22 May 2008 - 05:25 PM
It seems to me that if I don't get some exercise, I will just slide down hill. However, on the other hand a modest amount of exercise seems to wipe me out. I really want to rock climb, kayak and do all the things I was doing two years ago. Ok, I am digressing into wishful thinking.
If I ask the general question "is exercise good?", I will get the standard answer "yes". But if I feel rotten after, is it still good for me. How much can or should I do? When is it good for me, and when is it bad? What about during a flareup?
Posted 22 May 2008 - 08:35 PM
Posted 23 May 2008 - 01:32 AM
Thats my 2 cents worth anyway. I hope it helps alittle
Posted 23 May 2008 - 03:15 AM
Posted 23 May 2008 - 08:51 AM
Ditto on everything that has been said. My cardiologist told me that I would probably not be throwing 45 pounds on my back anymore and climbing mountains, but she would help to get me to the point where I could go for an "easy" hike. So she started cardio rehab a few weeks ago and it has helped me to slowly, slowly, slowly build up my endurance without suffering the next day.
On day one, the tech had me start on 3 different machines (treadmill, recliner bike and arm rotating thingy). I only did about about 3 to 5 minutes on each. She kept asking "is it easy?" The moment I said "It's starting to getting harder" she had me stop. That time and speed became my exercise program for that week. Each week we add ONE minute to each machine. We don't add speed or resistance. I started off only able to do 15 minutes total. I'm now up to 27 minutes. I'm not at all sore or tired the next day. So from my experience I have learned that I need to take it slow and build up the time slowly. Speed is not important.
Last Friday I went to one of those food warehouses by myself for the first time in a long time. When I got home I even unloaded the car! When my hubby got home, he was shocked. I was not sore the next day so the rehab certainly seems to be working.
Take it easy Darlin'
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Posted 23 May 2008 - 09:46 AM
I also can't help thinking that I better get the new roof done, and the sea wall built before I don't have the stamina to supervise these projects. I'm a bit of a lemming running towards the cliff.
Posted 23 May 2008 - 12:59 PM
Exercise is good, but you need to listen to you body. My rheumatologist really encourages exercise, but states I can't do it like I used to. I played around with several routines until I found something that worked for me. AND that changes at times, like I said you really need to listen to your body. Right now I try to walk on the treadmill and do a bit of upper body strength training every other day. Sometimes I can't do that either.
Posted 23 May 2008 - 04:14 PM
I've had scleroderma for 26 years and I know that it is my love of sports and exercise that has kept me going. Even though, as a cyclist, I used to be able to ride 100 mile rides (even with scleroderma) I now limit my rides to less than 40. I still snowshoe and ski in the winter (even with a lung function in the 70's). I hike in the summers. I use weights as often as 3-4 times a week though not as heavy as I used to. I work in my garden and I have a job as a massage therapist. Here's the big thing.........I'm not married to a routine. I work out as I feel for that day. I know when to rest.....completely. I know that if I snowshoe for 5 hours, I'll need 2 days to rest. I'm prepared for that and make my day's plans accordingly. Sometimes I take some time off. But I also am aware that if I don't exercise, I hurt twice as bad, feel twice as sluggish, feel twice as down than when I do. Somedays I just walk.......but that counts too. I've even done water aerobics.
I don't recommend my regimen to everyone. I know it works for me. Remember, exercise isn't just weights and reps.......it's walking around the block....it's working in the garden, lifting dirt and pulling weeds...it's chasing down a toddler all day........it's movement that gets the heart pumping and the body moving.
People ask me what will I do when I can't ride a bike anymore. I tell them I'm going to get one of those adult tricycles with the basket and bell....I'm going to get on that thing and ride!.
Posted 23 May 2008 - 10:00 PM
Your post reminds me of advice I received at a neonatal clinic years ago - someone asked if they could continue horseback riding while pregnant. The doctor said, yes, by all means, if your body is used to horseback riding, continue to ride. But this is not the time to START horseback riding. So much matters on your original conditioning. Some, like Janey, may have an overlap of polymyositis which completely changes the way you must look at exercise. I agree with all who say that you must listen to your body. It is so easy to want to jump in with a big start to kick off a newly started exercise regime which is, ironically, the thing that stops many newly started regimes in their tracks. If you have been sedentary for any length of time, take it VERY slowly. But do try to move in as many ways as you can. Studies have shown that several small bits of activity throughout the day can be nearly as effective as 20 minutes of continuous aerobic activity. Moving is better than not moving.
When I still lived in the states, there was an exercise channel on cable - one of the shows was chair exercises for people who were unable to get up and do the regular routine. My kids used to laugh at it, but I remember some of those exercises and do them now: gentle toe and foot movements, hand and arm movements that keep you flexible. When I stand in the kitchen preparing food, I do my old ballet stretches. Anything is better than nothing.
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Posted 24 May 2008 - 01:37 AM
Posted 24 May 2008 - 04:24 AM
This exercise thread is interesting since I just purchased a video game for Gareth.....stimulating our economy!!! I hope he is able to use the sports games. He's put on 20#s since starting the Depakote in Feb. for seizures. We're looking to change the Depakote to Topamax and try to stop the weight gain. I will keep you posted if he does OK.
Take care, Everyone.
Posted 24 May 2008 - 06:19 AM
I think it's about listening to what your body tells you and just keep doing that bit.
Posted 24 May 2008 - 12:21 PM
Posted 24 May 2008 - 01:59 PM
I wish you tons of good luck!! Go Bunky go!!
Posted 25 May 2008 - 08:52 PM
Posted 29 May 2008 - 08:13 AM
I have the problem of feeling great one day and overdoing it. The next day I can hardly get out of bed. It's too easy for me to deny my limitations when I feel good.
The usual rules of exercise don't necessarily apply. I used to follow the "no pain no gain" philosophy. If I still did that I'd be dead! A little too much activity and my inflammation numbers (Sed rate) go off the chart.