Calcium Channel blockers/Nifedipine/Cardizem
Posted 22 May 2008 - 06:32 PM
Thank you so much for your help.
Posted 22 May 2008 - 08:33 PM
Posted 23 May 2008 - 03:34 AM
I'm glad to hear that you've had improvement, but I guess it could take even longer than 2 weeks to see results. Thank you so much for sharing your experience.
Posted 23 May 2008 - 05:00 AM
Posted 23 May 2008 - 06:46 AM
Posted 23 May 2008 - 08:27 PM
I was on Norvasc for awhile and I had Nifedipine cream, which is like the Nitrocream some people use. These drugs made little or no difference in my Raynauds. I got a very severe finger ulcer which got gangrene and took about a year to heal. Just as it was healed, I began developing another ulcer on the index finger of the other hand. This time, my doctor put me on Viagra (Revatio) and that ulcer didn't last a week. I haven't had another serious one since then. I can't understand why all doctors don't try it for Raynauds, at least after other drugs have failed. Mine rarely bothers me at all. I have also learned to keep myself very warm and to protect my hands!
Mary in Texas
Posted 24 May 2008 - 08:20 AM
Thank you all for sharing your experiences. This condition is so varied in the way it affects people. Mary, your insights about Viagra sound very interesting and I will probably ask my rheumatologist's opinion about using it. I feel very blessed to have not had any ulcers so far -- just very frequent Raynaud's attacks even though I live in southern California. Actually, I don't know about your tolerances for temperature, but I get Raynaud's attacks even when the temperature is up to about 72 degrees. I certainly try to keep warm all the time, but I will have to wear gloves much of the time if my doctor and I can't find a drug that reduces the frequency and duration of the attacks. Do any of you wear gloves most of the time?
Anybody else have any info?
Hope all of you are doing well and enjoying the Memorial Day weekend, and, again, thank you for taking the time to respond.
Posted 24 May 2008 - 09:56 AM
It was 99 degrees here (Texas) the other day and I had a quick Raynauds attack! I rarely get them now that I am on the Revatio, and, when I do, it's usualy a mild attack. However, like you, I can get them in any weather. I always wear gloves in the winter, expecially into the grocery store!! I should wear gloves to the grocery store all year round, but I usually forget them in summer. Some day I'll learn! I go numb nearly every time I go to the grocery store, and turn purple red and white!
In hot weather, any Raynauds attacks that I do have are usually triggered by walking past a fan or walking from the heat outside into a cold store or shopping mall, or even reaching into the refrigerator. I always order water with NO ICE in restaurants and I try never to handle ice or anything cold.
The Viagra has been a miracle for me. I was later changed to Cialis and then Revatio. The Revatio is approved, I believe, for Raynauds, so the insurance companies usually will pay for it, whereas they may not pay for Viagra or Cialis. The stuff is ridiculously expensive, so I hope you have insurance! I didn't until I recently turned 65 and got the Part D drug coverage through Medicare. Until then, my husband and I just managed to pay for it ourselves, along with my other drugs!
I wish you the best. You definitely want those attacks to stop if possible because they can lead to the finger ulcers.
Mary in Texas