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Mouth Changes

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#1 ez62


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Posted 23 May 2008 - 04:31 AM

I am curious to know what type of mouth changes you have experienced. Is there any of you who have one side affected more than the other, either in feeling (sensations)or appearance? Thanks for your help, Eileen

#2 Sweet


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Posted 23 May 2008 - 01:02 PM

For me, I have a bit of a shrinking upper lip with creasing, and also I'm unable to open my mouth very wide, nor hold it open, e.g when I'm at the dentist office.
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#3 Gidget


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Posted 23 May 2008 - 01:16 PM

Thinning lips; unable to open mouth wide; unable to keep mouth shut fully; sleeping with mouth wide open; sometimes inside of cheek hurts where skin rubs against teeth. Worst I think is the thinning lips as I never had super full lips. Regards, Gidget

#4 mando621


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Posted 23 May 2008 - 03:26 PM

Exactly! Thinning upper lip. Rhuematologist even mentioned that my upper lip didn't look right. I can still close my mouth, but my lips pull my teeth in. Furrowing around the upper lip is there and I'm only going on 45. I have dry mouth so I don't look forward to the day when my mouth might not close.

Sometimes I seem to talk funny because my upper lip doesn't move like it should. My tongue also seems to have issues when I talk.

#5 barefut


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Posted 24 May 2008 - 01:09 AM

Ditto on nearly all of the above <_<

#6 Margaret


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Posted 24 May 2008 - 04:19 AM

Hi Eileen ,

At the onset of Sclero, my son would always grab, slap or push hard on his lower jaw/chin. Due to his autism, I am not sure if it was sensations or pain. He had calcifications inside his mouth on his lower lip. His upper lip is very small but his lower lip is large/fat.

Take care, Everyone.