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? about bone loss and scleroderma


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#1 Sam

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Posted 27 May 2008 - 03:29 PM

Is there anyone who is dealing with bone loss in your hands and is it scleroderma related. I tried looking it up and I'm coming up with osteoarthritis. I'm not really sure what to tell her. She is having trouble with doctors and she seems like they are not trying to help her. So she calls me and ask me for help. I had copied some information for her and I am going to send it to her tomorrow. But I'm not really sure if its osteoarthritis. Any information will help. Sam
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#2 janey

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Posted 27 May 2008 - 05:00 PM

Sam,
I found some information in our Bone readsorption section that might answer your question. "Bone reabsorption may occur, in which the bones at the tips of the fingers are literally reabsorbed into the body. In some cases, the tips of the fingernails may become attached to the skin." ISN

Based on some of this information it looks like there are several factors that can cause general bone loss. One is medication, in particular - steroids. Also malabsorption, long-time immobilisation, and inflammation can attribute to osteoporosis. If she feels like she is losing bone in her fingers, please discuss with it with her doctor.

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#3 Sam

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Posted 28 May 2008 - 03:09 AM

Janey thanks for the article but I dont think that is what it is. She has gone to the doctor's. But she is not getting the answers she is asking so that is why she contacts me. I keep telling her I am not a doctor. She is just having a really hard time Understanding scleroderma and then this with her thumb then she found out she has contracture of the wrist. That is why I think it more osteoarthritis. Well I had tried. But again thank you, Sam
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#4 LisaBulman

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Posted 28 May 2008 - 04:03 AM

Hi Sam,
I have this exat thing "Bone reabsorption may occur, in which the bones at the tips of the fingers are literally reabsorbed into the body. In some cases, the tips of the fingernails may become attached to the skin." ISN

On xray you can see that I have lost the tips of the bones in some of my fingers and my fingernails have become attached attached in a few of my fingers as well. So it might be a possibility.

Hugs,
Lisa
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