Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


See sclero specialist next week

  • Please log in to reply
6 replies to this topic

#1 Bunky


    Senior Bronze Member

  • Members
  • PipPipPip
  • 73 posts
  • Location:California Wine Country

Posted 04 June 2008 - 02:05 PM

Hi, here's an update on me.
I finally am going to the sclero specialty clinic at the University of California San Francisco (UCSF) hospital on Monday. I was supposed to go last month, but my dad had a heart attack and then my sister-in-law was diagnosed with cancer, so I was out of town for 3 weeks. Right before all that (end of April) I had a sudden raise in blood pressure, ended up in the E.R. with a reaction to the blood pressure meds the on call doctor gave me, and I was supposed to see a cardiologist to make sure my kidneys and heart weren't being affected, but the cardiologists in my area wouldn't see me until the end of June. Very frustrating. So I will see the sclero dr. and hopefully they will help me deal with the blood pressure issue. (It's still elevated.) I really am hopeful it is not sclero related, and no damage has been done by waiting this long to have it all checked out.
I have to admit I'm nervous, because I've been feeling pretty rotten. Severe fatigue, shortness of breath, and lots of pain in my hands and arms, the reflux has been worse, etc. I've been dragging myself to work and my kid's numerous activities, and then doing nothing when I get home. My kids would like me to actually cook dinner, but I don't have it in me. Well, maybe tomorrow.
So much for my fitness routine. :)
I'm bringing my husband to the appt. and we're both hoping for some definite answers, although do I really want to know?

Take Care,

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,282 posts
  • Location:Minnesota

Posted 04 June 2008 - 03:29 PM

Oh my, Bunky, you have really been through the mill! I can't imagine having all that go on at once. I hope the sclero appointment goes well for you. It sounds like it might be awhile before life actually settles down a bit for you. I'll be thinking of you. Let us know how your appointment goes, too.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 04 June 2008 - 07:33 PM

Oh Man Bunky~

I know that "dragging yourself to work and your kids' numerous activities then doing nothing when you get home" routine all too well. Don't let the dreaded motherly guilt get to you! Can hubby cook? Cereal is nutritious..... :rolleyes:

How old are your kids? How much could they help you out? Sounds like you need a well deserved break.

I am sorry to hear of all the health issues you and your family are having to deal with. I am glad you are seeing a specialist.

Please take it easy okay?

Tell us how your appointment went.

#4 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 05 June 2008 - 08:16 AM

Hi Bunky,

You and yours have had a full plate, that's for sure... wishing the best for your family's health.

I hope the sclero specialist can get you on track soon. You're right about not letting things go too long, especially where BP is concerned. It also makes it tough, when one is dealing with fatigue... everything is such an effort to accomplish.
I'm glad your husband will be withyou, to help take in what the dr has to say.

Let us know how your app't turns out?


Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 Peggy


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 633 posts
  • Location:Minnesota

Posted 05 June 2008 - 10:34 AM

Hi Bunky:

Just a short note to wish you good luck on your appointment. I really hope they are able to take care of the blood pressure problem. I know what you are going through with the extreme fatigue. It gets old and there seems to be nothing we can do about it. It's easier said than done when we say we will just work through it when you doing have any strength to work through it. I can't imagine how hard it must be to keep up with your kids' activities and then the household ones. I really hope you have good luck at your appointment and I will be thinking of you.

Warm hugs,


#6 Snowbird


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,007 posts
  • Location:Canada

Posted 05 June 2008 - 12:40 PM

Hey Bunky

You sure have been through a lot lately! I'm glad your appointment is that soon and hope that the rheumatologist can help settle down some of those issues for you. Good luck and let us know what happens ok. Take care and try to get some rest in between all those chores.
Sending good wishes your way!

#7 Bunky


    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 73 posts
  • Location:California Wine Country

Posted 05 June 2008 - 04:05 PM

Thank you all so much for your kind words. It has been a crazy, scary time, but my dad is much better, so thank goodness for that. My sister-in-law has a long road ahead, and my husband and I will do everything we can to help, but I've got to get myself more functional so I can be of help, so I really do appreciate the support and advice. I'm hoping for a more definite diagnosis, and tests to determine the extent of my internal involvement, and then of course a treatment plan.

Thanks again,