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Negative ANA and blood test


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#1 ozzy69

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Posted 06 June 2008 - 04:42 AM

Hi everyone,

I went to another rheumatologist appointment yesterday. He changed my raynauds med form procarida to plendil. He not convience that I don't have sceroderma even though my blood test are negative. I asked him to do the nailfold thing , but he said he did not see anything. I thought you had to look through a microscope? I guess I am confused about this. He does not like the looks of my raynauds. My feet have blister on them that are not healing fast. I have lots of joint pain, hip pain, and stiffness. If I sit for any period of time, and takes me a while to get up moving because it hurts. I have a pain that drives me crazy under my lower right ribs, sometimes it is on the right side. I have numbness in my arms at night that wakes me up because it hurts. my skin does not look different to me , but he kept messing with my forehead and thinks the skin is shiny and no wrinkles for my age of 39. I don't have any reflux problems, but I have had IBS for about two years now. I have fibro, and IC of the bladder. I have chest pain that wakes me up at night, and only at rest. Never when I am exercising. I get short of breathe at time, but not much problem there. I did have a lung function test last year and he said I had asthma. I have never had an attack. he put me on an inhaler and singular, but after a month I stopped doing both because I never had any trouble. The rheumatologist decided to send me to an Scleroderma specialist, over an hour away. I am sure it will take a while to get in and see them, but I guess I will have some answers. I can relate to all of you whom have not been dxed. Not knowing what your facing is more frustrating, at least if you know you can plan a treatment.

Thanks Everyone!
Nina

#2 Peggy

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Posted 06 June 2008 - 05:47 AM

It sounds like you are doing a good job of forging ahead and still seeking out answers. Maybe when you get in front of the sclero expert they can do a skin biopsy of skin affected and that may tell them if its sclero. I had the positive blood work but I also had the biopsy done of my ankle area that swelled and then was so extremely tight. This biopsy then also confirmed sclero.

I know how hard it is waiting for answers. It took a year of different doctors before I was finally able to find out what was wrong. There was nothing more frustrating and heartbreaking to keep going to appointments and leaving with nothing. Then when I finally did get the diagnosis it hit like a ton of bricks.

Good luck at your next appointment and I hope you can get some answers so you can start on a treatment that will help what you are going through.

Warm hugs,

Peggy

#3 ozzy69

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Posted 09 June 2008 - 03:48 AM

Peggy,

Thank you for your kind words. I know too well about going to the doctors to get some anwers and leaving more frustrated. It took years and doctors telling me everything but IC before I was finally dxed with my IC.

Thanks again,
Nina

#4 Snowbird

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Posted 09 June 2008 - 10:45 AM

Hi Ozzy69

I agree, it sounds to me like you are on the right path to get some answers. Don't let up on the scleroderma specialist, even if it takes a while to get it, it can never hurt to get another opinion and possibly an answer either way.

My Rheumatologist looked through a microscope with a light on it, so yes, I believe you are right because I also understood that they need to use the microscope for diagnosis because the distorted capillaries are not visible to the naked eye. Some also talk about using an oil on the nail bed and then looking through the microscope (mine didn't use oil but he had no trouble diagnosing me it seems).

I hope you keep us updated on your appointments and how they go. Take care for now!
Sending good wishes your way!

#5 Shelley Ensz

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Posted 09 June 2008 - 11:05 AM

Dear Nina,

I am glad you will be going to see a scleroderma expert!

Here is information on the Nailfold Test for scleroderma, where it says, "To do a nailfold capillaroscopy, a drop of oil is placed on the patient’s nailfold, which is the skin at the base of the fingernail. The nailfold is then examined under a microscope. If the capillaries are enlarged or abnormal, this may indicate that the patient has a connective tissue disease."

So, I'd rather question what your rheumatologist was hoping to see, and in fact, I'd wonder if he even knew what you were talking about. I've also had a rheumatologist do the exact same thing...perhaps with x-ray vision? :blink:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

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