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New Raynaud's diagnosis


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#1 smac0719

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Posted 08 June 2008 - 01:41 PM

After reading a few Raynaud's posts over the past few months and other information about it, I figured I'd developed it. My Sclero specialist confirmed it at my appointment last week. I've had an ever increasing sensitivity to cold, my hands, fingers, toes and feet are always cold (no color changes though). There is numbness in my fingers almost daily when I'm in the office and I now keep socks in my desk and car. There are also some rooms in my house where my hands and feet are colder, but I pretty much keep something on my feet at all times now. Kind of hard to do here in sunny Florida though ;) . I have been prescibed Novasc and will start taking it tomorrow. I do not know anything about it so I welcome any comments or suggestions with using this new med.
I may have Scleroderma, but Scleroderma doesn't have me!

#2 Sheryl

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Posted 09 June 2008 - 05:13 AM

Smac,
I take Norvasc and it has been my wonder drug. I am finally warm. My fingers and toes and my entire body. I do have short occurances of coldness but not often. I also wear slippers year round. My feet never touch the floors except in the shower and stepping out of the shower. I always wear some sort of footwear either with padding or some time of lining to protect Raynauds attacks in my feet or toes. Let us know in a few weeks what your experience with Norvasc has been. I can't believe all the years that I was cold with numb fingers, quivering insides and frozen feet. People should be made more aware of certain medications and how they can help our symptoms. My doctors knew for years I was having circulation problems. I went the route of other medications not knowing anything that might work. Norvasc is the one medication I would fight to keep because it has been so benificial to me. I hope you also get great benefits from it.
Strength and Warmth,
Sheryl

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#3 smac0719

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Posted 09 June 2008 - 11:59 AM

Thanks for the info. I saw my new rheumatologist today and he was in agreement with my Sclero specialist that Norvasc will probably be helpful. He also suggested that I keep my core body warm by wearing a cami or something close to the body under my normal clothing. I told him I already do that, but without much success. It's hard to do being that we're already in 90+ degree weather here.

I was a little worried because my bp can run low at times (it was 112/72 today) and when I did some reading about Norvasc it said it could lower the bp. My rheumatologist said it should only lower it a few points if it does. I think I will take it in the A.M. until I see how it interacts with my body. I'll start it tomorrow and keep you posted. Thanks again!!
I may have Scleroderma, but Scleroderma doesn't have me!

#4 Leslie R.

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Posted 10 June 2008 - 06:44 AM

Hello Smac0719,

I know the feeling of Raynaud's Phenominum, it is a horrible experience dealing with cold, numbness and pain. I live in New York and when it's winter time it is very difficult to protect myself from the cold. Now we are in the summer season and it is still is hard for me to stay warm. I just had a flare up of raynaud's this past Saturday at my son high school orientation, it was so hot outside that in the school they blast the air conditioner, regladless I always walk with a sweater and gloves, I still freeze up like a popsicle. My son had to help me get around the school and to leave afterwards, as soon as the heat from outside warm my body I was fine. Altough I take medications to help with the raynaud's I still have to walk with sweaters, gloves and other things to keep warm. I have a plan for winter when it comes, I will be buying heaters, more warm clothing and warmers for shoes and gloves.

Good Luck
Leslie R