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Biomarker for Diffuse Scleroderma skin has been discovered!


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Moving to France


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#1 Hapi

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Posted 08 June 2008 - 10:01 PM

Hello everyone!

Have just found this site while looking for a meeting in France.

I have Scleroderma/Polymyositis overlap and was diagnosed in 2003. Taking all the usual medication - Prednisolone, Azathioprine, Plaquenil etc. etc.!! I've managed to reduce the Prednisolone to 1mg, which is the lowest I've ever managed without having a setback. Hopefully I will be off it entirely in a couple of weeks - Hurrah!!!
I've got pain in my arms and hips, but I think I can live with it unless it gets worse!

I read somewhere that prednisolone gives you 'an unfounded sense of euphoria'!! Strangely I have been feeling rather depressed recently, which is strange for me. I wonder if all my Joie de Vivre has been totally unfounded?!! :huh:

I wonder if anyone here is living in France? I am hoping to retire to France but want to try to locate somewhere near to a hospital where Scleroderma is understood. I understand that the French health service is the best in the world, so maybe it shouldn't be a concern at all.
I would really love to hear from anyone who has relocated to france from the UK or, in fact, anyone in France! I'm hoping to go to the Charente.

:) Hapi

#2 summer

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Posted 08 June 2008 - 11:15 PM

Hi Hapi,

I just wanted to welcome you to the forum, you'll find a lot of compassionate, warm and friendly people here.

I think there is only one person who belongs to this forum that lives in France, her name is PRINCESSB. If there is anyone else I'm sure others will chime in soon.

Take care
Celia

#3 Snowbird

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Posted 09 June 2008 - 10:51 AM

Hi Hapi

I'm not in France either but I have to admit that France does have a great ring to it.

I also wanted to welcome you and wish you good luck in your adventures!
Sending good wishes your way!

#4 Hapi

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Posted 10 June 2008 - 01:55 AM

Thanks for the welcome Ced and Snowbird.

This forum is quite unlike any other I've seen - everyone is so positive. I am so impressed by the warmth, love and support that is shown by and to everyone.

So glad I found it!

:) Hapi

#5 Sam

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Posted 10 June 2008 - 02:15 AM

Hapi welcome I dont live in France either I live in the States, Ohio. I 'm glad you found this site its awesome place to be... Take care and good luck in France. Sam
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#6 debonair susie

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Posted 10 June 2008 - 02:35 AM

Hi Hapi,

I'm glad you have found this forum because we DO care about one another. There's always going to be folks who can identify withwhat others are going through/feeling.

Moving to France does sound great... I'm far from there, and have never been, but it sounds as though you're ready to go!

Keep posting...it's great to see you here.

Hugs,
Susie
Special Hugs,

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International Scleroderma Network (ISN)

#7 PrincessB

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Posted 10 June 2008 - 08:39 PM

Hi Hapi,

I do indeed live in France, in Strasbourg, which is in Alsace. The care that I have received here has been amazing, Strasbourg is one of only 4 (or 3?) centres de référence for autoimmune disorders in France (the others are in Paris). Which isn't to say that you wouldn't also receive excellent care in Charente, just that it was nice for the doctors here to be so aware of all the symptoms and catch everything so early.

I love Strasbourg and Alsace is beautiful too. We are right on the border with Germany, and the Vosges and Black Forest 'mountains' (they're more like hills really) are very close. There's a Ryanair flight from Stansted to Baden Baden and a navette to Strasbourg for the London flights, so it's relatively cheap and easy to get back. Or you can fly from London City Airport direct to Strasbourg Entzheim. Where are you from in England? PM me if you'd like to ask me any questions, tell me about yourself, etc. You can also search on my user name to read my entries on the forum.

Hope to hear from you, B x
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)