My doctor has indicated to me that the type of scleroderma I have is Diffuse. I don't have any organ involvement, but has been very rapid/aggressive and currently 90% of my skin is involved and underlying connective tissue, will continue to get worse for 3 to 5 years then will level out and will get "some" improvements.
I have tried to find information of this "leveling out and then some improvements" on the internet and here on this site. But I have not been able to find anything.
Does anyone have any suggestions were I could look? Or have any knowledge about this?