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Morphea


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#1 truman

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Posted 12 June 2008 - 09:48 AM

Strange, since my recent hospital visit and twice peeling of my skin through allergic reaction, two morphea spots have virtually disappeared. The large one on my stomach and the one on my upper arm have gone in addition to extensive bruising from IV's have disappeared as soon as one day. Almost like the skin is regenerating. Any opinions?
Tru

It is what it is...........

#2 Shelley Ensz

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Posted 12 June 2008 - 09:55 AM

Hi Tru,

My opinion would be, that's fantastic! Whatever they did, must have done you good. Morphea often does settle down or clear up on its own after awhile, but I'd tend to think they may have given you something which spurred on the healing process. Congratulations!
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
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#3 Sheryl

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Posted 12 June 2008 - 10:10 AM

Great news Linda. I haven't a clue either but what ever you were taking, write it down and don't forget the names of the medicines especially the one that you were allergic to. Nice that the morphea spots are healing. I hope the toe is also. Didn't you go into the hyperbaric chamber? Maybe that is what helped in your healing. It was for the toe but who knows it may also help morphea. Now, how is the Not Smoking coming along? I sure hope you are being a good girl. No cheating or you are starting at square one, all over again.
Strength and Warmth,
Sheryl

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#4 Snowbird

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Posted 12 June 2008 - 10:19 AM

I think it's great news too!!
Sending good wishes your way!

#5 summer

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Posted 12 June 2008 - 01:42 PM

Hi Tru,

I'm glad that you are feeling a little better, I always thought that you had LImited/Crest Scleroderma and not Morphea?

Please correct me if I am wrong.

Many thanks
Celia :unsure:

#6 barefut

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Posted 12 June 2008 - 03:28 PM

Tru,

That is so good to hear. After all you have been through, you deserve a bit of a break from something!

No more hives either?

#7 truman

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Posted 12 June 2008 - 03:46 PM

Celia:

I'm not quite sure what the clinical name is. I'm told I have CREST which involved the skin, and limited involvement at that. The morphea area on my stomach has been for almost four years, long before my diagnosis. The morphea spot on my arm came about two years ago.

So far, my symptoms have been limited to wrist to elbow skin involvement and slight ankle involvement. In addition to the Raynauds and loss of toe thereof. Lately I've had the severe itching for which a trip to ER last night started the med HYDROZYZINE HCL which is so far, working nicely. They also put me on Prednisone again, 60 mgs (too high), for which I will again be weaned off this week.

Linda
Tru

It is what it is...........

#8 truman

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Posted 12 June 2008 - 03:48 PM

Barefut:

Hives gone (fingers crossed). Skin peeled three times. I must now, at 53, have the skin of a baby :lol: . I've been really applying the lotions to this new layer of skin, and it's beginning to feel really smooth and supple.

Linda
Tru

It is what it is...........

#9 summer

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Posted 12 June 2008 - 06:47 PM

Thanks for response Tru, I didn't realise that you could get another affliction from Scleroderma. I knew that LImited could turn into Diffuse, but didn't know that Limited/Crest could make you get Morphea....

You learn something new everyday :o

Take care
Celia

#10 oneuncoolmom

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Posted 12 June 2008 - 07:28 PM

Hi Truman,
It's so good to see that you are back on the Forums. I've been wondering when you would be able to get back on!! I think you've stumbled upon a morphea cure that the doctors don't know about. I wish you could figure out what exactly did it. In answer to Celia's question about whether you have Limited Sclero/CREST or Morphea, I believe you & I are both very unusual in that we have BOTH. So........it would be very cool to know how to get rid of the morphea, and I wish we could find out what it is that makes us have the rare situation of having both conditions. All of the research says that both conditions RARELY occur together.

Oh, well.....I guess we'll have to wait for medical research to advance.

Anyway, Linda, keep getting better.
All the best,
Margo (One uncool mom)

#11 truman

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Posted 12 June 2008 - 11:49 PM

Margo:

I've always been in the classification of "if anything can go wrong, it will go wrong", which I guess explains it :blink: .

Linda
Tru

It is what it is...........

#12 Sheryl

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Posted 13 June 2008 - 01:17 AM

Linda, really protect your skin. You don't need a sunburn to burn your skin and start some other process with the new tissues under the surface. Be real careful at all times. Remember the old saying love the skin your in. Well then, love it deeply. I hope you can now start enjoying some of your days. One day at a time girlfriend, take baby steps to recover. I'm thinking good thoughts for you. They are coming your way.
Strength and Warmth,
Sheryl

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#13 Karenlee

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Posted 16 June 2008 - 03:11 AM

Hi Linda,

Wow, that is awesome news that the morphea spots are gone! I'm so glad you've finally had something positive.

Karen