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Biomarker for Diffuse Scleroderma skin has been discovered!


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Tru.....How are you?


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#1 smac0719

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Posted 15 June 2008 - 07:29 AM

Hello Tru! I've seen you posting so I hope that means you are feeling much better and recovering well. I have been sending "healing" thoughts your way.
I may have Scleroderma, but Scleroderma doesn't have me!

#2 Clementine

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Posted 15 June 2008 - 10:04 AM

Yes Linda, we need an update on your little sweet self! I think of you often and hope you are getting the rest and help you need. xoxo!
Tangie

#3 truman

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Posted 15 June 2008 - 05:34 PM

You friends are so sweet...........

I'm doing better day by day. Wound up in ER last Wednesday night for a repeat of the severe itching. They put me on 60mg Prednisone (will wean off this weak) and Hydrozyzine HCL which handles the itching really well. Thursday, back to the general practitioner and after discussion with him, we are beginning to think this itch is just part of the CREST syndrome.

Thursday, went to the wound care center at the hospital as well. They think I'm ready for this oxygen type chamber device for the amputated area, beginning next week. You have to keep it on 22 out of 24 hours of the day. I'm told you can be mobile as it is the size of video cassette, but based on the location I'll have to wait to see.

What I really need to do is get physical therapy for my legs. With being off them so much and the recent hospital stay, they're getting hard to use on steps. I fell down the stairs a few days ago, grateful it was only four steps. Going up is nearly impossible without a cane and something to hold on. Sometimes just the street curb throws me.

After all those pasts events, I still don't hear much from the boys. Guess that's the way it's gonna be; emergencies only. Other than that, I can't complain. Day by day...that's all; things take time.
Tru

It is what it is...........

#4 Buttons

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Posted 15 June 2008 - 10:09 PM

Tru

Glad to hear that things are improving for you, you have certainly had it rough recently.

Take Care

Jensue

#5 Peggy

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Posted 16 June 2008 - 06:36 AM

Glad to hear you are on the mend. It sounds like 2 steps forward and 3 steps back but isn't that the way this disease is. I can relate to your leg problem as my pain is so bad and the weakness is getting worse that I'm not able to do much at all. Please be careful and use the cane as you don't need any broken bones on top of things.

I was glad to see on one of your posts that may be getting some good news on your disability. I sure hope so. You have had to wait long enough and it's time they make a decison and a positive decision too.

I'm sorry about your family but at least they do come around in an emergency. Time may heal and they will eventually come to their senses. Life is so short and sometimes people just need to be reminded of the fact that you can't get those times back once they are gone.

I'm just glad to see you back here and to see your positive advice and comforting words to the people here.

Take care and warm hugs,

Peggy

#6 debonair susie

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Posted 17 June 2008 - 07:36 AM

tru,

Thanks for giving us an update on yourself...you keep improving and doing what you are, as it seems to be working.

Except...please stop falling, my friend..that can be hard on a body :o

Also, I continue to be disappointed that your boys are being this way... I hope this turns around very soon, as you are their only mom!

On the same note, I saw myu daughter, granddaughter and sister-in-law for the first time in 11 years... {when my dad passed away}.
You see, my ex-dad-in-law passed away 1 1/2 wks ago and my daughter and family came over to see my mother and also came and visited...for 3 hrs!...w/me and hubby!
I have no expectations, unfortunately...knowing her as I do. However, we thoroughly loved being able to see them before they left the next day. I have no idea if/when we'll see them again...I can only hope it's much sooner than 11 more years.
So my friend... I feel your hurt...{{{{Big, soft Hugs}}}} for you!

Susie :rolleyes:
Special Hugs,

Susie Kraft
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#7 truman

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Posted 18 June 2008 - 09:16 AM

Susie:

So glad to hear you had a great visit. Sometimes eggshells are hard to walk on, especially in bare feet. I do relate; please see my new post "elated" in the den.

Hard to believe that after years of raising and love, things can go so desperately wrong. Can't mentally understand how these things can happen, gel and harden. I think family estrangements are more devastating to me than this disease. The fact that we may have control over the estrangements is heartening.

May the relationship continue to be on the upswing. Too much love is never a bad thing.

Linda
Tru

It is what it is...........

#8 Sheryl

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Posted 18 June 2008 - 10:15 AM

Tru, I am so happy things are starting to work out for you. Its happy I am to hear that at least one of your sons is keeping all avenues open. Things take different time periods with different people. Help sometimes comes from the least expected people. Hey, tell your friend that those marks on your face are the newest rage in beauty. The cost is high. Too high for most people. They couldn't handle the unltimate price.
I hope Ryan shares one of his stuffed chicken breasts with Dane. Now, were they already cooked or were you just preparing them and he happened by? Then, did you get to tell him the best way to prepare them. Humm! Well you know the old saying the way to a mans heart is through his stomach. Mayhap it will be the same for your sons. Mom's homemade favorites always do the trick. When you are going to be making a special dish you can always email or call them the day before and tell them what you are preparing. They can either come for dinner or drop by later in the evening and pick up any leftovers, and stay for a short visit. Leftovers are one of my sons favorite things. I haven't written to you much lately as I have been busy around here. I do think of you often and I get excited when I hear that you are doing better. Take care of YOU. YOU are important. Keep writing, we know that you are up and about and feeling alive.
Strength and Warmth,
Sheryl

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#9 truman

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Posted 18 June 2008 - 10:40 AM

Thank you Sheryl, always a dear friend.
Tru

It is what it is...........

#10 truman

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Posted 18 June 2008 - 10:43 AM

I know it sounds silly, but I'm elated. My younger son stopped over for a surprise visit today and it went so well. It was like the old times. We covered topics we usually relate to and it didn't feel stilted at all (at least I didn't feel it). He was so sweet and I got the feeling things may be okay again. I sent him home with stuffed chicken breasts and got a large hug laugh.gif .

I hope we're getting back on track again, because I so do miss my sons.
Tru

It is what it is...........

#11 Karenlee

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Posted 18 June 2008 - 11:08 AM

Tru that's awesome! I saw you posted this in the den but I just had to say again...woohoo!!! Things are certainly looking up. You deserve it :) It must feel wonderful to re connect with your son. :)

#12 Margaret

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Posted 18 June 2008 - 12:46 PM

Hi Tru ,

As a Mom, I love hearing good things about our relationship with our kids. Glad you both ended the evening laughing and hugging.

Take care, Everyone.
Margaret

#13 debonair susie

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Posted 18 June 2008 - 05:59 PM

Linda,

I did see your message in the Den... I even posted there!

However, this is better news! I am so glad you and your son had a good visit. I'm also not a BIT surprised you sent food home with him, either!lol

Thanks for sharing YOUR good news, too.
...and thanks for your message!

Lovin' Hugs,
Susie
Special Hugs,

Susie Kraft
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