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8 replies to this topic

#1 Phaedre



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Posted 11 December 2006 - 06:39 AM

Hello my name is Phaedre and have been diagnosis for 10 years now. I recently (6/20/05) had surgery, abdominal, which dehiesced and I am still not healed from and no one feels that the sclero is an issue, even though they took me off prednisone the day after I went to the hospital the second time and I am in a full skin flare that is everywhere but my face and hands. . I don't know if this is allowed but I am trying to locate a dr. in Jksv., Fl. who has some expertise in sclero. If anyone has a recommendation I would appreciate it.

Thank you and thanks for the wonderful site.


#2 Steve


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Posted 11 December 2006 - 07:28 AM

Hi Phaedre, and welcome to our community. So sorry you are in a flare right now. Hopefully somebody can put you in touch with the doctor you're seeking. Thanks for posting your first message, so good luck with your search.
Take Care,

Steve Dickson
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#3 Sheryl


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Posted 11 December 2006 - 07:34 AM

Hello Phae, Welcome to our growing group of Sclero friends. I would think if you called a hospital in Jacksonville they would look on their board of Doctor's for someone specializing in Scleroderma. If they don't have a specialist then they should have a state directory with Doctors in each field. Not much help really, but that is what I would do. Sheryl
Strength and Warmth,

Sheryl Doom
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#4 Sweet


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Posted 11 December 2006 - 07:36 AM

Hi Phae,

Welcome to the sclero forums. I'm sorry you are so ill at this time. I'm going to give you a link that perhaps you can search through to find the provider you are talking about.

Scleroderma Experts.

Good luck!

Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 LisaBulman


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Posted 11 December 2006 - 08:40 AM

Welcome to the board!

I am so sorry that you are having such difficulty healing from a procedure done so long ago. You should definately get in touch with a specialist as soon as possible.

Take care,
Lisa Bulman
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#6 nan


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Posted 11 December 2006 - 12:37 PM

Welcome! I am sorry that you are so sick right now. This site is wonderful! I just found it last week. I hope that you can find a good doctor to take care of you.

#7 janey


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Posted 11 December 2006 - 01:51 PM

I'd like to join the others in welcoming you to the forum. I'm sorry for the recent problems you are having. I hope you can find someone to help you soon. I went through the link that Sweet provided and was unable to find a scleroderma specialist in Florida. However, I was able to get a list of Rheumatologists in Jacksonville, FL. I would suggest that you call around and see if any off them have experience treating scleroderma patients. If they say "yes" - ask "how many?"

Please take the time to read some of the articles at the link that Sweet provided. There's some interesting information that might help you determine whether or not you should see a specialist.

Please keep us informed on how you are doing and if you find a good rheumatologist. Again, Welcome!

Big Hugs,

Janey Willis
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#8 emmie


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Posted 11 December 2006 - 05:51 PM

Welcome Phae,

Sorry to hear of your difficulties healing. Good luck in finding a rheumatologist in your area. Please let us know how your search goes and how you are doing.

xoxo emmie

#9 Elehos


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Posted 12 December 2006 - 02:30 PM

Hi Phae,

I haven't said hello and welcome yet! How is your search for a doctor going? I'm still in the process of getting into a rheumatologist myself, and they're far and few between out my way. It's hard to believe that any doctor wouldn't consider the sclero as a factor in healing, but I know for a fact that it has made healing from surgery much, much slower through the years. Flares afterwards are typical since your body is so stressed. I hope you find a great doctor soon, and welcome to our family!

Best wishes to you,