Posted 16 June 2008 - 02:45 PM
How do you know if your joint pain is sclero related or just getting older? Both of my knees hurt when I walk. It's not terrible but it is really hard to walk up and down stairs. I'm only 41. It's not that it matters really, but wondering if I am always going to feel this way.
Posted 16 June 2008 - 03:09 PM
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Posted 16 June 2008 - 03:16 PM
I know that you are in better shape than I am and I don't think 41 makes you decrepit so it could very well be a sclero thing. I have read that a lot of people's first symptoms was pain in their knees.
We'll see what others say....
Posted 16 June 2008 - 03:30 PM
Yes Sheryl, I am getting older, day by day...ha ha!
These lousy aches won't keep me from having fun with my hubby.
I'm going to make sure we get some positives from this time we have to
Posted 16 June 2008 - 09:06 PM
Posted 17 June 2008 - 01:43 AM
I am 41 too and I feel like I have the joints of an 80 year old. Stiff as a board. Poor hubby has to push me out of bed sometimes and pick up everything that I drop (which is a lot )as I can't bend down. I wonder too sometimes, if it's the disease or me getting older, or a combination of both. I've tried stretching exersizes, but so far I still have trouble even tying my shoes.
I hope you feel better soon. Maybe it's just a passing flare?
Posted 17 June 2008 - 05:43 AM
I sure can relate to the joint pain, but can't answer to the cause. I know that over the years, I've gotten "new" diagnoses, so maybe that could happen withyou as well.
As Pam mentioned, be sure to bring it to your dr's attention.
Do you take anything for pain? Seven years ago, I had a pleurisy attack and up until then, I took nothing for pain. I never realized the pain I was in until I was prescribed Vioxx, then Celebrex and finally Mobic... I was able to sleep like a baby!
I also notice that when there's a change in barometric pressure, it affects my joints.
For the last several months, I hadn't been taking the Mobic because as withanything, it also has side effects. However, I'm going to have to start it backup today
Hope you can find some relief, Kiddo!
Posted 17 June 2008 - 11:19 AM
I think it's a combination of aging and sclero. I have a terrible time with stairs too. I went to physical therapy and found out that I have severe arthritis behind the kneecap. The very best thing we all can do is a regime of stretching exercises. It's amazing how effective they are when you do them every day! I know it's so hard, given all the body parts we need to attend to, but those achy joints make me feel old too and I'm only 50! Good luck
Posted 17 June 2008 - 11:35 AM
I think it's got to be sclero related as I have it really bad and I'm "only" 48, unless that's arthritis already. I don't think so though as not only do my joints hurt my muscles are terrible. I don't know if in my case if it's sclero or the Polymyositis. The Poly diagnosis just came a month ago so I am anxious to ask my neuro doctor on Monday what this disease is all about and if that's what's causing all this pain or if it's from the sclero. I had hoped the IVIG would help but it hasn't yet.
I can relate on the knees. I too have to have aid to get back up if I squat down. Just squatting to get something out of a cabinet is hard, and heaven for bid if I am sitting down on the floor. That's quite a process to roll into a certain position to get back up. We also had to put bars in the tub as it was getting impossible for me to be able to get out of the whirlpool.
I blame this disease for all of this and it has been really hard for me. I used to be so active and was so sports minded and agile. Now I'm like an old lady that's frail and not able to do anything without assistance.
Sorry to vent on your post, but I know what you're going through.
Posted 17 June 2008 - 11:56 AM
In our page on Arthritis, it says "Scleroderma is classified as an arthritic disease, along with rheumatoid arthritis, lupus, dermatomyositis, and more than 100 other medical conditions."
"Autoimmune arthritis is arthritis caused by your own immune system attacking your own body. Types of Autoimmune Arthritis include rheumatoid arthritis, reactive arthritis, systemic lupus erythematosus, scleroderma, ankylosing spondalytis, and psoriatic arthritis."
Having joint pain doesn't necessarily mean scleroderma, but it is certainly something that can be considered consistent with the diagnosis.
I am not a doctor, but I wouldn't think lack of skin involvement would have anything to do with joint involvement.
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Posted 17 June 2008 - 01:29 PM
Good article find Jefa!!
Posted 18 June 2008 - 02:44 AM
Posted 18 June 2008 - 03:41 AM
And good point with the weather. Although, I do notice I'm stiffer when it's rainy and nasty out.
Posted 18 June 2008 - 12:46 PM
Posted 20 June 2008 - 11:06 AM
When I was undergoing treatment for lymphoma, they asked me how much trouble I had walking, what with the avascular necrosis in my hip, that they saw on a scan. I just that I had a little glitch from age (late 40s at the time). A few years later I had a complete hip replacement.
Thus I dodn't try to guess at these things.
As for scleroderma pain, myalgia (muscle inflammation) is much worse for me than any joint pain. They can be hard to tell apart. At a time when I was in a lot of pain I had a x-ray of a joint, which showed no arthritis - which narrowed it down to myalgia.