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Hyperbaric Oxygen Therapy


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#1 truman

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Posted 21 June 2008 - 07:24 AM

Has anyone had any experience with the Hyperbaric Oxygen Therapy. I'm trying to weigh the pros and cons and will meet with the doctor and staff on Tuesday to discuss.
Tru

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#2 Shelley Ensz

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Posted 21 June 2008 - 08:30 AM

Hi Tru,

We have one article on it on the main site:
Hyperbaric Oxygen Therapy

And then one unfortunate story where it didn't work out for Syl, who many of us still miss a lot!
http://www.sclero.or...syl/a-to-z.html Syl had hyperbaric treatments for her huge leg ulcer shortly before she passed away.

But she did have other complications, and the combination of hyperbaric with pulmonary hypertension might not be the best idea. But her story includes a photo of her, along with me and Judy Tarro (JudeTheGrouch on Sclero Forums).


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Sheryl

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Posted 21 June 2008 - 08:36 AM

Tru, I have only heard good things about the healing powers using the hyperbaric chamber. If your toe still hasn't healed after everything you have done and tried then if it were me I would give it a go. They may have to do some debriding before doing the procedure. This has been going on for far too long. Don't take to much time thinking about it. You need to be up and moving about without worrying about your toe any longer. You have things to do and places to go.
Strength and Warmth,
Sheryl

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#4 truman

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Posted 21 June 2008 - 08:54 AM

Thank you Shelly for your input and links.

Linda
Tru

It is what it is...........

#5 truman

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Posted 21 June 2008 - 08:57 AM

Sheryl:

Actually, that is my dilemma. Through the debriding, the wound has gone from the size of a quarter to approximately smaller than a dime in one week. I don't know if this is worth any risks at this point which is why I will meet with them on Tuesday. I appreciate your input and knowing this info, what your thoughts are.

Linda
Tru

It is what it is...........

#6 Sheryl

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Posted 21 June 2008 - 09:08 AM

Linda, Opps I lost my letter. I accidently click on shift or control and the question mark or another key and I loose what I have been typing. Any way Linda you may not even have to worry about the chamber. If you have been debriding it with an ointment or debriding cream and it has been healing quickly then one more week and it might be Just about well. I hope your appointment goes great on Tuesday. Send a bouquet of flowers to your sons. Let them know you are THINKING about them, and you love them. Celebrate!
Strength and Warmth,
Sheryl

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#7 truman

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Posted 21 June 2008 - 09:18 AM

You're a doll Sheryl, just emailed them and Ryan was happy to hear the news! :lol:
Tru

It is what it is...........

#8 annkd

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Posted 21 June 2008 - 09:52 AM

Hi Tru - I thought I would pass along a recent story of my friend who used the hyperbaric chamber for her toe problems. The procedure for the toe went well (better than she expected) however; she experienced problems with her vision and the doctors made her stop. Her vision was really impaired for a while but she seems to be doing better. Meanwhile, her toe is soooo much better. Hope this helps. Side effects can differ for each person :) -Ann

#9 Karenlee

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Posted 21 June 2008 - 10:02 AM

Linda,

I'm not sure what to say other than good luck with whatever you decide to do. I have no knowledge of the chamber therapy, but I do know that I want your toe healed up once and for all.

Love,
Karen

#10 Sweet

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Posted 21 June 2008 - 11:56 AM

Tru,



Have not tried it, but it was suggested for me. I live in the sticks however and I'd have to travel a very long way to do it, so haven't.
Warm and gentle hugs,

Pamela
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#11 nan

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Posted 21 June 2008 - 01:57 PM

My father-in-law who was a diabetic used it to heal a sore on his foot. It worked really well for him.
Nan

#12 JohnLCanuck

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Posted 22 June 2008 - 05:06 PM

Hey Tru:


I've had two sessions in HBO. One for 40 days, 5 days a week for 3 hours a day, 2006 & another one in 2007 for 30 days. I think it really helped me heal. At the time 2006, I had 5 open ulcers, raw. . . not just the little black dots, & they cleared right up. Then in 2007 I had two calcinosis lumps dug out & was left with big holes.

All these surgeries have healed & my finger guy is amazed. He told me to keep in touch with the HBO (@ our big hospital here) in case we have to do another op.

The other thing I noticed is that my fingers, hands, are much more useful. I find everyday I'm doing something I haven't done for years.

Give it try. It is a bit boring & tiring . . . but for me it worked.
John L

#13 JohnLCanuck

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Posted 22 June 2008 - 05:12 PM

Hi again ~

I guess I should have read all the replies before I jumped in. But I just so excited about talking about HBO, I sent a reply.

Anyway, what I wanted to add was that everytime I was in the "tank" there was at least one person with a toe or foor ulcer that wasn't healing. The HBO works for them.
John L

#14 janey

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Posted 23 June 2008 - 03:56 PM

Tru,
I can't share any personal experience but I did find a very extensive article at eMedicine on HBOT. It's quite extensive. Here's the link and some excerpts:

Hyperbaric oxygen therapy (HBOT) . Foot wounds from diabetes, radiation ulcers, and other ischemic wounds have been manipulated and successfully treated with HBO. However, HBOT is not without side effects. Side effects include oxygen toxicity as well as barotrauma, a physical damage to body tissue caused by pressure differences inside and outside the body.

Hopefully you'll find some information to take to your appointment tomorrow. Hope it goes well. I look forward to your report from your appointment.

Big Hugs,
Janey Willis
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