Oh my head!
Posted 27 June 2008 - 04:24 PM
My scalp started to itch about a month ago, lately it feels burnt & itchy, but my friend says it doesn't look red or irratated, but that it looks "tight". I don't know how a scalp looks tighter than it normally would though. I thought maybe it was sun-burned except that I have thick hair & I wasn't outside that long & nothing else got burned...not to mention I've been out in the sun for hours before that day I first felt the burn & didn't have that problem.
Posted 27 June 2008 - 11:27 PM
You know, from time to time my scalp feels really tender to touch, like my hair follicles are inflamed or something? Taking a shower, regardless of temperature, makes my scalp feel like it has a chemical burn.
Like I said, this comes and goes for me. I tell my kids, "Go easy on me today even my hair hurts"
I don't color treat or perm my hair and there is no flaking or itching so I have chalked it up to a sclero thing but haven't mentioned it to any doctors. since it is always a temporary thing for me.
Posted 28 June 2008 - 07:12 AM
Posted 28 June 2008 - 10:31 AM
Posted 29 June 2008 - 04:17 AM
Anywho... no matter... it is all power for the course. It seems everytime I have to go to the doctor I have "bad news" or more or different symptoms... I have a check up with my neuro (for headacheless migraines) & I have to tell him my muscle weakness is worse in shoulders & that they tremor with movement now... but I don't even want to go there!
Posted 29 June 2008 - 05:31 AM
Posted 29 June 2008 - 10:05 AM
I was at a myositis meeting yesterday and several people with dermatomyositis brought this up as a major problem.
They talked about several products they were trying, and how to get the prescription written so that it could be used on the entire scalp, and not just spot treatment. Sorry I don't remember the products, though. One of the members has a lot of success after seeing a new dermatologist at George Washington Univ. (recommended by her rheumatologist) You might consider posting the question or checking the archives on the myositis association discussion board for suggestions (?) Just a thought.
The rheumatologist who was in the room said she prefers to try systemic medications first...
Posted 29 June 2008 - 11:25 PM
Best wishes to you all
Posted 30 June 2008 - 01:09 AM
It must be a sclero thing...I will ask my dr. at the next visit.
Posted 30 June 2008 - 03:02 AM
Posted 30 June 2008 - 04:18 AM
Thanks a TON everyone for your imput... just hearing that yes, some of you & some that have Dermatomyositis have this issue confirms for me that it probably isn't some unrelated fluke thing going on & to go see my dermatologist.
I did see a Rheumatologist (who is in the office with one who is a member of the American college of Rheumatology) a couple years ago, he wrote "possible occult connective tissue disease" in the report & that I had some enlarged & irregular capillaries in my nailfolds, but when I went back to him last winter because my toes kept getting petechiae on them & I was smelling ammonia & the skin of my knuckles kept getting tight... he didn't have any answers for me so I am reluctant to go back.
Posted 30 June 2008 - 04:30 AM
I said, "I didn't say that at all; YOU have no idea why I am smelling ammonia so I decided to do some reading & this is MERELY a suggestion of something to look into, you are the doctor & have a better understanding of that stuff, that is why I am asking YOU!"
Anyways, my point is just that going to a fuorum is a great place not only for support but for getting a better idea of what goes on from the patients perspective...I'm rambling, I know, & probably making no sense...lol