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Changing doctor


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7 replies to this topic

#1 fri83

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Posted 28 June 2008 - 08:34 AM

well I have been on her whining for awhile. after I read some of ya'lls posts I feel like a complete whiner. I feel bad and hurt but near to the extent of ya'll. I feel for each and every one of you and hope that we all can feel better soon. ya'll are very caring for everyone whether diagnosed with some bad disease or not. reading your posts makes me feel fortunate that I have not been through more and yet more determined to figure out what is going on with myself as I know something is not right and do not want it to
get worse than it has to.

since my primary care physician decided to diagnose my with fibromyalgia with no pressure point tests and also with raynauds and again no investigation as to if something else is going on, I am going to a new doctor monday. my mother goes to him and I have heard from others that he LISTENS to his patients and investigates the problem. so hopefully I will at least feel like all my problems have been heard and not just chalked up to fibro.

#2 bookworm

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Posted 28 June 2008 - 08:33 PM

Good luck Fri 83!
Finding a good doctor is the key to getting diagnosed and treated, no matter what's wrong!
I hope your mom's doctor is the one for you!

Mary in Texas

#3 janey

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Posted 29 June 2008 - 06:18 AM

Fri83
Please write down all your symptoms whether physically visible or not. Have all your questions written down as well. It's amazing how easy it is to forget when we get in that doctor's office. Sometimes I wonder if dementia is a symptom of scleroderma. :)

Good luck tomorrow. Let us know how it went.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 Snowbird

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Posted 29 June 2008 - 06:34 AM

Fri83

I'm glad to hear that you are going to a different doctor, good for you!! If you mother recommends this doctor, then it's got to be a good place to start! Just so you know, my primary physician did not diagnose me with fibromyalgia...he sent me to a very good rheumatologist who diagnosed me and who did all the pressure points tests, history, etc....that rheumatologist also happened to tell me I had more than Fibromayalgia going on at the time although he couldn't determine what it was because not enough symptoms were showing....now I know what it was. Let us know what happens at your appointment when you get back and good luck!
Sending good wishes your way!

#5 Buttons

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Posted 29 June 2008 - 07:15 AM

Snowbird, I had a similar experience. My first Rheumatologist took all the history , did x-rays, blood tests & tested all the pressure points before diagnosing me with Fybromyalgia but said something else was going on so ordered more tests & an Iloprost infusion for my Raynaud's which was much worse it was then that I was taken over by a different rheumatologist who had an interest in scleroderma & diagnosed me with Limited SSc following his examination & further tests, bloods, nailfolds & observations.

#6 Snowbird

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Posted 29 June 2008 - 10:38 AM

Jensue

That's interesting, sounds like you had more going on than I did at the time. I had killer joint pain in my ankles, constant fevers and sore throats going on back then (early 90's) which had lessened after several years although they are working their way back to me now but that was really all he had to go on..., nothing else was showing in my bloodwork....until this reared its head last year.
Sending good wishes your way!

#7 fri83

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Posted 30 June 2008 - 12:51 PM

well I went to the new primary care physician today, probably was a good move. he checked the tender points could not find but two for fibromyalgia. I am going to a rheumatologist on sept. 3rd for evaulation for autoimmune and connective tissue diseases. at least I felt I was heard, that he believes how bad I feel. maybe then I'll have some answers. crest and scleroderma did come up in the conversation, so at least I know he knows a little about it. I guess I just have to freak out and suffer two more months.

#8 Snowbird

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Posted 30 June 2008 - 03:08 PM

Hi Fri83

You did well going to the new doctor! Try not to freak out too much, all that anxiety is really bad for any disease so try not to worry at least until you know there is something to worry about (I know, much easier said than done, I'm guilty too!). Stick with us and keep asking your questions, there's always someone here who can help. I'm sure you'll be ready for your appointment in September....think of it as prep time...use the time to keep researching all your questions, etc.
Sending good wishes your way!