Posted 28 June 2008 - 08:34 AM
get worse than it has to.
since my primary care physician decided to diagnose my with fibromyalgia with no pressure point tests and also with raynauds and again no investigation as to if something else is going on, I am going to a new doctor monday. my mother goes to him and I have heard from others that he LISTENS to his patients and investigates the problem. so hopefully I will at least feel like all my problems have been heard and not just chalked up to fibro.
Posted 28 June 2008 - 08:33 PM
Finding a good doctor is the key to getting diagnosed and treated, no matter what's wrong!
I hope your mom's doctor is the one for you!
Mary in Texas
Posted 29 June 2008 - 06:18 AM
Please write down all your symptoms whether physically visible or not. Have all your questions written down as well. It's amazing how easy it is to forget when we get in that doctor's office. Sometimes I wonder if dementia is a symptom of scleroderma.
Good luck tomorrow. Let us know how it went.
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International Scleroderma Network (ISN)
Posted 29 June 2008 - 06:34 AM
I'm glad to hear that you are going to a different doctor, good for you!! If you mother recommends this doctor, then it's got to be a good place to start! Just so you know, my primary physician did not diagnose me with fibromyalgia...he sent me to a very good rheumatologist who diagnosed me and who did all the pressure points tests, history, etc....that rheumatologist also happened to tell me I had more than Fibromayalgia going on at the time although he couldn't determine what it was because not enough symptoms were showing....now I know what it was. Let us know what happens at your appointment when you get back and good luck!
Posted 29 June 2008 - 07:15 AM
Posted 29 June 2008 - 10:38 AM
That's interesting, sounds like you had more going on than I did at the time. I had killer joint pain in my ankles, constant fevers and sore throats going on back then (early 90's) which had lessened after several years although they are working their way back to me now but that was really all he had to go on..., nothing else was showing in my bloodwork....until this reared its head last year.
Posted 30 June 2008 - 12:51 PM
Posted 30 June 2008 - 03:08 PM
You did well going to the new doctor! Try not to freak out too much, all that anxiety is really bad for any disease so try not to worry at least until you know there is something to worry about (I know, much easier said than done, I'm guilty too!). Stick with us and keep asking your questions, there's always someone here who can help. I'm sure you'll be ready for your appointment in September....think of it as prep time...use the time to keep researching all your questions, etc.