Posted 29 June 2008 - 02:12 PM
Me, personally. I was diagnosed within 4 months of noticing the numbing in my finger tips. I worked the night shift (12:00 a.m. to 8:00 a.m.). My job was stressful (police officer). I was a single mother. I had just purchased a home that needed work. I (unknowingly) used industrial paint to paint the interior and the fumes were strong. That same week the carpeting was installed, again the fumes were strong. I think this combination of stress and chemicals brought on my condition. My grandmother also had rheumatoid arthritis.
What do you think?
Posted 29 June 2008 - 04:43 PM
Posted 29 June 2008 - 05:48 PM
Razz it's funny you mention the paint and carpet fumes. I refinished furniture and antiques as a hobby and constantly had my hands in chemicals and paint strippers, not to mention the fumes.
All in all, I think the predisposition was laid years ago at the shore. The mosquito spraying truck came every night, and as stupid as it seems now, our parents used to tell us to get in the fog/mist so we would be protected from bites for the evening.
It is what it is...........
Posted 29 June 2008 - 09:31 PM
Posted 29 June 2008 - 11:34 PM
Posted 30 June 2008 - 02:34 AM
I had a Lyme infection that I ignored for a long time and also tend to be sensitive to certain medications and foods. In general, I've always heard stress, heat and possibly viruses are the most common trigger for autoimmune diseases.
Posted 30 June 2008 - 03:02 AM
I, too, am convinced the groundwork was laid out. I try and warn my family, esp. one brother and sister, who tend to overwork themselves that stress does affect our physical health. I feel for your losses and struggles. You are all amazing and I truly admire your courage and strength. Thanks for helping me understand this illness.
Posted 30 June 2008 - 03:12 AM
Posted 30 June 2008 - 03:34 AM
RTS, I also heard that viruses could trigger SD.
Thanks for your responses.
Posted 30 June 2008 - 07:18 AM
Posted 30 June 2008 - 09:20 AM
I now have a whole list of things that probably acted as trigger: hormones, genetics, silica, toxins, solvents. And those of just the things that I could identify. There are SO many possible causes and triggers, that I would think it would be hard to narrow it down to just one. You'll see what I mean if you click on this link: Causes of Scleroderma. You'll see that there are TONS of things going on, so pinpointing a definitive causes, would be difficult.
Sure is something we'd all like to know however. Of course it's probably what contributes to the difficulty in diagnosis and finding a cure. If you don't know what causes it, how do you cure it? UGH!
Posted 30 June 2008 - 10:23 AM
Posted 30 June 2008 - 10:30 AM
Posted 30 June 2008 - 01:08 PM
I was deathly ill many years ago and hospitalized for about 1 week and they could never figure out what was wrong with me other than I was one sick girl. Shortly after that I started getting the constant fevers and sore throats, etc.....I think it might have been the trigger but I am not certain. Those symptoms stayed with me for several years then fizzled out to be only occasional (yes, I believe I was lucky there). Then a couple of years ago, things started creeping back in. The rheumatologist way back then said I had more than FM going on...now I guess we know what it was although I did not have enough symptoms to diagnose anything at that time. I go to see my new specialist on Wednesday...I plan on asking if that could have been it?
Posted 30 June 2008 - 01:22 PM
Posted 30 June 2008 - 02:31 PM
Posted 30 June 2008 - 04:00 PM
Subsequent to 1987, my son who was a very difficult child from birth just continued to develop more issues. My husband and I worked very hard to deal with his issues - pychologists, meds, behavioral mod, the schools, boarding schools, psychiatrists. We were stressed all of the time. Our lives were beseiged daily. Ever since then I have suffered with the fibro and developed Raynaud's. In about 1997 the Raynaud's became very obvious. My gastro issues were in existence from the time of my son's birth. I had a second child in 1989 and with the fibro and other physical issues my life was very complicated and pressured. We wanted to protect our daughter from our sons issues and have her lead as normal a life as possible and at the same time give our son as much attention and love as he needed. My husband and I did not feel that we had any control over our home or work lives. We just we putting out fires daily.
I finally got around to showing my doctor my hands in 1997 and he took a blood test and my ANA was high with florescing centromeres. Between the Raynaud's, the gastro stuff and some spidery stuff on my face, coupled with the ANA I was confirmed with CREST.
Was it caused by my pregnancy? My trauma of the accident and then all of the stress? I was the infantry and often did not even tell my husband soe of the stuff going on with my son in the beginning because he was 40 minutes away at work and I was home. I started doing it as he got older and as the issues got more complicated. Not everyone with difficult kids who is in a car accident gets CREST - I believe that you have to be predisposed or your system has to be run down eough for the disease to find the conditions opportune to wreak havoc. So what do we do to protect ourselves so that this doesn't happen? It may be too late for a cure for us, but that is the question I would like answered so that perhaps I can stop the progression and maybe prevent others from suffering.
Chocolate, It isn't just for breakfast anymore!
Posted 30 June 2008 - 04:59 PM
What Causes Scleroderma?
Advanced Glycation Endproducts
--Cells and T Cells
Cluster Studies (Main Page)
--Cluster in South Boston
Drugs and Medications
Environmental (Main Page)
--Artificial Joints & Breast Implants
--Drugs and Medications
--Mercury (Dental Amalgam)
Homocysteine, MTHFR C677T Gene
Hormones and Chromosomes
Natural Killer Cells
Neuropeptides and Substance P
Oxidative Stress, Lipid Peroxidation Proteins
Vitamin D Deficiency
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
Posted 30 June 2008 - 06:01 PM
I guess this is something I think about and hopefully in the future they'll develop a drug to reverse the activation or a preventive immunization for those who are predisposed.
You've been thru so much. I can somewhat relate withu. My eldest was always a difficult child since birth. I love her dearly but what I thought was temporary childhood behaviour evolved into a difficult adult. I was always trying to help her out. She's moved out and taken complete responsibility for herself. I've regained some of my sanity back!
Posted 30 June 2008 - 07:40 PM
Thanks for your response. I am glad to hear about your daughter. I hope that it enables you to be less stressed and to recover and perhaps your disease will slow down and not progress at all. Maybe with a reduction of stress you can even go into complete remission. Reclaim your life a bit and start to do things you used to enjoy.
Your daughter's story gives me hope. My son lives in a condo we bought and hopes to graduate college next May and go to law school in the fall of that same year. He has cleaned up his act quite a bit, but he is still needy. My husband and I feel that kids today just grow up and become independent so much later than we did. I think that because of that we as parents are stressed more because we are called on to do more - we are squeezed more. We boomers are the sandwich generation - we have parents who are aging and require attention (although my husband and mine are still doing ok for the most part) and children who requie a lot of attention. That creates a lot of demands and stresses. That pushes the autoimmune button and for us I truly believe it triggered the disease.
Your little note made my day (night) thank you
Chocolate, It isn't just for breakfast anymore!