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Update on Lisa (Peanut) from Best Friend


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#41 Peggy

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Posted 09 July 2008 - 03:42 AM

I am so glad to hear that Peanut is doing so well. Her strength and determination will win and she will be back to the way she was before this disease took over her life. Please give her my best and tell her to hang in there. Each day will be better than the last.

Warm hugs,

Peggy

#42 Snowbird

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Posted 09 July 2008 - 09:53 AM

Thanks for the update Sara!

Tell Peanut we still miss her like mad....but we are thrilled to hear she is making such good progress. We know she's a fighter and I've no doubt she'll overcome this too!
Sending good wishes your way!

#43 Guest_Sadie_*

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Posted 09 July 2008 - 12:51 PM

Sara, Thank you so much for keeping us updated on how Liza is doing!
She is in my thoughts!
Sadie

#44 smac0719

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Posted 10 July 2008 - 04:32 PM

Sara,

You are such a good friend to Peanut! You're actually becoming a friend to us as well with your awesome updates. Tell "P" she's missed and we look forward to the day that she returns to the forums!
I may have Scleroderma, but Scleroderma doesn't have me!

#45 SaraNC

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Posted 14 July 2008 - 09:32 AM

Lisa and I had our first real chat today! It made me tear up. I was so moved to hear her voice. She is starting to make sentences and say a lot more things. Mostly our conversation consisted of I miss you's and I love you's and Lisa very clearly said, " I miss you my friend." They say her voice will come back as she gains her strength right now it sounds a little like someone with a sore throat or cold. She is up and walking in the rehab gym. She has walked the length of the parallel bars several times. She is getting up into the wheel chair with some help. She is practicing making it to the bathroom. Every day she gains strength, endurance and relearns something new. She knows her address and phone number and can say the lyrics to nursery rhymes, songs and other route memory when prompted. In order for her to come home she needs to be able to walk on to a commercial airplane and sit in the seat. They are working on her endurance so that she can sit for 6 hours or more. They had been saying since last week that they would send her home this week but today the doctor came in and said he wants her to go to a rehab center in Chicago for a couple of weeks. So we will see what will happen. If she goes home she will need 24 hour care and hopefully by the time she goes home she will be feeding herself, going to the bathroom and able to easily get in and out of a car. The pain seems to be gone and Lisa hasn't had a fever in over a week. She has started finally sleeping through the night which is huge. The best news is they are still expecting her to get off of oxygen which would be fantastic. They keep lowering the level and hope to wean her off completely. This has to mean that Lisa's lungs are responding to the transplant and healing themselves. They won't know for another couple month if the disease is in remission or gone completely but boy will that be an exciting day.
More great updates to come. I hope to go out again for another visit once they figure out the next plan of action.
Yeah Lisa! Sara

#46 lizzie

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Posted 14 July 2008 - 10:27 AM

Thanks so much for the update Sara, we are all eager to know how Lisa is doing. It's such good news too, her progress is remarkable (I work with stroke patients so I know how slow progress sometimes can be).
Lizzie

#47 Sweet

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Posted 14 July 2008 - 11:18 AM

Oh Lisa, way to go girl!!! You are such a powerful influence in so many of our lives. We are cheering for you!!!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#48 Karenlee

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Posted 14 July 2008 - 11:43 AM

Thanks for the update.
Lisa keep on getting stronger like you are! You're an inspiration to us all and we are rooting for you!!

#49 Shelley Ensz

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Posted 14 July 2008 - 12:01 PM

Hi Sara,

It is delightful to hear your progress reports on Lisa. I am glad she continues to make such good progress. Will you please tell her we are all sending "warm hugs" her way?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#50 Sherion

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Posted 14 July 2008 - 02:18 PM

Sara,
Thanks again for the info on Peanut. It's so good to hear of her progress. Good news is always great.

Sherion

#51 nan

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Posted 14 July 2008 - 03:59 PM

This is great news! Thanks so much for sharing! Give Peanut a big hug when you see her.
Nan

#52 Peggy

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Posted 15 July 2008 - 05:12 AM

What fantastic news! I hope that each day will bring her more strength and improvement! Please give her a hug and tell her I am thinking of her and anxiously awaiting the day she can be back on here and also pulling for her to get rid of the oxygen for good.

Thanks and warm hugs,

Peggy

#53 LisaBulman

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Posted 15 July 2008 - 01:37 PM

Sara,
Thank you so much for taking the time to update us!

Lisa,
WAY TO GO GIRL!!!! I am so proud of you!! Keep fighting!

Hugs,
Lisa
Lisa Bulman
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#54 Buttons

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Posted 15 July 2008 - 10:35 PM

it is great news to hear of peanuts (lisa) recovery, she really is a fighter!

best wishes

#55 luvbnmom3

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Posted 16 July 2008 - 01:01 AM

Wow! What great news, so many awesome progresses and sleeping through the night is huge in so many ways. I know sleep does wonders for the healing process. Thank you for the updates!

#56 Nina

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Posted 16 July 2008 - 03:09 PM

Sara, what a wonderful frined you are ~ Lisa is a very fortunate person to have such a loving friend.
Thanks for taking the time to keep us up-to-date, it is very comforting to know how well things are going.
Much love,
Nina

#57 SaraNC

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Posted 20 July 2008 - 12:48 PM

Two days ago Lisa moved into the Rehab Institute of Chicago for a a
couple week stay until she can walk on to the airplane to come home.
She gets three hours a day of intensive therapy and then is able to go
out for outings. She is walking with a walker, taking showers sitting
down, feeding herself, going to the bathroom. She is really getting
stronger everyday. She is still confused and disoriented, her vision
isn't so great and she is still very tired but all this will continue
to improve. The doctor said within 6 months to a year no one will be
able to tell Lisa had a stroke! She is expected to make a full
recovery and her lungs are still getting stronger. They won't know if the Scleroderma is in recession or gone for at least a couple more months but it really looks like the transplant is working. This is great news
and she will probably be going home to Arizona in two weeks. I am
planning a trip to see her in about a week and half. I am assuming she
will still be at the RIC but if not I will go to Arizona to see her.
She will still need lots of help when she goes home but boy has she
made progress in the last two weeks.
I can't wait to see her. I am so excited to have a conversation with
her in person and give her a big hug. Thanks for all your kind words of support! We sure do need it. Sara

#58 lizzie

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Posted 20 July 2008 - 11:04 PM

More great news, both re the stroke and the scleroderma, it has made my day! Love to Lisa.
Lizzie

#59 Margaret

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Posted 21 July 2008 - 01:07 AM

Hi Sara ,

Once again, thank you for the update.

Peanut.........keep at it!!! We're all cheering you on. I will keep you in my daily thoughts.

Take care, Everyone.
Margaret

#60 Buttons

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Posted 21 July 2008 - 01:32 AM

Sara thanks again for the update, it is wonderful news that her recovery is continuing so well. The fact she is out of hospital and in the rehab unit is fantastic and that the transplant seems to be working.

Give her my best wishes for a continued recovery.

Jensue