Posted 30 June 2008 - 10:05 AM
to help me be more comfortable. I don't recall if I told you that they put my on Oxygen the other week? I use it 24/7. I'm the tube lady with all these tubes -feeding tube,picc line and oxygen.
The Hospice dr. really knows alot about Scleroderma and so does my nurse Liz. Hospice is wonderful! It is great having a dr visit me here since it was getting too hard for me to go to my appts because I'm so weak.
Posted 30 June 2008 - 11:56 AM
Thanks for the update and new posting. I think of you daily and keep you and Peanut in my thoughts each morning and night.
Take care, Everyone.
Posted 30 June 2008 - 12:02 PM
That is wonderful that you are doing well with the nurses and they are taking such good care of you. You deserve only the best. I am sorry I missed you on chat the other night. I am not able to get on it for some reason, but I just need to spend time and figure it out.
Stay comfortable, and thank you so much for staying in touch and keeping us informed. We really care about you and I think of you several times a day!
Posted 30 June 2008 - 12:54 PM
It's always so great to see your posts, you always brighten my day! It's good to hear you still think so much of your doctor and your nurse and I hope the changes they made help you feel better.
It's too bad those 'survivors' are taking a break now for the season, I'm interested to see how bad or how sneaky they are going to be this time around, bet you are too...
Take good care my friend. You are always in my thoughts as well.
Posted 30 June 2008 - 01:28 PM
Posted 01 July 2008 - 02:31 AM
I'm glad you stepped into the chatroom on Sunday, even for a short while!
It was my first chat experience and I liked the instant responses. It was like having a conversation where people can step in and out of the room at any time. I think everyone should try it.
We love hearing from you!
Posted 01 July 2008 - 04:15 AM
Thinking of you all the time. Glad to hear you like your doctor. That's great.
Posted 01 July 2008 - 06:03 AM
Warm hugs and blessings,
Posted 01 July 2008 - 09:36 AM
Try the chat room on Wednesday if you're able. I tend to get into Wednesday's. For some reason Sundays just don't connect with me.
It is what it is...........
Posted 01 July 2008 - 11:47 AM
I wish we could all meet each other!
Posted 03 July 2008 - 02:18 PM
It sounds like you are comfortable and well taken care of and it's so good to hear that.
Sending you happy thoughts good days....
Posted 04 July 2008 - 06:47 AM
I was so happy that you were able to come and chat withthose of us who were there, last Sunday eve.
(BTW, I just want to thank all of you who were there...it was great visiting withALL of you)
Suz... I'm glad that your dr and nurse are knowledgeable about Scleroderma...I'm sure I'm not alone when I say that information makes me feel better about your care, my friend
I sure wish you weren't so weak, but I'm glad your dr can visit you at your home.
I'm sending you soft and gentle hugs.