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Hospice care

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13 replies to this topic

#1 Guest_Sadie_*

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Posted 30 June 2008 - 10:05 AM

I first want to say how sorry I am that I couldn't stay on too long in chat room last night. Sorry about that. I got pretty weak. Sat afternnoon, my hospice Dr came to see us plus my nurse was here too. The Dr. has made a few adjustments
to help me be more comfortable. I don't recall if I told you that they put my on Oxygen the other week? I use it 24/7. I'm the tube lady with all these tubes -feeding tube,picc line and oxygen.

The Hospice dr. really knows alot about Scleroderma and so does my nurse Liz. Hospice is wonderful! It is great having a dr visit me here since it was getting too hard for me to go to my appts because I'm so weak.

#2 Margaret


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Posted 30 June 2008 - 11:56 AM

Hi Sadie ,

Thanks for the update and new posting. I think of you daily and keep you and Peanut in my thoughts each morning and night.

Take care, Everyone.

#3 Clementine


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Posted 30 June 2008 - 12:02 PM

That is wonderful that you are doing well with the nurses and they are taking such good care of you. You deserve only the best. I am sorry I missed you on chat the other night. I am not able to get on it for some reason, but I just need to spend time and figure it out.
Stay comfortable, and thank you so much for staying in touch and keeping us informed. We really care about you and I think of you several times a day!

#4 Snowbird


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Posted 30 June 2008 - 12:54 PM

Hi Sadie

It's always so great to see your posts, you always brighten my day! It's good to hear you still think so much of your doctor and your nurse and I hope the changes they made help you feel better.

It's too bad those 'survivors' are taking a break now for the season, I'm interested to see how bad or how sneaky they are going to be this time around, bet you are too...

Take good care my friend. You are always in my thoughts as well. :) :)
Sending good wishes your way!

#5 Sherion


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Posted 30 June 2008 - 01:28 PM

Sadie, Thanks for the update. I still find you truly amazing!


#6 razz


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Posted 01 July 2008 - 02:31 AM


I'm glad you stepped into the chatroom on Sunday, even for a short while!

It was my first chat experience and I liked the instant responses. It was like having a conversation where people can step in and out of the room at any time. I think everyone should try it.

We love hearing from you!

Live well, Laugh often, Love much

#7 Karenlee


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Posted 01 July 2008 - 04:15 AM

Suzie, sorry I missed you Sunday. I would have came in the chat room but I was busy and I totally forgot about it. I'll make sure I'm on next time.

Thinking of you all the time. Glad to hear you like your doctor. That's great.


#8 Sam


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Posted 01 July 2008 - 04:30 AM

Suzie thanks for the update, Sam

#9 Peggy


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Posted 01 July 2008 - 06:03 AM

Suzie thank you so much for taking the time as hard as it must be for you to keep us informed. We all care so much about you and I think of you often. I am glad to hear that they are taking good care of you and I hope that you are free of pain and comfortable at all times. Please take care my friend, and I mean the word "friend"! You are an inspiration with your gentle spirit and caring attitude.

Warm hugs and blessings,


#10 truman


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Posted 01 July 2008 - 09:36 AM

Hi Suzie:

Try the chat room on Wednesday if you're able. I tend to get into Wednesday's. For some reason Sundays just don't connect with me.


It is what it is...........

#11 Guest_Sadie_*

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Posted 01 July 2008 - 11:47 AM

Thank you so much for your kind words! You guys mean alot to me!
I wish we could all meet each other!

#12 Sweet


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Posted 02 July 2008 - 02:57 PM

Oh Sadie,

I wish I could have chatted with you. I missed it. You are such a sweetie.

Love ya!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#13 Annie N

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Posted 03 July 2008 - 02:18 PM

Hi Sadie
It sounds like you are comfortable and well taken care of and it's so good to hear that.
Sending you happy thoughts good days....
Annie N.

#14 debonair susie

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Posted 04 July 2008 - 06:47 AM

Hi Suzi,

I was so happy that you were able to come and chat withthose of us who were there, last Sunday eve.
(BTW, I just want to thank all of you who were there...it was great visiting withALL of you)

Suz... I'm glad that your dr and nurse are knowledgeable about Scleroderma...I'm sure I'm not alone when I say that information makes me feel better about your care, my friend ;)

I sure wish you weren't so weak, but I'm glad your dr can visit you at your home.

I'm sending you soft and gentle hugs.

Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)