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Flare ups!

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10 replies to this topic

#1 georgette


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Posted 04 July 2008 - 12:57 AM

Hi everyone, I was wanting to ask if a flare up of symptoms were normal? I seem to coast along for a time with just moderate symptoms but then from out of left field my symptoms go thru the roof, the itching, heartburn, gut ache, painful eyes, etc.

These flares can last up to 2 weeks then they just stop and it all goes back to the normal moderate symptoms. Is this what others experience?

My other question is, I have these awful hot power surges where I sweat something fierce, but I also have the opposite where I get cold power surges where I am absolutely freezing, cannot warm myself, both only last about a minute but oh dear that minute certainly feels a lot longer when ya either freezing or internally cooking! Do others have these power surges?


#2 Sweet


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Posted 04 July 2008 - 06:59 AM

Hi Georgie,

I'm sorry you are having a flare, but yes, that is very normal for me. I'm in an increased flare right now. I hope yours passes soon.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 Guest_Sadie_*

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Posted 04 July 2008 - 07:50 AM

I am so sorry to hear that you're having flare ups right now.Yes, flare up's are very normal. I hope you will soon feel better.

#4 Snowbird


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Posted 04 July 2008 - 11:34 AM

Well Georgette, it's sounding quite common. Hope it passes really soon and you feel better! :)
Sending good wishes your way!

#5 razz


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Posted 08 July 2008 - 03:09 AM


I experience flare-ups only on my right arm. It flares up when I'm over-exerted (I didn't want to say "stress"), when I've been outside in the sun or if I hadn't taken my medication (cellcept). I have to limit my sun exposure.

It is definitely possible to have flare-ups. I hope your flare-up is over and gone!

Live well, Laugh often, Love much

#6 Peggy


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Posted 08 July 2008 - 04:17 AM


I have the same as you. Especially the hot and cold attacks. It's terrible. When it's the hot it's like I'm burning everywhere then it passes and I'm freezing just like you said.

I think this disease is constantly ongoing and causing havoc with our bodies. I also firmly believe it's affecting us in ways we don't even know about yet until it's really serious and then we figure out what is going on. I have such bad days lately they are far outweighing the good that's for sure.

Hope you feel better each day.

Warm hugs,


#7 annkd


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Posted 08 July 2008 - 05:02 AM

Hi Georgette - Flare ups are part of my life. I get a burning throughout my body. Itching and pins and needles. Sometimes I feel like I have the flu. Chills, etc. I'm bundled up in a blanket and it's 90 degrees outside. Even the sun can cause a flare. I have lupus overlap - so that doesn't help. I hope you feel better soon. It does pass but it sure isn't pleasant. Take care. -Ann

#8 Sherion


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Posted 08 July 2008 - 01:29 PM

Georgette, I have those power surges where I sweat profusely. It, however, lasts a lot longer than a minute. For two years I never sweat at all now, all of a sudden I sweat almost nonstop. The least bit of excertion will bring it on. It even happened when I was curling my Mother-in Laws hair! Sweat was running off my face. I sure hope someone can give us ideas as to what causes it. By the way, I am WAY past menopause so I know that's not the cause.


#9 Margaret


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Posted 08 July 2008 - 02:27 PM

<<I'm bundled up in a blanket and it's 90 degrees outside. >>

Hi Everyone,

This is Gareth!!! It floors me that the kid is dressed in a long sleeve rugby shirt, long jeans, socks and it is 85-90 degrees outside!!! Then, he will sit under a light blanket while watching TV!!! I never thought it had to do with the sclero....I figured it was an OCD or autism *thing*.

Take care, Everyone.

#10 georgette


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Posted 09 July 2008 - 02:49 AM

thankyou all for your feed back , I thought flare ups were normal but when I told my rhuemotologist I had a flare up that lasted for 2 weeks , his response was , whats a flare up " so then I had to explain it to him and he is a sclero specialist , so it left me confused , I'm also relieved to hear that others experience the cold power surges , I had heard of the hot surges but never the cold ones , so again I thank ya all for ya input hugs georgette

#11 KarenL


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Posted 09 July 2008 - 03:51 AM

Hi Georgette,

Yes, yes and yes...I get all of the above. Oh the hot thing...I thought I'd love it comapred to the cold thing, but it's horrible. I am teaching a technology camp this summer and I get so amazingly hot on one side of body only. I had a sympathectomy that only worked on one side, so all of my hotness and sweat is only on the left! You could cook an egg on my face when it happens, and we've been in a hot humid wave here in the North east.

Flares too, yes. Sometimes I forget I'm even sick, then bam, for a week or so I can barely get out of bed. It too shall pass. Good luck, feel better,