Posted 04 July 2008 - 12:57 AM
These flares can last up to 2 weeks then they just stop and it all goes back to the normal moderate symptoms. Is this what others experience?
My other question is, I have these awful hot power surges where I sweat something fierce, but I also have the opposite where I get cold power surges where I am absolutely freezing, cannot warm myself, both only last about a minute but oh dear that minute certainly feels a lot longer when ya either freezing or internally cooking! Do others have these power surges?
Posted 04 July 2008 - 07:50 AM
Posted 04 July 2008 - 11:34 AM
Posted 08 July 2008 - 03:09 AM
I experience flare-ups only on my right arm. It flares up when I'm over-exerted (I didn't want to say "stress"), when I've been outside in the sun or if I hadn't taken my medication (cellcept). I have to limit my sun exposure.
It is definitely possible to have flare-ups. I hope your flare-up is over and gone!
Posted 08 July 2008 - 04:17 AM
I have the same as you. Especially the hot and cold attacks. It's terrible. When it's the hot it's like I'm burning everywhere then it passes and I'm freezing just like you said.
I think this disease is constantly ongoing and causing havoc with our bodies. I also firmly believe it's affecting us in ways we don't even know about yet until it's really serious and then we figure out what is going on. I have such bad days lately they are far outweighing the good that's for sure.
Hope you feel better each day.
Posted 08 July 2008 - 05:02 AM
Posted 08 July 2008 - 01:29 PM
Posted 08 July 2008 - 02:27 PM
This is Gareth!!! It floors me that the kid is dressed in a long sleeve rugby shirt, long jeans, socks and it is 85-90 degrees outside!!! Then, he will sit under a light blanket while watching TV!!! I never thought it had to do with the sclero....I figured it was an OCD or autism *thing*.
Take care, Everyone.
Posted 09 July 2008 - 02:49 AM
Posted 09 July 2008 - 03:51 AM
Yes, yes and yes...I get all of the above. Oh the hot thing...I thought I'd love it comapred to the cold thing, but it's horrible. I am teaching a technology camp this summer and I get so amazingly hot on one side of body only. I had a sympathectomy that only worked on one side, so all of my hotness and sweat is only on the left! You could cook an egg on my face when it happens, and we've been in a hot humid wave here in the North east.
Flares too, yes. Sometimes I forget I'm even sick, then bam, for a week or so I can barely get out of bed. It too shall pass. Good luck, feel better,