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Nightmare colonoscopy


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#1 annkd

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Posted 07 July 2008 - 06:32 AM

I need to vent and get some advice. I'll start at the beginning. Six years ago I had a colonoscopy. I could not be given the usual pain medication because I am allergic to it. During the procedure I felt alot of pressure but not pain. I was awake for some of it. Last week I had the procedure again (different place). They gave me pain medication. I was awake for all of it and the pain was so intense. The nurse kept shooting more medication in the IV and it wasn't helping whatsoever. I grabbed the nurses arm and she knew why! I could not however, talk. I was so scared. What happened. Has anyone had this experience. Should I approach this doctor and if so, what do I say? It has taken days to shake off the drugs. I'm feeling embarrassed and I know I shouldn't be. Thank you for hearing me out. Any advice would be greatly appreciated. - Ann

#2 Sam

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Posted 07 July 2008 - 08:32 AM

Wow that must of been awful to have happen, When I getmine done I do feel it especially in the areas where I am irritated at. I have ulcerative colitis. I have never heard of them giving strong pain medication for a colonoscopy. I think I would talk with the doctor and asked him a few questions about the morpine bit.. Sam
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#3 GocartMoz

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Posted 07 July 2008 - 10:14 AM

Hello Annkd:

I had a somewhat similar experience, with an Endoscopy. I had been on pain medication for a very long period of time. When I was given anesthesia for the endoscopic procedure, I was given the same pain medication and I had apparently developed somewhat of an immunity to the medication and as such it did not kick in. I was completely awake and was gagging horribly as I felt the scope being placed down my throat. It was awful. Whenever I am given an anesthetic now I am sure to let them know that the one I was previously given doesn't work at normal levels and get confirmation they are giving me an extra amount or a different medication so I am certain I am out. I don't know if that has anything to do with what you went through but I would certainly discuss it with your doctors so the same thing doesn't happen if future procedures are necessary. I am sorry you had to go through this. That being said you have nothing to be embarrassed about at all. I hope you are feeling better.

#4 Snowbird

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Posted 07 July 2008 - 12:54 PM

Wow is right. I've had several...the first one, I had alot of pain and remembered everything, not good! I since changed doctor's and she investigated my problem from the first time when she got my records....low and behold, I was very under-medicated. I barely remember anything with the new doctor....painless too. Not sure what she gives me but it puts me just about out in la la land and it works. I would definitely talk to the doctor as well...if only to be sure that doesn't happen to you again for your own peace of mind.
Sending good wishes your way!

#5 summer

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Posted 07 July 2008 - 01:39 PM

I had a Colonoscopy about 8 months ago and didn't feel any pain or remember anything about the procedure. The Anaesthetist did actually come and speak to me before the procedure and ask whether I had any concerns at all. He went through all of the meds I was on at the time and said that I wouldn't feel a thing.

If I was you I would contact or speak to the centre that you had it done, if only to voice your concerns or worries.

Take care
Celia

#6 Piper

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Posted 07 July 2008 - 03:41 PM

Hi, I had the same experience with my first colonoscopy. I remember yelling at them to stop and then I got on my hands and knees because I was leaving. I had a different Dr. the second time and I told him all about it and how I was worried it would happen again. He said, " don't you worry, I will not let it happen again". Whatever he did or gave me worked because I didn't feel a thing. I had a pre-cancerous polyp removed so I have to go back in another year. I will make sure they know what was given to me last time.

I also was wide awake for an endoscopy but kept thinking to myself, this isn't so bad. It was because I didn't gagg once. Make sure that the Dr. sprays your throat very well before and you won't have that reflex. The Dr. told me that he finds the spray covers much better than gargling the numbing drug.

Hugs, Piper

#7 jefa

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Posted 07 July 2008 - 10:22 PM

The experience I had with the spray was that it didn't kick in right away. Make sure that is starting to take effect before they start the procedure. For me it always seems to take longer (even at the dentist).
Warm wishes,
Jefa

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#8 Peggy

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Posted 08 July 2008 - 04:34 AM

I had a terrible experience with an endoscopy and since then they are very careful. I was in the hospital very sick with throwing up and vomiting so they ordered an endoscopy to see if they could see what was going on. Well I aspirated and apparently almost died during the procedure. The terrible thing about it was they didn't tell me. Instead I "woke" up as I was completely out and I asked if they did the right procedure as I could barely move my neck. Then they took me back to my room and about an hour later I started coughing terribly and had a fever shoot up to 104. They then decided I had to be rushed by ambulance to a bigger hospital. This is when they decided to tell me what happened and because of the aspiration into my left lung I had develped terrible pneumonia and my oxygen level was 78. It took 6 months to recover from this. Since this now when I go in for an endoscopy or colonoscopy they really make sure of the drugs and how "out" I am and they also give extra drugs for getting sick and aspiration.

Don't hesitate to complain. I have had this procedure since then and I don't feel a thing. You shouldn't have pain like you did and I would sure let them know so it doesn't happen again. Sorry you had to go through that.

Warm hugs,

Peggy

#9 annkd

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Posted 08 July 2008 - 04:56 AM

I want to thank you all for letting me know your experiences. This helps alot! When I had my endoscopy, I was fully awake & the choking was very unpleasant. I'm beginning to wonder if there is a connection with these types of procedures and my bodies inability to benefit from certain meds. All three procedures were done in different places. I go back on the 21st and I'm going to ask alot of questions and get copies of his report regarding this procedure. I'm clearly not getting medicated properly. I want to be OUT! Thanks again. -Ann

#10 smurfette

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Posted 11 July 2008 - 08:27 PM

Dear Annkd,
Your experience was horrendous and you have absolutely no reason to be embarrassed! They screwed up - you were not supposed to feel anything during the procedure - especially not pain. Each time you have the procedure they should have the anesthesiologist speak with you to discuss issues of allergies, meds you take, prior procedures and what he/she is going to do to keep you sedated and pain free during the procedure. This should happen right before the scope takes place. You should be given the opportunity to ask any questions about your sedation and discuss wether you will be out or just lightly aware. Granted I live in a fairly large metropolitan area and I have had these procedures done in hospitals in those areas, but this is the procedure followed as part of standard medical practice.
The fact that you were awake and they knew you were in pain is a total disgrace. They should have put something in your iv immediately to control your pain and knock you out! It is very important that prior to these procedures that it is clear that you will be able to be pain free during the entire time and that you be permitted to be put to sleep if that is your preference.
It is not too late to let the doctor know about the problem with the last time. He needs to be told. It is often hard to be your own advocate, but unfortunately the state of medical care in this country is such, that you cannot be just a patient any more you have to also serve as your own health care advocate and must speak up for yourself when problems occur. Good luck. I wish you success and strength.
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#11 razz

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Posted 15 July 2008 - 02:43 PM

Annkd,

I've had at least 3 endoscopies, 2 in Seattle and 1 here in Chicago. I always let the doctor, performing the procedure, and the anesthesist know I do not want to wake up in the middle of the procedure nor do I want to feel anything. Maybe I was just plain lucky, but I didn't have any problems with neither of them. As far as a colonoscopy, I haven't had one even though my last rheumatologist. recommended one. Hopefully, when I do have one it will be pain free.

I hope you've fully recovered (mentally and physically) from your experience! :blink:


Warm hugs,
Razz
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#12 annkd

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Posted 16 July 2008 - 06:06 AM

Hi Razz - I have spent the past two weeks recovering. My stomach felt bruised and I felt totally zoned out from the drugs. I'm also experiencing a pain in my right rib area (don't know if it was from straining and/or moving on the table). I went to see my primary care doctor and told him everything. He printed out copies of everything. He was very concerned (even x-rayed my ribs/lungs). He was going to have a chat with the doctor who performed the colonoscopy. I see that doctor next week. He promised that this will never happen again. He will consult on each and every procedure that requires general or any other type of sedation. I love my PCD. Anyway, it's another day. Take care - Ann

#13 Snowbird

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Posted 16 July 2008 - 01:34 PM

Annkd....thank goodness you have a great PCD!! Keep that one in your pocket!! Good luck with next week...let us know how it goes. Glad to hear that you are recovering!
Sending good wishes your way!