Posted 07 July 2008 - 08:29 AM
The symptoms can be best described related to temporomandibular joint syndrome,but don't know if they associated with systemic sclerosis.However,other symptoms related to the jaw such as bilateral mandibular resoption and small mouth are common in systemic sclerosis.
When I awaken in the morning its very difficult to fully open my mouth.I can open my mouth,but not to the full extent.The best example I can give is if you go to the dentist and he asks to open widely.When I try to open it completely I can feel pain on both sides of the mandible near the temporamandibular joint and ringing in the ears.
Now it feels like it takes alot more effort to even talk and have a decent conversation.As soon as I begin to talk my lower jaw starts to hurt on both sides.Occasionally,I have to take a break in the middle of a conversation because of all the jaw pain and exhaustion from using it.It seems like its very difficult to even finish a sentence.I constantly mispronounce a few words and sometimes have difficulty saying them.Sometimes my throat will start hurting at the same time while talking.
Occasionally,I can feel alot of numbness and pain in the area simply at rest.When I try to open my mouth after its well rested I can feel alot of restriction and stiffness in the beginning.The best example I can give is as soon I wake up in the morning and open my mouth to brush my teeth.At the same time when I look in the mirror I can see that my mouth is small when I try to fully open it.It should open higher.It feels like the joints that allow my mouth to open (temporomandibular joints) are not working properly and are restricting the mouth from opening higher.
So basically I looking here to see if anyone has similar issues.I'm assuming that my jaw symptoms are the just the beginning of the stiffening process.I imagine soon I won't be able to open my mouth at all.
Posted 07 July 2008 - 04:26 PM
I suppose one could use one of these wedges for brushing as well. Not much help for talking, I guess it is a good thing that we can all type.
Posted 07 July 2008 - 06:09 PM
I have recently started having a lot of problems with jaw pain. It hurts to open my mouth in the am. It hurts to yawn. It seems to come and go in intensity and symptoms. Sometimes the pain is horrible. I am not sure what is causing this.
Posted 07 July 2008 - 10:02 PM
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 07 July 2008 - 10:32 PM
I too have jaw pain, stiffness and fatigue. Can't chew gum anymore and yes, hard to open in the mornings too. I dread the dentist! ACK!
I do gentle stretching exercises in the shower while the warm water flows through and over my mouth. It feels good and does help to loosen things up.
Gentle mouth stretching exercises, a couple times a day is also helpful.
Jefa gave a great link to info.
Posted 08 July 2008 - 06:03 AM
Posted 08 July 2008 - 07:07 AM
I hope you get to feeling better. I see the dentist tomorrow & am NOT looking forward to it. I don't know if my mouth is smaller on the inside, or if that is possible, but when I brush my teeth, I am constantly crashing the end of the toothbrush into the back/sides of my mouth... that didn't used to be a problem & I don't have a bigger toothbrush before.
Oh & YES on the migraines with the jaw, I ALWAYS get a migraine after the dentist.