Posted 08 July 2008 - 08:15 AM
Anyway, first thing the Radiologist says when he walks in the room is, "Scleroderma huh?" I'm like, "What?" He repeats as he looks down at my chart, "You have Scleroderma?" I told him I don't know, I have symptoms of, but a negative ANA. He said that happens & that Scleroderma is often hard to diagnose.
Anyways, Thankfully the test looked pretty good while he was doing it, I don't know if he looks at it more later or not. He said just a little bit of something going on, I don't remember what word but I'm guessing it was something along the lines of reflux.
My confusion is that I asked him then if he had any suggestions as to what could be causing stuff to go up my nose, that I can't swallow down, while I'm laying down... He says, "Well usually when a patient compains of that symptom we see it right away but I just didn't see it."
So NOW what?? It just made me want to cry... I mean, it isn't that horrible of a symptom because it isn't every single night I have to deal with it.... but it's the stinkin' story of my life the 2 years... how can it not show up?!?!? Maybe it is coming from my sinuses? Argh.
Posted 08 July 2008 - 10:46 AM
I was experiencing the same symptom as you, two years ago when I first got SD. I also had the barium swallow and had the same results a little something at the top but nothing more. I learned to control it by taking previcad prescribed by my rheumatologist, limiting the amount of water/fluids I drink (this was more important than what I ate), watching what I eat - no greasy foods and eat very small portions and not eating after 7 at night. All the combined items have worked for me - it is not easy to stick to but I do because I fear the worst at night. I tried all of the above without the daily (take it around 10 am) Previcad but it did not work as well.
Hope this helps.
First Sympton Nov/05
Posted 09 July 2008 - 03:57 AM
Read up on reflux. There's a ton of advice there (on this site) for dealing with this symptom. Often it's one of the first scleroderma symptoms to show its head. Over the counter you can get zantac in 150 mg. Take it before bed with a tiny amount of water. Avoid food and drink for three hours before bed and sleep with two pillows. That should help. If not, I'd ask the doctor for a prescription. There are several and you may need to try a few before you get relief. This is a scary and yuckky symptom, I hope you get some help.
Posted 09 July 2008 - 05:48 AM
For the reflux another thing you can try is to raise the "head" of the bed several inches. My doctor originally said something like 8 inches, but we found ourselves sliding off the bed at night! So we reduced it until we weren't sliding and that made a big difference for me. The pillows are good except for me I don't stay up on them ... must be that sliding thing going on! Anyway, that was one of the minor adjustments that helped me!
Posted 09 July 2008 - 06:05 AM
Posted 10 July 2008 - 04:33 AM
THEN, I went to the Dentist (HOORAY FOR GOOD DR.s) & I smashed one of my spazzy toes on a curb & pulled the nail back... I went to sleep last night with it still spasming & throbbing.
MOST EXCITEMENT ALL WEEK...LOL
BUT the good news is that when the dentist got done working on my teeth, he asked his assistant for a ruler, I was practically crossing my fingers hoping he could see what I felt when he worked on me. He did, & said he was putting it in my chart so that when I come back in 6 months he can compare. I was hoping that he could see what I was feeling when he cleaned my teeth; Last time I was at the dentist, pulling on my lower lip didn't pull my nose down, practically closing one side off...lol.
I am taking protonix, after trying prilosec. I will get another pillow for sure & not eating in the evening is something I need to stop doing anyways so this just gives me an extra reason. THANK YOU!!!!