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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 luvbnmom3

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Posted 10 July 2008 - 06:04 AM

My primary care physician nurse just called & said that the Radiologist's report (from Tuesday's barium swallow) said esophageal motility dysfunction & CREST & referall back to rheumatologist.

I wondered if he studies those further than watching the test because immediately after he said he didn't see much. Anyways, what a relief... bittersweet one, but I have known long enough now that it isn't news to me anymore, just a relief that maybe some will stop with the "you look fine" & "you're always going to the dr." stuff.

Of course, with the way this stuff goes, I'll go to the rheumatologist & he'll say something completely different...lol.

#2 Piper

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Posted 10 July 2008 - 08:20 AM

Hi love, I'm happy that you are finally getting some answers. I didn't know that they could say it was Crest just from the barium swallow. My Dr. told me I have the esophagus of someone with sclero but I've never gotten a diagnosis yet. It's so frustrating. I hope that the rheumatologist can give you some answers, and some relief.
Take care,
Hugs, Piper

#3 luvbnmom3

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Posted 10 July 2008 - 09:11 AM

I don't know that they make a CREST diagnosis from just a b.swallow, but he asked me if I had Raynaud's & stuff & we talked a minute about my symptoms after he performed the test, so I think that is how he came to that.

#4 Sweet

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Posted 10 July 2008 - 01:00 PM

Hi Luvmom -



Isn't it funny what a relief it can be to be able to put a name to something? Even though it's not something you want to have, it gives you a bit of peace of mind that you weren't going crazy!



I'll look forward to seeing what your rheumatologist says.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 LisaBulman

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Posted 10 July 2008 - 01:00 PM

You are so right, bittersweet! At least you know it is not in your head and you now have a diagnosis you can work with!

Hugs,
Lisa
Lisa Bulman
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International Scleroderma Network (ISN)

#6 Snowbird

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Posted 10 July 2008 - 01:53 PM

Hi

Yes, we certainly never know what the doctors will say...it will be interesting to see what your rheumatologist says. Will you be going to a new rheumatologist or one that you have seen before? You'll have to hone in on the barium swallow question for us...I didn't know that could show anything either, interesting?
Sending good wishes your way!