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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 LoriNC

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Posted 14 December 2006 - 04:47 PM

Hi All,

There is usually a lot of questioms regarding disability approval so I wanted to share that I applied in september and was approved ttoday!!!!!!!!!!! What a relief.


Now I can begin the maze of medicare and prescription drug coverage.

Wishing all who try for disability the swift process that I experienced!

Loi

#2 Sweet

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Posted 14 December 2006 - 05:52 PM

Oh Lori, how fantastic!!!! I'm so happy for you!!

Congrats!
Warm and gentle hugs,

Pamela
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#3 memeto2

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Posted 15 December 2006 - 01:25 AM

hi,i was wondering ,if you have limited sclero.do they automatically turn you down for it??i was going to apply thats when my local dr. told me I had diffuse,now im told by dr. wigley I have limited,dont get me wrong im very happy to have limited but I still feel terrible at times.congrats on getting it !!!!!!memeto2

#4 LisaBulman

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Posted 15 December 2006 - 02:43 AM

Hi Lori,
CONGRATS!!!

That's great news and probably a huge weight lifted off of your shoulders.

Hugs,
Lisa
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#5 Sam

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Posted 15 December 2006 - 03:20 AM

That is so great, it has taken me three years to get an hearing and it was yesterday. I am so happy for you. Take care Sam
Sam

#6 Patty

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Posted 15 December 2006 - 03:36 AM

Whoooo Hoooooo Lori that is wonderful news! I am sure that its the best season gift one could ask for. I applied for it and was told I won't know anytihng untill March. I was wondering a couple things. How long have you been sick? How long have you been out of work? What is yoir diagnosis? I have limited and dermatomyositis. I honestly think that IF I get it, its going to be ther dermatomyositis that gets it for me.

Hugs to you,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#7 nan

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Posted 15 December 2006 - 03:50 AM

Still try to get disability even if it is limited. When I got it I didn't even know that I might have scleroderma. I had Fibromyalgia, Raynaud's, watermelon stomach, Sjogren's and my right hand had shrunk because of hand surgery. If your primary care physician does strong enough wording you should have no trouble. Go for it!!!!!!!!!!!!!!!
Nan

#8 nan

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Posted 15 December 2006 - 03:51 AM

That's great! I know when my disability came through it was such a relief!
Nan

#9 janey

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Posted 15 December 2006 - 03:57 AM

Loi,
Congratulations! That's fantastic that you have been approved and SO QUICKLY! I'm sure others would want to know your trick.

Big Hugs,
Janey Willis
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#10 Guest_Jennifer_*

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Posted 15 December 2006 - 03:59 AM

I wonder why I did not have to have a hearing for disability with social security. Is this normal for everyone?
Congrats Lori!
Jen

#11 Heidi

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Posted 15 December 2006 - 04:18 AM

Hi Lori,

Congratulations! That is great news. It is always so nice when we have positive news like yours to share here! I am sure this news is a great gift to you!!

Warm wishes,
Heidi

#12 nan

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Posted 15 December 2006 - 06:10 AM

Jen,
I didn't have to have a hearing for disability either. I applied and was denied the first time. I appealed it and was examined by one of their doctors and got it the second try. I feel very fortunate!
Nan

#13 Lori-Scleroderma Spouse

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Posted 15 December 2006 - 05:49 PM

I am glad to hear of your good news. My hubby applied in August and we have not heard anything. I saw an old post where you had to go to a dr. chosen by SS. All they have done so far is request medical records and send us forms to fill out. I have filled out similar forms twice. I am beginning to think that they are trying to get us to say something different.

Congrats!!

Lori
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#14 LoriNC

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Posted 15 December 2006 - 06:02 PM

Thanks, yes it is ahuge relief and the best present my family will receive this year!

Patty and memeto2,

I have digital contractures with skin involvement up to my shoulders, feet, thighs and calves. Along with mild lung involvement.

I have been sick since April 05 - I quit work March 06. What a sad time that was!

I have to believe, My doctors support in her records and recommendation were key to my approval, as well as my detailed answers on the form itself. I had my husband type in excrutiating detail how difficult evryday tasks are.

For example, I included the exact way I have to manipulate my world to get the toothpaste on my toothbrush. I included details about how every meal is fixed for me and that when I have to be alone for the day my food is left out on trays and I am limited to food choices that can remain at room temperature.


Lori

#15 whirlway

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Posted 17 December 2006 - 03:34 AM

Lori, so glad to hear about your good news. It is such a relief for you and your family. For those of you who are still thinking about applying or in the middle of the flood of paperwork, don't give up! As I told Sweet, documentation is the best thing you can do for yourself. Actually, I applied the first time in '85 and was denied and too stupid and too sick to appeal. I started the whole thing over in 2001, and after two appeals, seeing their dr and finally getting a hearing, I was awarded disability on the spot, after three years of denials and tons of paperwork. I can't stress the importantance of documentation. I contacted an att. after my first denial, he encouraged me through the second round of paperwork, and then after that denial, he went to work for me. If you get a good att. most of them work on a contingency basis. If you win, he gets paid, if you lose, no money for him either.

I really believe that SS is just waiting for people to give up or die, that is why so many denials. My att. agreed withme on that point.

Congrats, Lori, and good luck to those of you working on getting disability.

~whirlway