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Biomarker for Diffuse Scleroderma skin has been discovered!


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Thyroid Problems


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#1 parris68

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Posted 13 July 2008 - 09:10 AM

Does anyone have any thyroid problems. I had a goiter and hashimotto's disease. I believe that has something to sclerderma? What do you think?

#2 truman

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Posted 13 July 2008 - 12:14 PM

I've had slow thyroid problems for about 10 years; believe it's connected to CREST syndrome.
Tru

It is what it is...........

#3 Karenlee

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Posted 13 July 2008 - 12:30 PM

Hi parris,

Yes, I've had hashimotos since I was in my late teens. I do beleive that has a connection with the autoimmune issues that I'm dealing with now. Apparently I developed it at an earlier age than normal and it took a long time until I was finally diagnosed. Up until then I was just labeled as "fat and lazy" as I put on a lot of weight and was tired all the time, and at a young age it was unusual for me to be that fatigued. Also lost a lot of hair.

Have you been recently diagnosed or is this something that you had for a while? From what I understand, it is common for autoimmune conditions, but I can't say for sure.

Karen

#4 nan

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Posted 13 July 2008 - 01:24 PM

Yes, I have underactive thyroid. I have had it since I was a teenager. I think that there is a connection.
Take care,
Nan

#5 parris68

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Posted 13 July 2008 - 01:44 PM

Hi Karen

I was diagnosed in August 2004, I had my thryoid removed totally Jan 2005. I take synthroid 100 mg per day. I do not know. But I thought I was losing my mind.

Regards
Danette

#6 Peggy

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Posted 13 July 2008 - 02:15 PM

I have also had thyroid disease since I was 16 which is 33 years ago! I have hypothyroid / Hoshimotos and have had to take thyroid replacement. I have had hard time keeping it under control as my T3, T4, and TSH numbers would be off the charts and up and down and they didn't know what was going on. This is another autoimmune disease and when I count the number of overlap autoimmune diseases I have it's staggering: 1) hypothyroid; 2) endimetriosis (just found out this is autoimmune); 3) Systemic Scleroderma; 4) Sjogren's; 5) Raynaud's; 6) Polymyositis; and 7) mixed connective tissue disease. Isn't that unreal?!?

Warm hugs,

Peggy

#7 jefa

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Posted 13 July 2008 - 08:50 PM

This from our page on Autoimmune Diseases: Thyroid Disease:

It is common for people to develop thyroid diseases, such as hyperthyroidism (hyper means "too much") and hypothyroidism (hypo means "too little.) The two main types of autoimmune thyroid disease fall into hyperthyroidism (Grave's disease), and hypothyroidism (Hashimoto's thyroiditis). Often thyroid disease occurs by itself. Occasionally it is also associated with other autoimmune diseases, such as type 1 diabetes, systemic scleroderma, and vitiligo, just to name a few.

The page has many articles and patient stories - very informative.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
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International Scleroderma Network (ISN)

#8 smac0719

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Posted 14 July 2008 - 06:32 AM

I have a goiter and have been on synthroid for 3 years. When the jury was still out on what my illness was, I was referred to a rheumatologist specialist at Shand's Hopsital. He told me that I did not have an autoimmune disorder of any kind, but based on my tests, notes, blood work I did have authoimmune thyroid disease. :blink:

I had a car accident that reinjured my neck and back. The MRI I had to detect to what level showed the goiter. In looking back I did have chronic hoarness and a little extra hair on my body, but I could not tell I had a thyroid problem.

I also suffered from Endometriosis (didn't know it was autoimmune related either) and was told I was diabetic about the same time they found the goiter.
I may have Scleroderma, but Scleroderma doesn't have me!

#9 Sweet

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Posted 14 July 2008 - 08:07 AM

Yes, I was diagnosed with an under active thyroid problem 3 years ago. Not sure if it is related to Sclero or not.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#10 HouckRN78

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Posted 14 July 2008 - 05:08 PM

Hello to All!

I was diagnosed with hypothyroidism at 20 and my doctor said at that time that an early manifestation of hypothyroidism puts a person at higher risk of other disorders, often autoimmune in nature. He sent me to a rheumatologist for chronic joint and muscle pains who told me to take ibuprofen and basically quit whining! Almost ten years later I learn I have a positive ANA and high Scl-70. No skin symptoms yet so I am still waiting for the definite diagnosis. Anyway, my answer would be a definite yes! Thyroid disorders, from what I have been told, have a relationship with autoimmune disorders. It's often hard to distinguish thyroid related fatigue/symptoms from sclero symptoms so just keep a close eye on your TSH. Even when stable I would recommed having it tested every 6 mo. at least. Oh, and be sure to take your meds consistantly or you will feel so much worse!

Best Wishes! Heather

#11 jefa

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Posted 14 July 2008 - 09:03 PM

Hi, Heather. Just a quick note to say welcome to the ISN Sclero Forums. I saw your first post the other day but it got away from me before I had a chance to say hello. I look forward to getting to know you better.
Warm wishes,
Jefa

Carrie Maddoux
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International Scleroderma Network (ISN)

#12 Vee

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Posted 15 July 2008 - 08:52 AM

Hi Parris,

I started having thyroid troubles after the birth of my first daughter in '85. I was diagnosed with sclero in '98. Whether or not it is related, I don't know, but it seems an aweful lot of us Sclerodians have thyroid disease!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee