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Biomarker for Diffuse Scleroderma skin has been discovered!


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Time to celebrate


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#1 razz

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Posted 15 July 2008 - 03:00 PM

I wanted to share with everyone, finally got the proof of my book back from the printer and it looks better than I imagined. Some days it felt like I'd never finish the book and my draft would collect dust for months at a time. The front and back covers are pictures taken in California 28 years. ago. I kept scanning the pictures over to get the right pixels. Then I ended up digging through boxes to find the negatives because one of the pictures had scratches. Yes, I saved all my negatives from when I started photographing.

After 12 revisions, I can honestly say I'm proud of my accomplishment. Now I know why publishers and editors charge so much. I didn't use either, I self published and self edited. In a few months, it will get picked up by Amazon and other online bookstores. I don't know why it takes that long but I'm still learning. This is all so new.

I'm going to celebrate with my daughters and family next week when everyone's back in town!

Yippee!

Razz
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#2 janey

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Posted 15 July 2008 - 04:19 PM

Razz,
CONGRATULATIONS!!!!! What a great accomplishment! Forgive me for not remembering what your book was about. Please let me know. That is so cool!

A friend of mine has a book coming out in the fall, so I now how long it takes and what a tedious process. I've been hearing about it for years now.

Koodoos to you for sticking with it.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)

#3 razz

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Posted 15 July 2008 - 05:18 PM

Thanks Janey,

You're right it is a long and tedious process. I also had to finish it because I'm sure people (my family and friends) were thinking I was just talking and not serious about it. Basically, the book is autobiographical, detailing my life from my early 30's, several career changes, my SD diagnosis, my trial and error with treatments, the stem cell transplant and ending with my present day outlook.

I forgot to mention the name of the book, it's called Chasing the Cure.


Thanks for your encouragement!!! I can finally focus on other things!


Razz
:D
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#4 smurfette

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Posted 15 July 2008 - 07:50 PM

Razz,
Congratulations on completing your project! You must be so delighted! It is wonderful news and I look forward to hearing when it is published so I an get a copy. There is something so satisfying about finishing a project that you have worked on for a long time. Celebrate and savor the joy!
Smurfette

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#5 jefa

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Posted 14 August 2008 - 10:50 PM

Congratulations, Razz!


Warm wishes,
Jefa

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#6 relicmom1

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Posted 15 August 2008 - 03:38 AM

CONGRATULATIONS! ! ! You must be sooooo proud. I know with what we struggle with in our sclero that this was no easy task for you. Again, KUDOS!!!!!!!!!!!!!!!!!!!!
Peace :)
Barbara aka relicmom1

#7 epasen

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Posted 15 August 2008 - 06:00 AM

Congratulations Razz, I feel so happy for you! :)
Emmi

#8 Purr

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Posted 15 August 2008 - 06:28 AM

Congratulations Razz!! I'm looking forward to reading your book. Just might have to come for a visit (or just mail the it to you ;) ) so you can sign it for me. That is sooo exciting.

Christy
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#9 razz

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Posted 15 August 2008 - 10:00 AM

Jefa, epasen, relicmom1 and Purr,

Thank you! I just got back from a celebratory lunch with my retired rheumatologist. He had a huge impact on encouraging me to complete my story. At times, I had second thoughts about writing my experience but I'm glad it's completed and I can give credit to so many people who deserve recognition.

I have concluded there is one good thing about having scleroderma. That is having met ALL of YOU and the DOCTORS who truly contribute to easing our discomfort.

I believe the cure is out there!


Hugs,
Razz

:)
Live well, Laugh often, Love much

#10 JJ-Knitter

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Posted 15 August 2008 - 10:13 AM

Hey Razz!

Congratulations and many thanks for writing the book! Not only are you a great example to all of us, the book will be a valuable asset: inspiration, explanation, all sorts of things.

Way to go!! When can we look forward to the sequel??

JJ

#11 razz

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Posted 15 August 2008 - 10:49 AM

JJ,

Thanks JJ for your kind words. Good question. I haven't thought of a sequel. Hmmm. Now that I've been bitten by the writing bug, who knows?

Hugs,
Razz
Live well, Laugh often, Love much

#12 Margaret

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Posted 15 August 2008 - 11:35 AM

Hi Razz ,

I want to congratulate you, also, and look forward to reading about your life with Sclero. I would find it very difficult to write about my own life if I were walking in your shoes.......it's a very brave step to take.

Take care, Everyone.
Margaret

#13 Snowbird

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Posted 15 August 2008 - 11:46 AM

Congratulations Razz....I love the title too!!
Sending good wishes your way!

#14 Nina

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Posted 15 August 2008 - 12:49 PM

Oh Razz ~ you must be so proud!!! Congratulations, what a wonderful accomplishment.

The title is great and I'm sure will get attention.

Much love,
Nina

#15 YFChoice

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Posted 15 August 2008 - 02:10 PM

Congrats Razz.........Now I have a big question. When I buy my copy (and I will) can I send it to you and have you autograph it so that, years later, when you become another James Patterson, I can say to my friends, "Ah, I knew her when she was just one of us."? Seriously, you deserve all of the platitudes for a job well done.
~ You have to think anyway.....you might as well think big

#16 Helen

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Posted 15 August 2008 - 03:16 PM

Congratulations Razz

What a great accomplishment for someone struggling with this disease. I can't imagine how you did it...can't wait to read it.

Best Wishes

Helen

#17 razz

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Posted 15 August 2008 - 07:37 PM

Margaret,

There were so many reasons I pushed myself to write this story. It's about having strength, determination, perseverance, hope and love for my young daughters that kept me hanging in there. I wanted to share that experience with others and I always did like a challenge. Thank you for the support!

Snowbird,

I came up with so many titles. I settled on this one because it was different. Thanks.

Nina,

My nieces are older, in their late 20's and they read it not realizing what I went through emotionally. It really opened their eyes to a side of me they would not have known. (I've always had a close relationship with my nieces and nephews.) If we can share our knowledge and experience with those around us, especially the younger generation, it can give them a different perspective on life.

Yfchoice,

You can absolutely send it to me and I will autograph it for you. James Patterson, hmmmm, I like the sound of that! I'll always be one of you. I can't wait for you to read it and give me your opinion! :unsure:

Helen,

I hand wrote it in a red, old, 1997 outdated calendar book which I brought with me everywhere I went. When it came time to input the story into my computer, I tapped away at the keyboard with my two thumbs as fast as I could go. I learned the fastest two-thumb typist in the midwest! I wasn't too demanding on myself and reminded myself to take breaks.


Thanks everyone for your kind words of support!!

Hugs,
Razz
:)
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#18 CFMBabs

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Posted 15 August 2008 - 11:47 PM

Speechless! My friend -- Well Done! And there's me pondering about writing a book and look what you've done -- amazing!
I hope you become an established author, even just one book can become famous Y'know!
I wish you ooodles of luck.

Best wishes go to you.

Love Barbara xxx

#19 razz

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Posted 16 August 2008 - 02:20 AM

Barbara,

I read where you mention about you writing a book and I thought "Absolutely, hands down". Your work reminds me of Erma Bombeck. Thank you for the best wishes! Thank you for letting us see the humor in our daily lives.

I have a couple of ideas up my sleeve.

Keep your stories coming!


Bunches of hugs,
Doris
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#20 Cheryle

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Posted 16 August 2008 - 04:40 AM

BRAVO!
I look forward to reading it!!
Cheryle