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Biomarker for Diffuse Scleroderma skin has been discovered!


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Time to celebrate


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#21 bowbec

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Posted 16 August 2008 - 05:57 AM

Doris,
Congratulations to you!
I just ordered your book and can't wait to read it.
Becky
Diagnosed with Diffuse Systemic Scleroderma May 2005
Raynaud's, GI, esophagus, skin and lung involvement.

#22 danelledawn

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Posted 16 August 2008 - 05:57 AM

Congrats Razz,

I am so happy for you and it's wonderful that you were able to write a great book and get it out there.

I finished reading your book last night and you really are an insperation to all us. You are amazing for being able to put what you went through into a book, that will give insight to this disease to so many people.

Great job
So proud of my hubby and boys
Danny

#23 razz

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Posted 16 August 2008 - 07:58 AM

Cheryle and Becky,

Thank you for your wonderful support and well wishes!

Danelle,

Thank you for your comments on my book! I am hoping doctors will read it and gain some insight into this disease and what we go through. Hopefully, this book will encourage them to explore other possible treatments or give them a better understanding of this misunderstood disease.

Christy,

I missed your comment about my signing the book. Sure come on over neighbor. Or, if you'd prefer, mail it to me.


Hugs,
Razz
Live well, Laugh often, Love much

#24 Sweet

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Posted 16 August 2008 - 01:44 PM

Good for you!!! Congrats!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#25 smurfette

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Posted 16 August 2008 - 08:01 PM

Razz,
Just bought your book and can't wait to read it. Congratulations! I am very proud to know an author of such an important book! You must be so proud to have completed this wonderful achievement. What an accomplishment!
Smurfette

Chocolate, It isn't just for breakfast anymore!

#26 razz

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Posted 17 August 2008 - 04:12 AM

Thanks Smurfette and Sweet! I have a bad habit of starting a project and not always finishing it. This is one project I'm glad I finished.


Razz

:)
Live well, Laugh often, Love much

#27 debonair susie

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Posted 17 August 2008 - 04:04 PM

I am SO PROUD of you, Razz...what a wonderful accomplishment!

Love, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#28 barefut

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Posted 17 August 2008 - 07:36 PM

Congrats Razz!!!

Can't wait to read it!

#29 razz

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Posted 18 August 2008 - 03:05 AM

debonair susie and barefut,

Thank you both. I can't believe sometimes that I did it. I don't know how writers who write on a regular basis do it.


Lots of Hugs,
Razz
Live well, Laugh often, Love much

#30 Peggy

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Posted 18 August 2008 - 11:03 AM

Congratulations! Wow! What an Accomplishment! I will add it to list and will be sure to read it. I love the title. I am in awe of you in that you were able to commit to such a huge undertaking. I really admire you and I'm hopeful that what you were able to put into words will indeed help all who treat this disease to have a bird's eye view of what we go through. Thank you from the bottom of my heart as I know it will in some benefit me so for you to do that for me I want to thank you!

Warm hugs,

Peggy

#31 razz

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Posted 18 August 2008 - 12:43 PM

You are so welcomed Peggy! Writing helps me sort my feelings and thoughts. I do hope this information will give doctors and researchers an inside perspective from a patient's point of view. If my experience could help just one person than I have accomplished something good in my lifetime!

Lots of hugs,
Razz
Live well, Laugh often, Love much

#32 luvbnmom3

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Posted 18 August 2008 - 01:28 PM

WOW! Congratulations...that is SUCH an accomplishment!!! I'm geeked for you, proud of you & I hardly know you!

Well, I JUST got to get on the computer, I haven't had a chance to come to this board in a while & now that I am on I have to go....kids are swarming around me wanting to do something....haha. I am looking forward to buying the book, I saw there are links to it, I just went & looked at it. WOW how exciting!!!!

#33 white gloves

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Posted 18 August 2008 - 06:15 PM

Wow, what an accomplishment -- Congrats!

Take good care, WG

#34 razz

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Posted 18 August 2008 - 08:00 PM

luvbnmom3,

Have fun with the kids!!! I like your picture. You look like a cool mom.


((Hugs))
Razz
Live well, Laugh often, Love much

#35 razz

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Posted 18 August 2008 - 08:02 PM

Thanks White Gloves! Your congrats are much appreciated!!


Hugs,
Razz

:)
Live well, Laugh often, Love much

#36 Clementine

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Posted 19 August 2008 - 01:51 AM

Razz,

I think what you did is amazing. Where can I get a copy?
Congratulations! Happy celebrating!
Clem

#37 Carol Lee

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Posted 19 August 2008 - 01:01 PM

Razz,

Congratulations on completing and publishing your book! I have ordered it and looking forward to reading it. It is so helpful to others to share what you have experienced. Thank you so much for sharing.
Carol lee

#38 smac0719

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Posted 19 August 2008 - 01:37 PM

Wow! I missed this back in July, but glad it resurfaced. Congratulations on your accomplishments! This is absolutely awesome that you were able to get your story on paper and in print. I will definitely purchase you book and encourage my book club to read it as well.
I may have Scleroderma, but Scleroderma doesn't have me!

#39 smurfette

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Posted 19 August 2008 - 02:44 PM

Razz,
Just got confirmation that your book was being shipped to me. Am looking forward to reading it as soon as I get it! Then I may just have to get your addy (privately of course) so you can autograph it for me so I can have a signed first edition.
Smurfette

Chocolate, It isn't just for breakfast anymore!

#40 razz

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Posted 20 August 2008 - 05:50 AM

Thank you! You all are so awesome!

I started out writing a journal with my own personal thoughts and feelings and wound up sharing my journey for all to read. I would absolutely sign your book Smurfette and look forward to your impression!

Smac0719, Carol Lee and Clementine, I so appreciate your interest and would also love to hear back with any of your thoughts. This experience is not so much about me as it is a reflection of what we have all felt or experienced at one time.

Shelley Ensz, I am so very honored to have my story mentioned here on a forum I consider a part of my family. I, and many others, seeking comfort and information, found it here in a safe haven where we fully understand what each of us are experiencing. I wish we could meet each other some day. It would be so neat to actually give a real hug to everyone here!!


Bunches of Hugs,
Razz

:)
Live well, Laugh often, Love much