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A little frightened


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9 replies to this topic

#1 ShawMJ

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Posted 17 July 2008 - 10:42 AM

Hi all got a call from hospital where I did chest x-rays not long ago. It showed a 'spot'on lungs that my dr.is concerned about and yesterday made appointment for cat scan to further test what this might be. I'm scared a bit but think it may be just something left over from the horrible larngnitis and cold I had just before seeing dr. So hoping all will be okay and I can continue as I am doing. Will let you know results when I have them the appointment is Aug.4th. also having pft and bone density again.

Hugs and best to all,Mary

#2 Shelley Ensz

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Posted 17 July 2008 - 12:55 PM

Hi Mary,

I'm sorry you have a spot on your x-rays and for the stress this causes until you get more tests and answers. Most of us seem to have a cute little knack for flunking chest x-rays. Perhaps you had a touch of pneumonia instead of a cold?

Unfortunately there's not much you can do while you wait, except perhaps comfort yourself with the idea that many lung spots just go away, others don't need any treatment (the damage is already done) and only a very, very few are actually big-time serious stuff. I'll be hoping it has all cleared up by your next round of testing and sending good wishes your way!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Peggy

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Posted 17 July 2008 - 12:59 PM

I'm sorry you have to wait so long before you can possibly be relieved that this is nothing. There is nothing worse than worrying about what it could be. I hope you are right that it's just from your cold. Please let us know what you find out and good luck.

Warm hugs,

Peggy

#4 smac0719

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Posted 17 July 2008 - 01:50 PM

Waiting for test results can be stressful in and of itself. I am sending wishes your way that the spot is a non or minor issue for you.
I may have Scleroderma, but Scleroderma doesn't have me!

#5 Karenlee

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Posted 17 July 2008 - 02:50 PM

Shaw,

I had a chest CT done, and got a call from my Rhumetolgoists receptionist telling me I had 2 3 mm nodules on my lungs and that I need to go see a pulmonologist. Needless to say I was out of my mind with worry only to find out that it was benign and could have been the result of a chest cold from years ago. I totally understand your concern, but just wait until you get the results before you pannick. 9 x's out of 10 it's really nothing. Try to stay calm (I know, way easier said than done).

Keep us posted and know that we are here for you.

Karen

#6 Snowbird

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Posted 17 July 2008 - 02:50 PM

Hi Mary

Sorry to hear about your tests...but I hope you don't fret too much...there's always time for that later. I agree and hopefully it is just one of those spots that do nothing and/or disappear altogether like the others suggested it might be. Keep us updated!
Sending good wishes your way!

#7 smurfette

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Posted 17 July 2008 - 06:45 PM

Mary,
I also had a "spot" show up on my lung after a bad cold and it has been watched for almost a year just as a precaution. Of course it scared the daylights out of me when it was first diagnosed, but it has not changed. When it was first discovered I really did not know if it had always been there or it was new and as a result of the cold and cough. It seems that these tests that we take find lots of little meaningless things that scare us, but are harmless. They do serve to wreak havoc on our nervous systems though and that is not good for us. Sometimes I think that the fewer tests that we take the better off we will be - but deep down I know that that is not the way to go either.
Based on my experience and the experiences of most of the people on the board who have written before me, it is very likely that all is well. Try to just relax and take one day at a time (easier said than done, I know -- my best medicine is chocolate!) and have confidence that often there are just artifacts on the films or that things that they find are just nothing medically significant.
Best of luck!
Smurfette

Chocolate, It isn't just for breakfast anymore!

#8 luvbnmom3

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Posted 18 July 2008 - 04:22 AM

Waiting is no fun I tell ya! Is your follow up appt. for the results on Aug. 4 or is that when the CT is scheduled for? I've never had anything like that, it sounds like you've goten lots of feedback from some here that have. Hang in there & keep us posted!

#9 Bird Lady

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Posted 18 July 2008 - 05:03 AM

A recent chest CT showed that I had two nodules on my left lung. My sclero doctor didn't seem too concerned about it and said we would do another CT in three months and they would probably be gone. Apparently this is a common occurence. Try not to worry. Good luck, Birdman
Hugs for All,

Julie (Bird Lady)

#10 Sweet

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Posted 22 July 2008 - 10:32 AM

I know what anxiety this can cause. My husband just had a routine exam, and he talked with the doctor today about the results from, EKG, chest xray and lab work. He was told he has a nodule on his lung, but it may be a "nipple spot" so he has to go back in, they will put a patch on his nipple and re take the film. In all of my 26 years of being a nurse, I've never heard of this. I'm stressing a little because he really hasn't been feeling well for a few months and so I MADE him to go the doctor...

I hope your spot turns out to be nothing!!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)