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Severe Dry Eyes


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#1 smac0719

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Posted 21 July 2008 - 04:58 PM

I have been suffering from severe dry eyes for the past couple of months. The dryness started about a year and a half ago. It wasn't as bad then. My opthalmologist put me on Restasis and it worked for a while with just one drop per eye daily. I am now at 2 drops per eye daily and I can't wait to get the next drop in because my eyes are so dry. I feel like there is something in them at all times.

Since it has worsened, I've been doing more reading up on Sjogren's and suspect that may be what's happening. I'm going to metion it to my rheumatologist when I follow-up this week for the muscle weakness and also schedule an appointment with my opthalmologist.

For those of you who suffer the same condition, what medications are you finding beneficial for your eyes?
I may have Scleroderma, but Scleroderma doesn't have me!

#2 Peggy

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Posted 22 July 2008 - 05:12 AM

I also have Sjogren's and because of the dry eyes I'm not able to wear my contacts anymore. I used to even sleep in them and now I can't even wear them during the day. If I do when I go and try to get them out it's like they are sucked on my eye and I have to basically "peel" it off. I just use over-the -counter eye drops to re-wet them. I am still able to make tears which I think is good. Because of the Sjogren's I have more problems with dry mouth so I chew gum alot to help keep the saliva moving. I also use a special mouthwash that was prescribed by my rheumatologist doctor and I take a medication for it also.

Warm hugs,

Peggy

#3 CraigR

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Posted 22 July 2008 - 05:14 AM

There are various OTC eye lubricating drops that do not contain serious medication, like restasis, so they can be used more often.

Many medications can make it worse - particularly those that tend to cause dry mouth.

Caffeine should be avoided, as it has a drying effect.

Craig

#4 debonair susie

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Posted 22 July 2008 - 05:19 AM

I have Sjogren's, but I also have a cataract. For me, I think it's the cataract that makes my eye feel as it does.

My rheumatologist asked me to see the eye dr, so that's how I found out, of course.

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Susie
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#5 nan

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Posted 22 July 2008 - 09:36 AM

Hi,
I have Sjogren's. I use Restasis, one drop in each eye in the am and one in each eye in the pm. Some days I use over the counter drops almost every hour in between. I also have plugs put in my eyes. I would ask your doctor about plugs. It's painless. Good luck!
Nan

#6 Sweet

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Posted 22 July 2008 - 10:04 AM

I have Sjogrens, but it's not bad enough to use Restasis I guess. I was given Systane drops and they do help a lot!
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#7 Ann R

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Posted 22 July 2008 - 12:04 PM

My opthamologist suggested 2400 mg of faxseed oil daily for dry eyes. It is helping my eyes as much as the Restasis did B).
Ann R

If you sweat the small stuff you have wet, soggy small stuff.

#8 JudithL

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Posted 22 July 2008 - 12:20 PM

I haven't officially been diagnosed with Sjogren's but my ophthalmologist confirmed that I do have dry eyes. She gave me a sample of Systane, which did help, and recommended I purchase any OTC product that (1) contains no preservatives and (2) does not claim to relieve redness. She also suggested I use a flax seed oil supplement. I waited for a sale on the flax seed oil and, once I started taking the capsules, to my surprise, they worked so well that I stopped using the OTC eye drops.

#9 smac0719

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Posted 22 July 2008 - 01:58 PM

Nan,
What are plugs?

I was so aggravated by my eyes today, I called my opthalmologist and was able to get an appointment for Monday morning.

Ann & Judith,
Thanks for the flax seed tip. I'll ask about that as well. I would rather use a vitamin supplement than having to take or use another medicine.

I never thought about supplementing with OTC drops in between the Restasis. I'm going to start that tonight!

Thanks all!
I may have Scleroderma, but Scleroderma doesn't have me!

#10 nan

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Posted 23 July 2008 - 08:35 AM

Punctual plugs are inserted in the eyelids. It doesn't hurt. The doctor puts numbing drops in first. They slow down or even stop the drainage of tears from the eye. Clear as mud??!!!
Take care,
Nan

#11 smac0719

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Posted 23 July 2008 - 10:34 AM

Thanks for the explaination. Not sure how I'd make it through that if I'm awake as it used to take 20 minutes to put the puff of air in my eye when I'd get my exams. I'm a chicken!
I may have Scleroderma, but Scleroderma doesn't have me!

#12 danelledawn

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Posted 23 July 2008 - 10:54 AM

I have shogren's also when we lived on the east coast I would use an thick gel that was sold over the counter when I would go to bed everynight and then use eye drops a few times a day.

Once we moved here to Wyoming I was in a brand new ball game with my eye's, they hurt so bad, constanly had red eye's from the dryness. He put the plugs in like Nan said she has, and it has been wonderful for me. The eye drops stay in my eye's and the ache that I had in my eye's is gone. If one should ever come out, I will be there getting it replaced as they are great. If they had not worked as well as they have for me he would have also added restatis.
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#13 Purr

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Posted 24 July 2008 - 09:32 AM

My eyes started bothering me (dry) about 3 or 4 weeks ago. I had my yearly eye exam Monday and was given Restasis, 1 drop in each eye in the morning and again at night. Since I started it on Tuesday morning, I have had a mild headache over my eyes and at the base of my skull. Has anyone else experienced this with restasis?

Thanks,
Christy
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#14 smac0719

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Posted 24 July 2008 - 01:41 PM

Purr,

I can't say that I have experienced the headaches from using Restasis.
I may have Scleroderma, but Scleroderma doesn't have me!