Posted 22 July 2008 - 12:48 PM
Chocolate, It isn't just for breakfast anymore!
Posted 22 July 2008 - 01:48 PM
I haven't had one in a while (i'm finding some wood to knock on) but the last time I had one Exedrin migraine worked for me. I get in a quiet place, put a cold compress over my eyes and put my head below body level (usually hanging off the side of the bed). I wouldn't wish a migraine on an enemy. I hope they get better for you.
Posted 22 July 2008 - 02:15 PM
This is not too good as nitric oxide helps keep your vessels dilated, something that is probably good for SSc.
Posted 22 July 2008 - 03:45 PM
I hope you find something to help yours.
Posted 23 July 2008 - 02:00 AM
Hope things improve for you soon- Migraine is truly disabling.
Posted 23 July 2008 - 05:11 AM
Your's sound like classical migraines - what with the the visual disturbance ("scintillating scotoma") and hair aching. The other common symptom I've heard of is need to be in the dark (photophobia). I point this out because I've heard people refer to any severe headache as a migraine, and that is mistaken.
My father had sclero (CREST) and had these headaches. He took a vasoconstricting drug called Caffergot, but that was decades ago so there's sure to be better stuff now. I can remember these well from my childhood, as I would come home from school and all the blinds would be drawn and my mother would whisper to go outside and play, as my father could not stand any sound.
My understanding is that these headaches occur following a vessel constriction to the head. The headache comes on when the constriction lets loose and the blood flows as it should (sort of strange). This would be why vasoconstricting medication would help (though be bad for Raynauds).
This would suggest that if you could prevent the constriction to begin with (perhaps with a vasodilator) the process might be stopped or reduced. But I'm not a doctor.
Since it is a vascular headache and sclero has other vascular symptoms (Raynauds, pulmonary hypertension, etc.), it certainly seems they could be related.
I also have sclero (CREST, actually CRST), and it accompanied with epilepsy! (very easily controlled). There is a very distinct aura. It is sort of a mixture of tunnel vision and a sense of doom. Though never diagnosed, I believe that my epilepsy is caused by the same vascular process (there are known cases of seizures caused vascularly). It makes perfect sense.
I read in a medical book ("The Etiology of Epilepsy") that there is a much higher rate of epilepsy among people with Raynauds, which points to a likely vascular cause. It's even more compelling with migraine.
More reasons why you have to be your own doctor at times. They usually aren't very imaginative if the issue isn't life threatening.