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Legs and Feet

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6 replies to this topic

#1 Purr


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Posted 23 July 2008 - 01:03 PM

Sometimes, when I sit for very long, my legs, below my knees, and feet burn/tingle (?). It will usually go away after awhile if I prop up my feet. This has been going on for quite a long time. My rheumatologist isn't sure what is causing it and increased my bp med incase it might be raynauds. It hasn't helped. Has anyone else experienced this problem? :huh:

Love makes the world go around!

#2 aniwallar


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Posted 23 July 2008 - 11:29 PM

Hi Christy:

I know exactly what you are talking about. I have the same thing. My knees burn a lot and If I am seating for a while, it doesn't have to be too long, my legs burn and tingle. My toes also turn a little purple. I have told the doctor about this and I haven't gotten any response.
Now, even if I am standing, I will have the tingling sensation on my legs and feet. I will ask my doctor again ans I will post whatever she answers.


#3 Sam


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Posted 24 July 2008 - 01:36 AM

My knees hurt when I am laying down and its usually by morning. Its like I need to get up and walk around to get it to quit. The burning feeling sounds like inflamtion. I dont have that. But I have had it in the past. Right now behind my knee is swolling that happens every so often.

I do get tingling feeling when I stand for too long. They never did find out what was causing it. So I just tolerate it like I do everyone thing else.

#4 Peggy


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Posted 24 July 2008 - 05:34 AM

This is how my sclero started. My feet and hands started to tingle and then it changed to numbness. I saw a neurologist who says I have peripheral neuropathy and he then had me see the rheumatologist doctor who diagnosed slcero. I just saw the neuro doctor at my last quarterly apt with my sclero doctor and he said that he thinks that my neuropathy is from the sclero and is not neuro related. This tingling and numbness has climbed up to my knees on my lets and it has done permanent damage. When they do the needle test I am not able to feel it all the way up to my knee. So from what I understand from my two doctors this is another part of the sclero. I also have terrible muscle pain in my legs and I'm not sure if that's from the sclero or from Polymyositis, which I also have.

Warm hugs,


#5 Sweet


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Posted 24 July 2008 - 09:04 AM


Pretty much a daily/nightly thing for me. Can't get any answers, response, or reaction from my doctors on it though. I get a "hmmmm I see" They need to FEEL IT.
Warm and gentle hugs,

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#6 Karenlee


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Posted 24 July 2008 - 09:36 AM


Sorry about your tingling and burning. If it were Raynauds, wouldnt you be experiencing color changes? Just throwing it out there. Hope you find out what it is soon.


#7 Nina


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Posted 24 July 2008 - 03:01 PM

Well, I too have neuropathy in both feet. The burning is there all the time, but at bed time it can be madening. My toes hurt so badly at times, I think I'll go crazy. I've had problems with my knees for many years not sure how that is related to the neuropathy or sclero. At this point, I'm not at all sure of how or if anything is connected. And to be honest, I'm not sure doctors know either.
I see my rehumatologist on the 31st of this month and I can't wait. I have a list of symptoms and problems and questions!~ She'll love me! I just want to get a diagnosis and learn as much as possible about what to expect and how to deal with some of these symptoms. I too HATE taking medicine.
Hang in there and keep posting ~
Much love,