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Foot & ankle edema & pain

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#1 lynne



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Posted 26 July 2008 - 04:30 PM

I have been living with CREST for more than 20 years. Like so many of you, I am a health care professional and have become a skilled advocate for management of my symptoms. I have been on a variety of combinations of meds through the years. New series of symptoms see to emerge every 5-6 years. Tight skin around my ankles & swollen painful feet have impaired my mobility this weekend. Does anyone have any suggestions?

#2 janey


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Posted 26 July 2008 - 05:42 PM

Welcome to the forums! It's interesting that you say that new symptoms emerge every 5 - 6 years. Monday is my five year anniversary (if I can called it that) of having been diagnosed with SSc. Most of my symptoms are in remission, except for one that seems to have returned (difficulty swallowing) in just the past couple of months. Sounds like we may expect things to come and go.

Have you had the tight skin and swollen, painful feet before? I don't know where you live, but could heat and humidity have anything to do with it? My ankles have been swollen for the past couple of weeks, but I've been walking in hot weather more than usual. My only suggestions would be to lay down with your feet raised higher than your head as much as you can and reduce your salt intake (things you probably already know). Those help with my swelling. Please bring this up to your doctor. Any new symptom like this should definitely be brought to your doctor's attention.

I'm sure others have experienced this and can help more. Please let us know if you find the cause of this and a solution.

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Janey Willis
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#3 susie54


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Posted 27 July 2008 - 02:38 AM

Hi Lynne,

Sorry about your ankles being swollen. If I am standing too much my feet get a little swollen. Also, if sometimes I will just get edema in them for awhile. Can't always know why but sometimes it has been when my lungs or heart is acting up. Try to keep your feet up and not eat alot of salt. Diuretic type foods help take off the fluid. If you are having breathing problems or not I would check it out if it continues more than a week. Hope you feel better. I hate that when it happens. Susie54

#4 razz


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Posted 27 July 2008 - 04:06 AM


Staying off your feet and reducing salt intake are fantastic ideas. Also, if the skin is feeling tight maybe massaging them with a good oily cream might be helpful. It might bring some relief.

Live well, Laugh often, Love much

#5 truman


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Posted 27 July 2008 - 06:09 AM

Hi Lynne:

My ankles and feet tend to really swell in warm weather or if standing on them too long. doctor says it's a combination of the warm weather and the Norvasc. I take Prednisone too, and he attributes some to that as well. He has me on a water pill twice a day which really does the trick.

It is what it is...........

#6 Sweet


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Posted 28 July 2008 - 10:46 AM

Hi Lynne,

I just wanted to welcome you to the Sclero Forums, really glad you've joined us.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)