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Telangiectesias


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#1 luvbnmom3

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Posted 27 July 2008 - 03:38 PM

Hello all! I have some on my toes, feet, & a couple on my hands & face, do these ever come & go or are they always permanent?

#2 relicmom1

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Posted 27 July 2008 - 05:09 PM

Mine have stayed and they must be having a great time and invited their friends cause I seem to be getting more and more everyday!!!!! :P
Peace :)
Barbara aka relicmom1

#3 truman

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Posted 27 July 2008 - 07:10 PM

Barbara:

Love your sense of humor :lol: . Mine have stayed too but as I believe Sheryl posted to me, they add character ;) .
Tru

It is what it is...........

#4 jefa

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Posted 27 July 2008 - 08:28 PM

Good question, luvbnmom3. I don't know the answer, but I hope that our page on Telangiectasia (Red Spots on Skin) will help you find the information you are looking for.
Warm wishes,
Jefa

Carrie Maddoux
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International Scleroderma Network (ISN)

#5 Karenlee

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Posted 28 July 2008 - 04:47 AM

I have a facefull and neckfull. And some on the top of my hands. Seems that when I am tired they are darker for some reason?
I have noticed, that since I've been on Plaquenil they are lightening up a bit, but still there. Don't know if they'll ever go away, but that's what makeup is for :D

#6 Snowbird

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Posted 28 July 2008 - 10:57 AM

My Rheumatologist said they stay (I always thought they came and went, and then eventually stayed...but I obviously was wrong).
Sending good wishes your way!

#7 smurfette

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Posted 28 July 2008 - 01:57 PM

I have some on my face and they have taken up permanent residence. My dermatologist. said that she could try to laser them away,but that she was pretty sure that they would only come back again. So it is make - up and colored moisturizer for me! It evens out the rest of my skin tone anyway and protects me from sun damage.
My biggest gripe about it is -- if I have to have to get the racing stripes it would have been nice to get them where very few people would see them and I would not have to worry about make-up and cover up!
This disease just does not have a sense of humor.
Smurfette

Chocolate, It isn't just for breakfast anymore!

#8 CraigR

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Posted 01 August 2008 - 06:36 AM

I get them on my face - and they are permanent. However, I've had some success with laser surgery to have them reduced. It doesn't seem to make them go away entirely, but they can be reduced so there isn't such a speckled look. Make-up isn't my style - maybe if I were a rock singer? a clown?

Craig

#9 annkd

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Posted 01 August 2008 - 09:00 AM

I have them all over the place. occasionally they bleed. I've been through a series of laser treatments for the ones that bleed. They, too, come back. Recently the ones on my finger tips have started bleeding. I have to bring that up with my rheumatologist on my next visit.

#10 luvbnmom3

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Posted 02 August 2008 - 03:09 AM

Hey Craig... newscasters... those guys are into makeup. So if you ever decide to on a career in broadcasting... you know?

Ann.... That is interesting about the bleeding ones, do they just bleed into the skin? For a long time I have had some bleeding into the skin on my toes, mostly big toes, then eventually I didn't see it anymore but there are telangiectasias in that same spot now. That blood, little pin stick dots, would eventually surface & go away (like a miniature scab just disappears).

Is that what yours do?

Snowbird, I wondered about coming & going in the same spot & then staying at some point too (like in the above with Ann) plus I have had some spots show up that look like Telangiegtasias but come & go in the same spot. However, the ones on my face, I've never seen them come & go, I'll look in the mirror & see another spot & it stays.

Thank you all for your replies, everyone here is SO helpful. This disease (or whatever is going on) makes me feel so alone sometimes. I can't talk to anyone about it, not even my husband because he's sick of the stuff with the doctors. He's even been through the same thing before (& eventually got a correct diagnosis) so you'd think he'd be more understanding! Especially since I dug in on the net to help get to the bottom of it & get him to the right doctor (ringworm for 7 years, a few different doctors, all calling it eczema which we KNEW it was not.)

#11 Nina

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Posted 02 August 2008 - 03:02 PM

I have "one" that has been on my face for years ~
And thanks so much for posting the link, I never even knew this had a name.
I LOVE this place, you guys are just WONDERFUL!!
Much love,
Nina (DE)

#12 annkd

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Posted 03 August 2008 - 05:34 AM

Hi love - The "T" on my lips and fingers will bleed like crazy. Those are the ones I have to get laser for. The ones on my lips are yucky because they bleed down my chin and into my mouth (sorry if I'm too descriptive). And, laser on the mouth hurts! The last treatment I had has lasted for 6 months...who hooo!.

#13 Karenlee

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Posted 04 August 2008 - 03:34 AM

I watched my sisters kids on Saturday so she and her hubby could go to a wedding. I was sitting on the stoop with my neice (she's 10) and she looked over at me and said "Aunt Ka, what are those red spots on your face?". I told her they were freckles and she giggled and said she has lots of freckles too.
It kinda freaked me out, since I always thought I covered them up well enough that no one could see them. I guess a full day of sitting with 3 kids 10 and under melted the makeup away :D