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mouth issues

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#1 Bird Lady

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Posted 01 August 2008 - 02:02 PM

Has anyone ever had problems with their mouth, Birdman has a little pain in his right molar area, also he is a terrible gagger. He always went to the dentist (before Sclero every 6 months) now he gags so bad just brushing his teeth, he hasn't been now in 3 years. I called his dentist and they are great, willing to work with him as best they can. Just wondering if anyone else has had jaw, tooth pain, tenderness in the gums? is this normal for Sclero ?
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Julie (Bird Lady)

#2 Sweet


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Posted 01 August 2008 - 02:36 PM


First of all it's even more important that he see a dentist now. If you get a good dentist, they know how to treat someone with this disease. I just went yesterday for a cleaning, from which I am still sore. But one of the main reasons I went is because I was having molar pain, upper and lower on the left side. They did x-rays, checked, prodded etc and found nothing. Told me to use Sensodyne toothpaste.

Not sure if this helped and frankly I don't even know if it's sclero related. I have Sjogrens too, so I go to the dentist every few months.
Warm and gentle hugs,

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International Scleroderma Network (ISN)

#3 smurfette


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Posted 01 August 2008 - 03:00 PM

Hi, so sorry to hear that going to the dentist has become an ordeal. Going there is enough of a issue under the best of conditions. It seems that the bravest of us hates to go, add to that a strong gag reflex and scler and it has to be even more difficult for you.

I go to the dentist every 3 or 4 months because the meds. I take for reflux makes my mouth especially dry. My teeth are also much more sensitive to cold. It is even more important to get a thorough cleaning and check for other issues than if I did not take Levsin or have scler. Also, there are concerns about people who are on meds for osteoporosis. So I need to be checked to ensure that my jaw is fine as well.

If you or your husband explain his situation to the dentist ahead of time there may be something that your husband can take to reduce his gag reflex or that will calm him so that his trip to the dentist can go more smoothly. There are many things that they do with patients who have issues because they just "freak out" in the dentist office that they must have some idea how to make the experience comfortable for your husband. It may just take more preparation ahead of time - in the form of meds ingested before at home or I the office. Of course you may have to make it a team effort with your rheumatologist or other treating doctor to make sure anything used does not conflict with meds he is already taking.

Good luck ad I wish you a painless visit to the dentist and that all goes well with his mouth!

Chocolate, It isn't just for breakfast anymore!

#4 truman


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Posted 01 August 2008 - 09:37 PM


I always went to the dentist every three months because of gum disease. Since the diagnosis and illnesses, it's been quite some time. I had to go about a month ago due to a cavity. Amazing, the minute Dr. Seu touched my arm, he said do you have Scleroderma? A dentist knowing, but the doctors don't. I explained I have CREST and he said now he understands all the dental and gum problems I was having throughout the years. Evidently, they are connected. Still can't get over how astute he was that day.

It is what it is...........

#5 mutsy67


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Posted 02 August 2008 - 04:30 AM

Yep have the same problem! I have noticed that since my thyroid is regulated I can brush without gagging (partial thyroid removal in December).

Dentist is still hard though. I went to my dentist first time in two years because I had broken a back molar. After they put the crown on I did x-rays and cleaning. The thing we noticed was that on the side that had novocaine (for the crown) I didn't gag at the x-rays or the cleaning - the other side, whole different story. My dentist suggested that next time I might want to try "laughing gas" to reduce the gag reflex.

Been using Sensodyne for years and can tell if I go even two days with a different toothpaste.

Shari (AKA Mutsy)

#6 Vee


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Posted 17 August 2008 - 12:53 PM

Me too,

I have gum tenderness on and off. But lately I've been having problems with my teeth. I've had 2 of them break while eating dinner. In the past year. I've always had very strong teeth. Is this because of the Prilosec everyday for almost 10 years? I hope this doesn't keep happening.
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#7 Debbie C

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Posted 18 August 2008 - 12:58 PM

I have issues with my teeth every time I have a flare up, whether from my lupus, fibromyalgia, etc. Every dentist I have ever gone to all act like it is in my head. I do not visit the dentist regularly for fear of needles, pain, etc. I usually go when I have an issue. My teeth are to the point that I want them all pulled and get dentures. I have had so many that they want to "save" that end up getting pulled that it seems like I am paying several times for work on the same teeth. I also use a sentive teeth toothpaste it seems to help.