Restless Leg Syndrome
Posted 02 August 2008 - 04:31 AM
Posted 02 August 2008 - 02:54 PM
Wish I could help you more. My RL has gotten better, although now I have neurapathy in feet and legs. Also have Raynauds and Crest Sclaro.
I'm just learning a lot about all of this and LOVE the idea of sharing with others. It's amazing how much you can learn.
Good luck with the RL ~ I know it's no fun.
Posted 03 August 2008 - 05:28 AM
I started with RLS in my teens and it has gotten progressively worse. It came to live with me permanently in my 30s (I am almost 48 now). Currently I take Requip but before that I took various l-doping agents (used in higher dosage for Parkinson's and seizures) - and one of them (Carbidopa) I have found reference to as being a CAUSE of SSc. But the references stated that it was causal when used with a particular diet supplement (can't remember the name now as I didn't take it). So was getting curious if Carbidopa alone or with other things could be implicated. Not that it matters where it came from - as someone else says "it is what it is" but being early in my diagnosis and search I am actually hoping that I "caught it" and it isn't genetic!
I'm glad your RLS is gone - as I hate it - it controls my life after 7pm - ugh!
Take good care,
Posted 03 August 2008 - 04:18 PM
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)
Posted 04 August 2008 - 04:30 AM
I have RLS and have for years and years. Never knew what it was called until I had my first sleep study and it was documented and diagnosed then. I take Requip 1mg 2 hours before bedtime. It has been a life-saver!! My pharmacist was surprised that it helps me, he seems to think it doesn't help with RLS, but it did wonders for me!
Barbara aka relicmom1