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Weird new symptom!

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4 replies to this topic

#1 lizzie


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Posted 05 August 2008 - 10:44 AM

Over the last few days have developed a new problem- I'm finding it hard to open my eyes when I wake up, and not because I'm too tired! I'm actually having to lift my eyelids with my finger to open them. Its not like when you have conjunctivitis and you eyelids are 'glued' down because of discharge, they ( and particularly my left eyelid) just seem to be lacking in power to open. Its really really weird. I'm assuming its another sclero related thing. has anyone else experienced this? I haven't spoken to the Dr about it yet (concerned he will think I'm being really neurotic!) but will raise it when see him in a couple of weeks. Has anyone experienced this?

#2 Sweet


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Posted 05 August 2008 - 12:23 PM

Hi Lizzie,

Sorry to hear about your new problems with your eyes. I have something similar happen, but it's because I have Sjogrens and my eyes are dry. Do you think that could be it? Check out the link I gave you.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 Piper


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Posted 05 August 2008 - 12:32 PM

Hi Lizzie, I've had a problem with my left eyelid for the last year so I know what your talking about. When I sneeze or cough it's slow to open and when I'm tired it's noticably lower than the other one. I mentioned it to my g.p who just ran some blood work and I have to go back next week so I'll let you know what he has to say about it then.
Take care,
Hugs, Piper

#4 Peggy


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Posted 06 August 2008 - 06:37 AM

I have never had this but this sounds like something that maybe you should give them a call and ask unless someone else chimes in and knows what it's all about. It could be something serious and nothing to mess around with. Sorry I'm of no help here and I'm sorry you are dealing with this as it must be scary. Let us know what you find out.

Warm hugs,


#5 lizzie


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Posted 06 August 2008 - 10:44 AM

Thanks for your responses. I think, as Sweet suggested that it is probably due to dry eyes at night- I have noticed that my mouth is also dryer than usual and am having to drink more during the night. I have previously been prescribed drops for dry eyes by my dr , but things seemd to improved so stopped using them several months ago. I'll ask about it when I'm in for treatment in a couple of weeks. As my vision is unaffected and as my eyelids function normally during the dayi'm not too concerned but think I probably do need to restart the eye drops. I,ll be interested to see what your Dr says about your eyelid problem Piper.