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Scleroderma and gallbladder


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#1 danelledawn

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Posted 11 August 2008 - 05:59 AM

I kust got back from my post-op vist with my surgeon. He took my gallbladder out a week ago today and it could not come soon enough. He told me that it's a good thing we did take it out from the pathology report. The report said that my gallbladder was chronic something, but in simple terms it was dying from the inside. Has anyone had anything like this since you were diganosed with scleroderma?

I started really having severe pains over a year ago, but I would see one Dr. and so on no one could pin point my pain. Went back finally to my family Dr. who ran an ultra sound on the gallbladder. The bile duct was alot bigger than it should be so I had ct scan, MRI and a Hydro scan that only showed that my gallbladder had enlarged to two times the normal size. During this time I also found out that I had a hugh deudenal ulcer, but it had to be healed before the gallbladder could come out.

My surgeon told me today he was very glad that I really pushed to get the gallbladder removed because it would have caused so much more problems and pain. The reason I pushed for it was due to the fact that the gallbladder was messing with everything else in my body.

Thanks for listening
Danny
So proud of my hubby and boys
Danny

#2 Peggy

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Posted 11 August 2008 - 06:33 AM

Kuddos to you for knowing your own body and making sure that you get done what you think needs to get done. It's hard sometimes to be able to talk to doctors and make them listen to what we are saying and actually be heard. I hope that the surgery will work for you. I had mine out many years ago and have had so much stomach problems. At the time and after years of suffering they then mis-diagnosed celiac disease. Sor for 6 or 7 years I thought I had celiac disease and constantly got chewed out for not adhering to the diet. Well the bread was like eating tree bark and I couldn't stand it. Then the hands and feet go numb and I go to the Mayo Clinic to the best celiac specialist in the United States and he tests me and tells me that I don't have celiac but I am glutten intolerant. It was 7 months later before I actually found out I had scleroderma and 6 other autoimmune diseases which explained what was going on this whole time. So like I said, we have to be our own fighters for our health and have to stay strong in our convictions and be heard. Good for you and I hope you get to feeling better.

Warm hugs,
Peggy

#3 danelledawn

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Posted 11 August 2008 - 07:54 AM

Peggy you are so right we do have to be are own fighters for sure because we know our body best and we really know when something is not right. When I was being sent to the different Dr's for consults of the mystery pain, there was an orthopedic tell me that the pain was fibromyaliiga. I knew for certain it was'nt that at all.When they sent me to the GI finally they found that I had the ulcer and he thought I had celiac also but the biospy came back good.When I read up on what it was I would have never been able to stick to the diet. But I also learned that my esphougas has started scarring now, so I am very glad that I stuck it out because now I don't have the stabbing pain in my side orr up my back. Thank you for the response
So proud of my hubby and boys
Danny

#4 ozzy69

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Posted 12 August 2008 - 03:29 AM

danelledawn,

Hi, I am glad you are feeling better and recovering. I have not been dxed with Sclero but I am seeing a rheumatologist for it. Two years ago I did have my gallbladder removed. The doctor first did a ct scan and said it was fine and I had no stones. I went back to him and he finally did a functioning test and it came back that is only working at 5%. Finally they decided to remove it. He said it was full of sludge. I did not have a speedy recovery. I had IBS problems for almost a year after. I still have them but they seem to be much better. I am glad you did not have that problem. I also have fibro and it seems a easy out for doctors to blame everything on the fibro. I know have a great rheumatologist whom is finally listening to me. Hopefully we will get to the bottom of everything soon.

Again, glad you are having a speedy recovery!
Nina Lynn

#5 razz

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Posted 12 August 2008 - 02:05 PM

Danny,

Your doctor did a thorough job by running more than one test where he found your gallbladder was twice the normal size. Thank goodness he didn't ignore it and write it off.

Please keep us posted on your recuperation. I hope you're feeling better soon!


Hugs,
Razz


I'm Still Standing...
Live well, Laugh often, Love much

#6 danelledawn

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Posted 13 August 2008 - 02:27 AM

Razz you are so right about him not writing it off

I am so happy to have it finally out it was really a hard year. When the Dr told me that mine had doubled in size but was still working from the tests view I knew it had to be something. So glad I did keep going to appts for the pain it was causing me, because if I did'nt I would still be in pain and it truly messed with my whole body so it would have kept getting worse.

Ozzy your right about firbo it is an easy out for Dr's sometimes. When I seen the ortho that day and he told me it was just fibro when I got in my car I just cried due to being in so much pain.

Thanks for all the well wishes, slowly I'm starting to getting better and finally can eat again.
So proud of my hubby and boys
Danny

#7 chloe

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Posted 13 August 2008 - 11:23 AM

I also had my gall bladder removed, it was right before I was diagnosed with Sclero. I was having terrible stomach problems but no gall stones. They did a test on my gall bladder and found it wasn't functioning right at all. When they took it out they found it was severly inflammed and later attributed to Sclero once they diagnosed Sclero.

Chloe

#8 Sam

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Posted 14 August 2008 - 02:08 AM

DD, I am glad that your doctor ran other test to find out what was going on. I am also happy to see that your doing good. My duaghter inlaw to be will be having her gallbladder out next week. I am going to take care of my grandbabies while she is in. Can you give me some ideas on what to do to help her out at home when she comes home. Are you able to come home right after the surgery?
Sam

#9 danelledawn

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Posted 14 August 2008 - 04:32 AM

Sam,

I was able to come home the same day as my sugery, I was very groogy for the rest of the evening so my hubby had to help me get back and forth from the restroom.

For me at home after it, we had crackers, broth, jello and pudding and sprite oh and sherbert.Make sure that she really keeps up her fluid intake that is so important. Then for me it was hard to find a postion to lay in, so I ended up on the couch at first but then realized my recliner was best for me with alot of pillows.

The one other thing that Jeff and boys made sure of was that the dogs did'nt jump up on me even my little one and when they would just jump up to the couch and not on me it hurt also.

Hope this helps and if you have more questions let know and if I know I'll try to help you out.
So proud of my hubby and boys
Danny