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Rheumatologist appointment today


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8 replies to this topic

#1 Sam

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Posted 14 August 2008 - 02:15 AM

Will be going over my echo and PFT and also letting him know that my joints hurt all over. My knees are killing me when I walk or lay down or bend them. That started back in Dec. 07 but I thought it was from the steriods then it went away and now its back and it hurt really bad at night. It wakes me up. Its hard to explain how they feel. Then there is my neck which I have OA and it just hurts when I bend it forward and backward. can't do that very well. Then there is my bowels giving me some problems. I pretty sure it is moving slowly and I am constipated too. I have more to tell but won't list all my aliments on here. Will update when I get back what he has to say about the echo and pft. Sam
Sam

#2 Peggy

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Posted 14 August 2008 - 06:16 AM

Good luck at your appointment and I hope you get all good news but also get some answers to the problems you are having. Please keep us posted on what you find out.

Warm hugs,

Peggy

#3 razz

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Posted 14 August 2008 - 06:31 AM

Sam,

Hope everything goes well with your appointment today! Maybe your doctor will come up with some suggestions to help you feel better.


Hugs,
Razz


:)
Live well, Laugh often, Love much

#4 Snowbird

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Posted 14 August 2008 - 10:23 AM

Good luck with your appointment Sam....and yes, let us know how it goes when you can. Take care.
Sending good wishes your way!

#5 Purr

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Posted 14 August 2008 - 12:33 PM

Sam,

Hope the rheumatologist had good things to say about your tests and can be helpful with all of the other aches and pains. Give us an update when you can.

Christy
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#6 RememberingToSmile

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Posted 14 August 2008 - 12:37 PM

How did your appointment go, Sam?

Were you pleased with your test results (PFT, ECHO)?

It is hard to make progress when you are in pain (!) I hope the Dr. can help you again. And as my doctor always says - Don't give up - Don't sit still - Keep moving. I hated it the first time he said it to me , but (as usual) he was right.

Take Care
-RTS

#7 Sam

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Posted 15 August 2008 - 03:28 AM

Well My sclero doctor upped my lyrica, I already take 300mg a day. My echo showed some stuff but it was the same as before. Which no new change. My blood work showed things that was really high which is normal for having scleroderma and OA and RA. As for th pain he gave me some pain pills. I hate taking meds... When I was in the room waiting for the sclero doctor to come in I just started crying why I have no idea but I am stressed right now. He told me to get some much need rest. I do alot for the scleroderma and PH community and he told me get some rest. Easier said then done. We are having a garage sale the realtor will be here today. Yes I have to sell my home. It has been awful financially for us since I am not working and I have been trying to get on disability since 2003. Were jsut digging a deep hole and we can't get out of it, then there is trying to get our meds I take more than my hubby. I so feel like everything is my fault. But I can't think that way but it is hard to.. Well enough said take care, Sam
Sam

#8 Sweet

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Posted 16 August 2008 - 01:54 PM

Oh Sam,

I'm so sorry for all that you are going through. Try to take one step at a time and lean on us as much as you need to.

Love you!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#9 smurfette

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Posted 16 August 2008 - 07:23 PM

Hi Sam,
You sound like everything has hit you at once. Blaming yourself is not right - you did not cause your condition and your are only going to increase your stress level and that is not good for you. Your tests came out well - no change is good. You are holding steady. That is positive. If your work for scler and PH is not giving you time you need to take care of yourself then give it a rest for a while so you can take care of you. You could be wearing yourself out and that may be leaving you exhausted with a lower pain threshold and you may even be a bit depressed.

You are always there for us with a kind and supportive word. You work very hard dealing with your own problems. You deserve to take care of yourself as well as you take care of everyone else.
Smurfette

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