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#1 summer

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Posted 19 August 2008 - 06:44 PM

I have had problems for months now with my bowels, I am seeing a Gastroenterolgist who is still trying to sort things out. I can open my bowels up to 20 times a day which leaves me feeling weak and exhausted. I had a Colonoscopy a year ago which showed mild diverticulitis, they took biopsies to rule out a few things, but everything is normal. I do not have IBS and the biopsies showed that I also don't have Bacteria Overgrowth.My Gastroenterolgist isn't convinced that I don't have Bacteria Overgrowth, I have been on Flagyl and also just finished a course of Amoxycillin & Clav AC Tablets, which hasn't done anything.

I have been putting off having a Breath test which apparently shows for sure whether I have Bacteria Overgrowth. 6 Weeks ago my diet was pretty poor, eathing all the wrong foods and such forth, so I thought I would completely change my diet and eat only wholesome healthy foods with lots of wholegrain fibre, and also eating small meals throughout the day instead of 3 big meals.
This has helped me lose some unwanted kilos that I needed to lose, for a week I was fine and thought that this way of eating had solved the problem. Now today I have been in and out of the toilet again and can't understand why. I had been going to the toilet everyday normally and now it is back to endless trips to the toilet.

Does anyone know whether Bacteria Overgrowth causes these trips to the toilet all of the time?. I only eat small amounts and can't understand why I am passing large amounts in the toilet ( I'm sorry, I know this is gross to talk about).

Your thought or opinions will be appreciated on this matter

Take care
Celia

#2 gina

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Posted 19 August 2008 - 11:23 PM

Hi Celia,I Don't have an answer for you,but I have the same problem.One week I'm fine then the next I'm in the toilet 24-7.I even have go during the night.I have tried ever thing I can think of,a good diet lots of water and exercise.It's like it has a mind of it's own. :lol: What else can we do.I hope you get same relief very soon.

#3 Sheryl

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Posted 20 August 2008 - 12:41 AM

Ced, there are several medications your doctor can put you on to help with this situation. One is Questran, one is Colestid and there are a couple more that can also be prescribed. I also have diverticulitis/losis. Once you have been given the medications for the overgrowth then things should straighten out somewhat. I sometimes have to take the medications like Flagyl for a two/three week peroid instead of just ten days to clear up the situation. Colestid is also used for people with cholestrol problems which I didn't have 7 years ago when I started this medication. It has worked quite well to keep my bowels from being the watery/diarrhea style. You don't find yourself having to constantly worry about where the bathroom is, where ever you are each day. You don't have to worry about accidents happening. Just a thought. This medicine is what my GI doctor has had me on. It doesn't hurt to ask your doctor about it. I hope you get this solved shortly. It took awhile for me. I just kept going back or calling the doctors, until we figured out something that worked. You GO girl.
Strength and Warmth,
Sheryl

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#4 Peggy

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Posted 20 August 2008 - 06:12 AM

I used to have the same problem and I was mis-diagnosed with Celiac disease, which means I was allergic to glutten. So for about 6-7 years I thought I had it and would get chewed out by my family when I didn't adhere to the diet - which was really hard as the bread that they make that is glutten free tastes like tree bark! Well then my sclero symptoms started and I was lucky enough to get in to see the best doctor in the United States that deals with celiac disease at the Mayo Clinic. Well he did a biopsy of my lower intestine which hadn't been done, as the diagnosis was made by blood work only for the celiac. Well low and behold I didn't have Celiac after all. I am glutten intolerant, but that's alot different than having the actual disease. So that meant I started over from scratch and now all the symptoms that I had that were being blamed onto me for not adhering to the celiac diet was in fact not at all what was going on.

So maybe you should be checked to see if you do maybe have Celiac disease, or maybe you have some other allergy going on, such as I do with being glutten intolerant.

Sorry this got long but it's just a thought.

Warm hugs and good luck,

Peggy

#5 summer

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Posted 20 August 2008 - 01:37 PM

Thanks everyone for your suggestions, it is nice to know that I am not alone in all of this.

Peggy, I have been tested for Caeliac Disease, I don"t have it.

I have been putting off having a breath test as I don't have anyone to mind my 4 year old son. My husband has just started a new job, so he can't take time off work and my mother in law is overseas at the moment. Apparently the breath test takes 2 1/2 hours, I am very reluctant to take my son with me as it is a long time for him to sit and wait. When my mother in law comes back in the middle of september I will probably go then and have the test.

Many thanks
Celia

#6 smurfette

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Posted 20 August 2008 - 04:57 PM

Hi ced,
Your problem is so familiar! I hated to leave the house to go to work. I wanted to wear diapers! It was the most distressing and humiliating problem. Before I had the test, my doctor had me take one Imodium (an over the counter anti-diarrhea med) every morning and that seemed to help a bit. It can then cause things to swing the other way so it is not the best way to deal with things. I was just doing that until I could take the breath test. I took the breath test. It was so positive it should up almost immediately. I had to take two courses of antibiotics as one was not sufficient. Once the second course was finished I did not have any problems. I do have to be vigilant though as it can return.

Good luck. The breath test is so easy and non-invasive and the results can have such an important change for the better it is well worth doing. I hope you can manage to do it soon. Feel better!
Smurfette

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#7 summer

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Posted 20 August 2008 - 05:55 PM

Hi Smurfette,
My doctor also mentioned that I should also take Imodium to slow things down. It doesn't make sense to me to take it as It would slow things down even more, and create more problems.

Does anyone know whether this Bacteria Overgrowth is also called slow motility?
If I had Bacteria Overgrowth, wouldn't I be losing weight quite fast?. I am not sure why Scleroderma could cause the overgrowth.? I do know that the small intestine and the Bacteria Overgrowth competes in getting nutrients from the body.

I have looked at some of the links on this forum about this but It doesn't seem very clear to me. Maybe I am having a very vague day :( .

Many thanks to all
Celia

#8 omaeva

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Posted 20 August 2008 - 08:02 PM

I'm just putting it out there, but a few months ago I swore I had issues with my bowels. My rheumatologist was convinced of it too. went to see gastro, etc. Nothing seemed to be wrong, until I discovered I'm allergic to SPLENDA. So cutting out anything that had splenda in it really helped a lot.

#9 Sheryl

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Posted 20 August 2008 - 11:58 PM

Celia, there may be several names for the bowel issue problems. From Bacterial Overgrowth to slow motility to gastro-paresis. Issues like explosive or constant diarrhea can diffinately be from slow motility issures caused by a slight infection. I hope all is rectified soon, and you are feeling better.
Strength and Warmth,
Sheryl

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#10 Margaret

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Posted 21 August 2008 - 01:29 AM

<<Nothing seemed to be wrong, until I discovered I'm allergic to SPLENDA>>

Hi Celia ,

This brought to mind what Aspartame can do, too. Maybe if you check what is in your drinks and avoid some of the artifical stuff, it might clear up. Just an idea.

Take care, Everyone.
Margaret

#11 nan

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Posted 21 August 2008 - 03:17 AM

Celia,
I am so sorry that you are having this problem. I think for us it is either going all the time or not going. My problem is constipation! Go figure! I hope that you can get this resolved soon.
Nan

#12 annkd

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Posted 21 August 2008 - 05:30 AM

I thought I'd throw in my latest "investigations" into my journey with this problem. Between my rheumatologist and my Gastro doctors you'd think we'd get a clue. I've been on the meds for the Bacterial overgrowth (no luck), had the colonoscopy, upper and lower Gi tests, etc. Now there is another two blood tests that have been suggested. One is fpr Carcinoid tumors (the reason for this one is that I have the symptoms that could suggest a connection: flushing throughout my body, especially my face/head and diarrhea, elevated liver readings and something called Gastronoma. I don't know much about this one,however; it is similar to Carcinoid tumors so last I was told they would test for both. I'll let you know if something comes of this but in the meantime, best of luck to you! -Ann

#13 lizzie

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Posted 21 August 2008 - 06:54 AM

Hi Celia, I can sympathise, I either have constipation or diarrhoea, both of which can be accompanied by the "six month pregnant" look and embarrasing flatuence. A few months ago I had investigations to check for bowel cancer - thankfully all negative. The Gastro Dr did say that may be bacterial overgrowth and if things didn't settle down , may need antibiotics. I also used to get really bad colic ( felt as bad as labour pains)- I then read that aspartamine could cause diarrhoea and colic and realised that I was having quite a lot of it due to my chewing gum habit (to counteract dry mouth ). Once I cut out the chewing gum the colic (but not the diarrhoea) disappeared. Hope ypu get to have the breath test soon.
Lizzie

#14 Kamlesh

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Posted 21 August 2008 - 07:31 AM

Celia,

I regularly take a dose of Flagyl every six months to avoid such issues. Normally, I take 500 mg twice a day for two weeks, many times I will have to repeat dose. I have been able to avoid many issues.

Take care!
Kind regards,

Kamlesh


#15 smurfette

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Posted 21 August 2008 - 04:15 PM

Hi again,
As confusing as it seems, I was told that the lack of motility causes the bacterial overgrowth. Things sit around due to the lack of motility and the bacteria that would be sent packing so to speak, sit around and get a chance to grow in a favorable atmosphere. Then due to the bacterial overgrowth, things get very volatile and you get the diarrhea. Gastro paresis is when things don't move higher up - for me that is things sit in the stomach and take a very long time to get into the small intestine. That is a whole different problem. I have that problem now. I has the overgrowth before. The breath test does not diagnose gastro paresis - you see that with an endoscope and another test that involves eating something with a radioactive substance and they follow it through your digestive tract. They see how long it takes you to digest it. If it takes longer than 2 hours chances are that you have gastro paresis - the slower you digest the more extreme the paresis. The breath test determines the bacterial overgrowth. The bacterial overgrowth is dealt with by taking antibiotics like flagyl. That is not the course of treatment for gastro paresis.
I hope that I have not confused things. They are two different ailments. You can have both at the same time. Celia you are not having a vague day. I know how miserable either or both of these conditions can make you. I have had them and can empathize completely. I hope that you can get what you need to find out what your ailment is and get the right treatment is soon. I am so sorry that you are hurting. Feel better soon.
Smurfette

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#16 shaz

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Posted 22 August 2008 - 09:54 AM

Hi my father also has this condition he has had scleroderma for at least 8 years. It has attacked his heart, lungs, kidneys, and now it is attacking his bowel. He is unable to keep food down or in he takes Immodium but still it keep on coming. His weight has gone to 7 stone. I can only think that the food he is taking in is not being absorbed in to his body along with the nutrients and vitamins so the body is passing it through. Please if you have any new take on this let me know. xx

#17 Sheryl

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Posted 22 August 2008 - 11:24 AM

Shaz, I would like to welcome you to our ISN forums.
Sorry, to hear that your dad is having so many problems. Many of us have several issues going on at once. The 3 Colestid that my doctor has me on 2 times daily has helped keep the food and nutrients in my body for longer peroids of time and also helped to lessen the intense bowel issues that I suffered with. This may not be something that could help your father but he can possibly talk to his gastroenterologist and see if it might be a beneficial form of treatment for his possible use. I still have to treat bacterial overgrowth problems with antibotics a few times a year to keep things in control. I hope you and your dad learn and can give us information.
Strength and Warmth,
Sheryl

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#18 summer

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Posted 23 August 2008 - 04:57 PM

Thank you so much everyone for all of the responses I have had. I have had a very trying morning, the worst yet, over 20 times to the toilet in 2 hours, leaving me drained and very weak :( . My bottom area is extremely sore, I can't even dab the area with wipes, it stings so much. This is my third week of taking antibiotics, I still can't see any change yet. I have even tried different antibiotics which hasn't helped.

Smurfette, thank you for giving me a more detailed response regarding the issues I asked for. I understood your answer but what is making the bowels slow. Is it the excess Collagen from the Scleroderma being deposited in the bowels, making it more slower, which is causing the Bacteria Overgrowth?

Many thanks
Celia