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Results of cat scan


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#1 ShawMJ

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Posted 20 August 2008 - 07:45 PM

Hi everyone I finally went to my doctor appointment for results of cat scan and the news is good. Its just a small nodule just big enough for the chest x-ray to pick up. It hasn't changed and he doesn't feel its anything to worry about.In 3 months we'll do another and see if its still there etc. If it there still another cat scan but he said being I never smoked he's not too worried about it being lung cancer or something like that.So I'm happy and slept good last night. On the down side my daughter called me on her lunch hour and told me that one of her friends had just been diagnosed with scleroderma. She doesn't know the type yet and they've made her friend an appointment with a rheumatologist. She's going to give her my phone number so I can tell her all I know. She has a lot of the same symptoms I had, 'knots'on her legs, loss of hair on head, underarms, legs and lots of joint pain, I forgot to ask her if her skin was shiny or 'tight'. She did tell my daughter that she broke a glass last week as her hand suddenly just 'locked up' on her and the glass just slipped right out of her hand. This is a young woman in her 30's and has a 6 year old daughter who is a friend to my little grandaughter. Like I told my daughter I'm glad mine waited until I was older through raising children,etc,if I need to just stay in bed then I can but a young mother with a 6 year old cannot. So I'll help all I can my daughter told her to stay off the internet because she would get scared of what she saw. I will recommend this site to her when I speak to her. So I hope I can be of help to her. Anyway I hope all of you are doing as good as can be. Hugs and smiles to all, Mary

#2 razz

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Posted 21 August 2008 - 03:47 AM

Mary,

Good for you, I'm so glad to hear your doctor says there's no need to worry. Everything looks good! It's the best news to hear!

I am sorry to hear about your daughter's friend being diagnosis with scleroderma. In my early days I didn't know anyone with scleroderma and the resources were few. If I had the support that I do now from this site, I would have felt so much better.

Hugs,
Razz
Live well, Laugh often, Love much

#3 Sweet

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Posted 22 August 2008 - 07:59 AM

Hi Mary,

Good news about your test results, yippee!

I'm really sorry to hear about your daughter's friend......this disease is starting to not be so rare!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Purr

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Posted 22 August 2008 - 08:36 AM

Hey Sweet!

You've noticed that, too! I've heard about several people who have been diagnosed with Scleroderma lately and most of them are in my age range (baby boomers). Also, "I think" I read somewhere that autoimmune diseases are on the rise. The only good thing about that is that maybe the funding for research will increase and they'll find out what is causing all of these CT problems.

Christy
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#5 Sweet

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Posted 22 August 2008 - 08:43 AM

Yes, the only upside is the increased awareness, therefore more research!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Peggy

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Posted 22 August 2008 - 10:06 AM

Congrats on your good news. It must be such a relief for you and no more worries! I'm sorry to hear of another person afflicted with this disease, and especially one as young as she is and with such a full plate of having kids at home to care for. I am at least blessed that I don't have children at home to take care of as that would be really hard for me at this point. We were in the process of being 1 week away from adopting an additional child when I got my diagnosis and I pulled the plug which was the hardest thing I've ever done. Now I really know it was the right thing to do. I'm glad she will have someone like you to talk to about it as that's a huge help, especially at the beginning of the diagnosis.

Warm hugs,

Peggy

#7 ShawMJ

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Posted 23 August 2008 - 06:36 PM

Hi all and thanks for the replies.I too am so glad that I was diagnosed at a later age.I was 53 then and its 10 years later so now I'm waiting on medicare.2 years to go yet.Spoke to my daughter and her friend is not handling the news well.She said that she refused to take prednisone if it meant it would make her gain weight.My daughter tried to convince her to please listen to her doctors orders.My daughter also told me she has the mouth sores really bad even under her tongue with the 'chalky stuff'draining from them.That doesn't sound too good.Luckily she was already on pain meds as she also had degenerative disk disease the same thing my daughter had surgery for back in February of this year.She told me that her friend's mother had called and wanted to know everything that she knew about the disease and she told her she could only give her the information from her seeing me for the last 10 years and what I have and still go through.However she did print out some info from a dr who has it and gave it to her to read.(The mother,that is).She wanted to know all in case her and her husband may wind up taking care of her and her little grandaughter as theres no dad in the picture.He's an oncologist and is vacationing in Europe.He told her that what she had was serious-DUH- and they would discuss it when he got home.I'm so grateful for my good husband who has stuck through thick and thin with me-now I'm doing it for him as the dementia is not getting better and I know it won't.So I just continue taking this day by day.Oh sorry I'm blabbing on- Hugs -Mary

#8 Purr

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Posted 24 August 2008 - 08:59 AM

Mary,

Your daughter's friend's mother might want to read The Scleroderma Book, 2nd Edition by Maureen D. Mayes, M.D.. It's a 'guide for patients and families' and very easy to understand. It explains alot of thing that could happen with scleroderma, emphasis on "could". It has helped me alot. It's been 14 months since I was diagnosed and I usually look up something in it atleast twice a month. Very good book!

Take care (and congratulations :) ),
Christy
Love makes the world go around!

#9 Snowbird

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Posted 24 August 2008 - 11:01 AM

Hi Mary

I'm also glad to hear your good news, you must have been sooo relieved!! Like the others, it's always sad to hear about another person with this disease. I'm sure she's just terrified about the news like everybody is when they get diagnosed, it's such a head spin. I'll bet you'll find her mother will want to talk with you to learn more and no doubt, you'll help a ton just by talking to her. I bet when things settle down for her, she'll also find more comfort in her friendship with your daughter over this too. Keep us updated.
Sending good wishes your way!