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Help - no sleep!


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#1 mutsy67

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Posted 22 August 2008 - 03:25 AM

Hey Everyone!
Does anyone else have problems with cramps in their legs and feet at night? This is new just in the past two weeks - every time I stretch or roll over I get a charlie horse in my calves or my feet (yep, my feet!).

Also, I have Restless Leg Syndrome and take medication for it but one of my non medical helpers is to flex and hold the muscles - but everytime I do that - a severe cramp.

I take Cymbalta for neuropathy and that causes some spasms in my hands and legs so anytime I have one of those little spasms - you guessed it - a cramp.

This is horrible - no sleep! I'm exhausted and cranky! Is this from a collagen build-up in these muscles??

Any advice, suggestions or a shoulder to cry on is appreciated!
Shari (Mutsy67)
Shari (AKA Mutsy)

#2 Sheryl

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Posted 22 August 2008 - 05:06 AM

Shari, I can give you the shoulder to cry on.
I have had regular charlie horses and very severe charlie horses over the years. I have taken a few things that have helped in the past. (Norvasc) is one of the medications that has worked for the past couple years. Though, I am starting to get them again and I'm thinking it might be from one of the medications I started this past month. I still get siatica type pains in my buttox, hip, and calf that sometimes last for a couple days. Similar pain to the charlie horses. Yes I get the charlie horses in my feet, toes and under the arch of my feet at times. Try walking when that happens. It is quite a joke. I feel for you. It isn't fun.
Strength and Warmth,
Sheryl

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#3 Buttons

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Posted 22 August 2008 - 06:09 AM

Yes I also get the muscle cramps in my calves & feet. It often wakes me up(& hubby) at night in total agony and he gets out of bed to massage my leg! I was told that tonic water with quinnine in helps but not sure how much you would need to drink to make a difference. It's just another irritating thing to live with.

#4 JJ-Knitter

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Posted 22 August 2008 - 07:08 AM

My mother and husband both got/get those awful leg cramps and hubby also has gout. The one thing that worked for both Mom and Himself is bananas - they have also been reliable for preventing gout attacks. One a day seems to do it. You might give it a try~

JJ

#5 Shelley Ensz

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Posted 22 August 2008 - 07:41 AM

As it happens, there is an FDA Warning out against using quinine for leg cramps. It is on our main site, FDA Warnings. It says:

FDA: Don't Use Quinine for Leg Cramps.FDA Cracks Down on Unapproved Quinine Drugs, Cites Problems Including Deaths. WebMD Medical News. 12/12/06.

Here are some tips for nighttime leg cramps from the Mayo Clinic:

To help prevent night leg cramps:
 

  • Drink plenty of fluids during the day.
  • Stretch your leg muscles before bedtime.
  • Get adequate potassium in your diet.

***
That's why the bananas that JJ Knitter mentioned may be helpful, as they are a good dietary source of potassium.


Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Margaret

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Posted 22 August 2008 - 07:48 AM

Hi Shari ,

I get horrible cramps in my legs and feet at night IF I dont' eat a banana around suppertime OR take an OTC Potassium Gluconate supplement (550 mg) with supper. Ask your doctor first, though.

Take care, Everyone.
Margaret

#7 razz

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Posted 22 August 2008 - 07:49 AM

Shari,

Sometimes I get cramps in my toes at night. I don't know why it happens at night. You would think that's when we're the most relaxed. I usually get up and walk it off. Eventually I nod off to sleep again. But it sure hurts like the dickens!


Razz
:)
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#8 Purr

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Posted 22 August 2008 - 08:27 AM

Shari,

Back in the dark ages (I'm 61 :lol: ), a doctor I had, prescibed quinine for my leg cramps and it worked. It can irritate the stomach though. And I just now remembered :o , that's the other reason I couldn't take Plaquinil. It has quinine in it!

Incase you're wondering, forgetting things has been a topic on the forum lately.

Take care,
Christy
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#9 Shelley Ensz

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Posted 22 August 2008 - 08:56 AM

Sorry for the repeat, but due to another mention of quinine (albeit in the "dark ages" LOL) I need to post the notice again, as people who receive their forum posts by email might miss the warnings...

As it happens, there is an FDA Warning out against using quinine for leg cramps. It is on our main site, FDA Warnings. It says:

FDA: Don't Use Quinine for Leg Cramps.FDA Cracks Down on Unapproved Quinine Drugs, Cites Problems Including Deaths. WebMD Medical News. 12/12/06.


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#10 Peggy

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Posted 22 August 2008 - 10:02 AM

I don't have a solution but I just wanted to tell you how bad I feel. I am so fatigued that I can only imagine how frustrating it is not to be able to sleep and when you do in fact go to sleep wake up to a charlie horse. I would get the when I was pregnant and they are painful so if you are getting them all of the time it must be terrible. I hope you find a solution soon.

Warm hugs,

Peggy

#11 smac0719

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Posted 22 August 2008 - 11:53 AM

Mutsy,

I sorry to hear about your cramps. I get cramps from the methotrexate if I don't take folic acid along with it. Sometimes I forget and I notice when I haven't taken it. As soon as it gets in my body the cramps stop. I also had rls and it drove up a wall!

Peggy,

I'm so sorry to hear you aren't feeling well. My thoughts are with you.
I may have Scleroderma, but Scleroderma doesn't have me!

#12 canon

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Posted 22 August 2008 - 03:24 PM

Mutsy,

Sorry to hear about your leg cramps and not sleeping. I can get pretty cranky too from not sleeping. When everything is quiet and you lay down to go to sleep, you just become more aware of your body sensations and pain. When you're up and about things are different. There are times being up and about is painful too.

Sometimes tylenol will give me leg cramps especially if I take 2 extra strength, when I forget to take folic acid (I take methotrexate), sometimes fatigue from being up and about too much or to little. Sometimes bananas help or gator aid or just plain fluids help. Sometimes I just have to get up and turn on the computer or TV or read a book. Sleep is not what it used to be, not even close.

Try different things to see what helps you. When all else fails maybe a Doctor would want to check your Potassium level or your electrolites.

Wishing you speedy results,

Canon/Judy The newbie
A happy heart is good medicine.