Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

I am getting a Reclast infusion - anyone have experience with it?


  • Please log in to reply
6 replies to this topic

#1 smurfette

smurfette

    Silver Member

  • Members
  • PipPipPipPip
  • 148 posts
  • Location:PA, USA

Posted 25 August 2008 - 04:21 PM

Tomorrow I will finally be getting the Reclast infusion that my doctor prescribed. I cannot just take the oral meds. for osteoporosis because of my severe reflux. Reclast is supposed to be the best of the infusions in terms of building bone in both hip and back. I am going alone and then have another doctor appointment scheduled for later in the day. I really do not know what to expect. I am assuming that I will be well enough to go about my day and drive from one place to another without any compllications as a result of the infusion. I would like to hear from people who have had the infusion.

I would like to know: 1. if any who received the infusion had improvement in their dexa scan &
2. what kind of side effects they had as a result of the infusion.

Any insight that those experienced can share would be greatly appreciated. Thank you.
Smurfette

Chocolate, It isn't just for breakfast anymore!

#2 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 25 August 2008 - 05:20 PM

Hey Smurf,

No experience but I wanted to wish you the best!!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 razz

razz

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 344 posts

Posted 25 August 2008 - 06:06 PM

Smurf,

I had a Reclast infusion last March. I also went by myself to have the infusion done. The whole procedure took not more than 1/2 hour, 5-10 to set up and 20 min. for the infusion. I felt okay going home. The next day I woke up feeling achy (like a flu) with a headache that lasted 24 hours. I probably could have taken something for it.

At my last rheumatologist appointment (a few weeks ago), I asked about having an updated dexa scan and she said it was too soon to test for improvement.

You're a trooper Smurf and I hope all goes smoothly for you!


Razz
Live well, Laugh often, Love much

#4 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 25 August 2008 - 07:39 PM

Sorry Smurf, no experience here but wishing you an easy day of it.

#5 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 26 August 2008 - 07:32 AM

I too have never had this but I wanted to send my good wishes your way. I hope it goes well and that you don't have any nasty side effects and actually get great results. Take care!

Warm hugs,

Peggy

#6 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 26 August 2008 - 07:39 AM

Smurf,
My mother got her first Reclast injection a month ago and has had no side effects. She is 82 years old and probably would have noticed something. Too soon to tell if it's working for her. I hope your injections goes well today and that you experience no side effects.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#7 smurfette

smurfette

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 148 posts
  • Location:PA, USA

Posted 28 August 2008 - 02:44 PM

Two days and counting. I had the infusion. They gave me two Tylenol before and told me to take 2 around the clock for a few days to prevent the headache and body aches. They also said that that reaction would only occur with the first infusion. I did not take the stuff around the clock since I take so many pills, including an aspirin, and I just did not want to bring more meds into the mix. I ached a bit and did get a headache so I did take Tylenol the first night. It was Tylenol with a sleep ingredient to make sleeping easier.

I worked a full day the next day and did not get home until after 9:30PM. I took it easy the day after that. All in all the reaction was not worse than a day with a fibro reaction when I know it is going to rain. I could have worked but I would probably have needed a nap. Fatigue was increased with the soreness. It is so worth getting the infusion, even with some little aches and pains and some fatigue, compared to taking pills that tore up my esophagus - even only once a month! Now I will not know if it actually helps my bones for a while and indeed that is the important part. Otherwise the whole process is valueless. Once I get tested and the graphs are compared to see if at the very least I did not lose any more - I am hoping to rebuild- then the proof will be known.

I will not know for about a year or so. When I know I will make a report.
Smurfette

Chocolate, It isn't just for breakfast anymore!