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Biopsy results from nodules on palms and fingers


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#1 canon

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Posted 27 August 2008 - 05:06 PM

Hello to all,

I really enjoy reading through everyone writings. Sometimes I don't know what to say to some, sorry. It is either to close to home or I just don't know what to say. The disease is terrible. You all seem to be so brave.

The results of the biopsy on the nodules on my hands surprised my dermatologist and me. It is not calcinosis, sarcoidosis, vasculitis, drug eruption or rheumatoid nodules. The pathology report showed granuloma annulare. It generally affects children and young adults and those over 40. The cause is unknown but believed to be a delayed type hypersensitivity reaction which is found in autimmune diseases and other nasty diseases. It is benign and usually burns itself out with in 4 years but not always. It has been found to co exist with some autoimmune diseases such as SLE, or Rheumatoid arthritis. It also has been found with just rheumatoid nodules, diabetes and thyroiditis. I read this on the web. I have limited systemic scleroderma, (cREST). Graves disease with hypothyroidism. The nodules in my stomach showed nothing, I don't know what the lung nodules are, they are watching them.

The dermatologist said he would need to look up the disease also because he said it is uncommon and doesn't know much about it. He knows alot about cancerous lesions and has found some on me in the past. He has also removed many pre-cancerous ones. I have read scleroderma Patients have a tendency for basal cell cancers.

He also said this disease is not what is causing my hands and fingers to be numb, itch and hurt. He has given me prednisone tape to cut out and put on the nodules. It is a good gester but there are many nodules and my hands don't work well right now. Alot of the nodules are disappearing, some are new. They do itch and at first hurt, turn red then they are OK. They are not suppose to hurt according to the literature.

Anyway the past couple of days have not been nice. I have felt like I can't move and have had trouble breathing again. It will go away again soon I hope and a little break will do.

Thanks for listening again. Thanks for all of your support and suggestions.

Canon/Judy
A happy heart is good medicine.

#2 Purr

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Posted 28 August 2008 - 03:09 AM

Hi Judy,

I am sooo sorry you're having such a hard time right now. I know it's easy to say "keep a positive attitude", but that's what helps me. There are good days and bad days and we just have to go with the flow. I hope things get better for you soon.

It sounds like you have a good doctor. He's willing to learn more so that he can help you. Alot of doctors wouldn't do that.

Take care and keep letting us know how you are doing. :)

Christy
Love makes the world go around!

#3 canon

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Posted 28 August 2008 - 12:13 PM

Thanks Cristy,

Hope you are doing well.

Canon
A happy heart is good medicine.

#4 Snowbird

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Posted 28 August 2008 - 12:28 PM

Hi Judy

Well, you sure are having a tough go of it....I sure hope it settles down for you soon! Try to get lots of rest in the meantime, and hopefully, you'll keep us updated as you go along.

Take care for now!
Sending good wishes your way!

#5 Sweet

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Posted 28 August 2008 - 12:33 PM

Oh Judy,

Goodness, I am so sorry for all that you are going through. We are here for you, vent, talk, share, whatever it takes to help you through this.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 smac0719

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Posted 28 August 2008 - 01:04 PM

Judy,

I'm glad the dermatologist was able to diagnosis the nodules, but wish you weren't having such a hard time. I hope the pain and discomfort starts to lessen for you soon.
I may have Scleroderma, but Scleroderma doesn't have me!

#7 Nina

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Posted 28 August 2008 - 01:04 PM

Judy ~ I'm sorry you are going through so much at this time. But please keep posting, even if you feel you don't have much to say ~ it helps. I know it does for me.
I had a rash over ten years ago that wouldn't go away. I went to a dermatologist and they did a biopsy ~ unfortunately it didn't show much, and I was not aware that it was connected in any way to my scleroderma. I was taking Welbutrin at the time and the doctor suggested that I may have had a reaction to that. This rash was more like small blisters up and down my arms and acrossed my chest. It was terrible, and lasted for months. As I look back, I firmly believe it was connected to my autoimmune problem. I'm not totally that there are many doctors out there that keep up to date on all the data available on this disease.
My new rheumatologist was not aware that GAVE is connected to Scleroderma. It can really get to you at times ~ but then I sign on here and visit with my friends and educate myself ~ and I begin to forget about all the pain and disappointment in doctors.
Keep coming back , if only to check in and say "Hello."
Much love,
Nina (DE)

#8 canon

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Posted 28 August 2008 - 01:06 PM

Thanks you all.

Judy
A happy heart is good medicine.

#9 smurfette

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Posted 28 August 2008 - 01:40 PM

Dear Judy,
I am so sorry to hear about what is going on with you. I hope that the pain is subsiding and that with rest you are able to feel better. It sounds like your doctor cares a great deal and really wants to try and do everything that he can to make you feel better and to understand what is going on with you. You certainly seem to be rising to the occasion and ado not lack courage in dealing with your particular situation. Please know that we are here to listen and offer support and affection as needed. Do not be afraid of not knowing what to say to others - you just concentrate on dealing with your own pain and your own disease right now. We are here for you.
Smurfette

Chocolate, It isn't just for breakfast anymore!

#10 canon

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Posted 28 August 2008 - 03:09 PM

Thanks so much you all. I sound southern but really I was brought up in the north. I love saying you all. These southern people have learned the art of being inclusive.

How are you feeling smurfette? Hope that procedure is working for you. Have you noticed anything different? Even just a tiny bit?

Nina, sweet, smac, snowbird,christy and smurf, you have helped more than you know. I hope I can help you out too.

Judy
A happy heart is good medicine.

#11 smurfette

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Posted 28 August 2008 - 09:43 PM

Judy,
Thanks for asking about my wrinkle free sphincter - you are very kind. I think that the stuff is beginning to take because I have not been nauseous since the procedure! I think that is an improvement in itself! No more gagging since it has taken place. I should know I about another week just what else it is doing.
Smurfette

Chocolate, It isn't just for breakfast anymore!

#12 canon

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Posted 29 August 2008 - 04:28 PM

Smurfette,

That is wonderful news. Oh what a relief to lose one symptom. Imagine what losing all the symptoms will be like!!! I can't wait to hear.

Judy
A happy heart is good medicine.

#13 luvbnmom3

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Posted 01 September 2008 - 01:55 AM

Wow, that is interesting! As I read the, "It's not...." sententence I was like, well then WHAT on earth are they?!?! Anyways, that's great to have a concrete answer. I hope you get to feeling better & they all go away soon!

#14 canon

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Posted 01 September 2008 - 05:31 AM

Thank you luvbnmom3,

It is ok to get a concrete answer about something.

Judy
A happy heart is good medicine.