Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Pain in ears

  • Please log in to reply
9 replies to this topic

#1 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 29 August 2008 - 11:00 PM

Has anyone else experienced the following with their ears?

sharp pains, deep inside
dull ache
loss of balance when closing eyes

Thought I had an ear infection but doctor at urgent care said no. And no sinus or allergy problems either which leads me to believe a sclero thing?


#2 luvbnmom3


    Silver Member

  • Members
  • PipPipPipPip
  • 154 posts

Posted 30 August 2008 - 01:03 AM

Occasionally I get sharp pain deep inside that lasts seconds & goes away, I do get a dull ache that lingers now & then with no known cause & often my ears feel like they are plugged, like they're submerged under water, but a doctor, a few, have confirmed they are not plugged.

I have NO clue what is up with that! All I can think of is jaw related. I hope you get some better info than I've got!

#3 Nina


    Silver Member

  • Members
  • PipPipPipPip
  • 125 posts
  • Location:Claymnont, DE

Posted 30 August 2008 - 03:23 AM

Speaking of ears...
I can't imagine this being connected, BUT ~ I keep getting little sores in my ears, they weep and get scabby. Not very nice to try to explain.
Does anyone else have this problem?
I don't really get any pain deep in my ear, but these things can drive you crazy.
Much love,
Nina (DE)

#4 Purr


    Silver Member

  • Members
  • PipPipPipPip
  • 261 posts
  • Location:Kokomo IN

Posted 30 August 2008 - 03:57 AM

I haven't had the sharp pain deep inside, but I have had the rest of it. It doesn't usually last very long. I have TMJ which I figure causes the dull pain sometimes. A couple of my medications cause dizziness.

Love makes the world go around!

#5 lizzie


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 30 August 2008 - 10:45 AM

Hi Barefut, your symptoms sound very similar to those I experienced when I had labyrinthitis - has your dr considered that?

Nina: I get weepy/scabby sores in and behnind my ears. I have psorasis and, for me ,think they are realted to that.


#6 summer


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 522 posts

Posted 30 August 2008 - 12:56 PM

Hi Barefut,
It could be a mild case of Menieres Disease - I think it is also a autoimmune disorder. I had a sudden severe case of it many years ago, it was terrible, when I closed my eyes the room seemed to spin, and when I opened my eyes it felt like my eyes were rolling in my head extremely fast. I also had ringing in my ears just before the attack.

Take care, I hope it is not this!

#7 barefut


    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 30 August 2008 - 07:16 PM

I have not heard of labyrinthitis so I did a little research. Thank you for the suggestion. I learned something new and can now be armed with info for the second opinion I intend to get.

ced ~
I don't think it's Meniere's because although I have had a few bouts with extreme vertigo, I'm not having that now. Just some mild dizziness now and then and some balance problems - come to think of it I have actually been quite a clutz lately and have the bruises and scrapes to prove it. The other day I answered the phone at work but not before cracking myself in the brow with it :blink: It was like my arm didn't belong to me! :lol: My hips are full of bruises from bumping into the cabinet handles at my teller station - maybe balance/ear related or maybe I've just turned into a major clutz and am looking for something to blame it on :lol:

Luv and Purr ~
I think it could very well be jaw related. My dentist has seen the effects of my nocturnal teeth grinding. Lately I catch myself clenching during the day. I will have to read up on TMJ too. I hear crackling when I open and shut my mouth and this dull pain lasts all day with occasional sharp, stabbing pain for good measure. <_<

Nina ~
I have not experienced what you describe. I imagine that's no fun!

Thanks for your replies gals. Love yas.

#8 jefa


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,284 posts
  • Location:Scotland

Posted 30 August 2008 - 11:23 PM

Hi, Barefut

Here are some links which may be of interest to you:

Autoimmune Ear Disease

Dental Involvement (see TMJ)
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#9 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 31 August 2008 - 10:13 AM

Yes, I have had this and at times it's because my neck is out, but sometimes that isn't the case, and none of the doctors have been able to give me a good reason. Sooooo guess you are not alone, but I know that isn't the answer you were hoping for.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#10 barefut


    Platinum Member

  • Topic Starter
  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 01 September 2008 - 12:45 AM

Thanks Jefa and Sweet ~

After reading up, I'm leaning towards TMJ. I learned a lot of behavorial changes I can make. Being conscience of my daily clenching is one thing and remembering to relax my jaw.

A visit to my dentist for a custom mouth guard to wear at night is long over due. Though a mouthguard will protect my teeth from damage, I wonder if it would ease the daily pain at all? Maybe if it was cushy...I can imagine a device that might feel good but not sure if such a thing exists. Maybe I need to invent it and make a fortune - HA!