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My rheumatologist appt

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7 replies to this topic

#1 fri83


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Posted 03 September 2008 - 07:55 AM

Just wanted to give an update to see what ya'll think. I waited the two months and finally went to the rheumatologist. I do think he did a good evaluation from head to toe. He did look at my fingers a lot but he was really quiet in his thinking. He ordered several blood tests and said he would let me know the results in 2 weeks. He was more interested in the tiny blood vessels that have appeared on my skin and the fact that my toe swelled up for no reason and that prednisone took away all my pain. The blood tests that he ordered are ana, anticentrome antibody, cpk, esr, vitamin d, and of course cbc. Do you have any opinions on what he might be thinking?

#2 jefa


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Posted 03 September 2008 - 08:20 AM

Hi, fri83

These sound like pretty routine tests under the circumstances. I wouldn't worry about it too much. Two weeks is not a long time to wait and you can find out what he was checking for. Let us know how things turn out, ok?
Warm wishes,

Carrie Maddoux
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International Scleroderma Network (ISN)

#3 janey


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Posted 04 September 2008 - 04:12 AM

I agree with Jefa. Those a pretty standard if your doctor suspects inflammation or a connective tissue disease of some sort. Vitamin d has been identified as an contributing factor to many diseases, particularly autoimmune so he obviously is on top of that one. I had never had my vitamin d levels checked until after diagnosis. It was low so now I'm taking a supplement.

Please let us know your test results. If you don't hear from your rheumatologist in two weeks, be sure to check back. Sometimes they get too busy and forget reporting blood test results. I always have to call for mine.

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Janey Willis
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#4 smac0719


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Posted 04 September 2008 - 12:44 PM

Ditto fri83. Those are tests that I've had ordered while going through the diagnosis phase. My vitamin D was extremely low and I understand that's a common problem with auto immune diseases. I have blood work done every 6 weeks and a copy comes directly to me so if my levels are off when I get the report I immediately call my Dr if they haven't already called me.
I may have Scleroderma, but Scleroderma doesn't have me!

#5 razz


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Posted 05 September 2008 - 11:57 AM


I have to take a Vitamin D supplement everyday to help with the calcium absorption for my osteoporosis. I agree with everyone here as far as the tests being routine. And like Janey says, if you don't hear from them, be sure to call them for the results.

Happy hugs,
Razz :)
Live well, Laugh often, Love much

#6 Snowbird


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Posted 05 September 2008 - 03:46 PM

Hi Fri83

Glad to hear you went for that appointment...it's a good place to start to get some answers....let us know what he says in two weeks when you find out ok. :)
Sending good wishes your way!

#7 fri83


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Posted 12 September 2008 - 02:08 PM

well I got results from rheumatologist yesterday via letter. he sd all tests were normal except my vitamin d is very low at 15.2. I am really happy about that, I can take an extra vitamin every day. I just hope that that is my whole problem, at first I didn't think that could make me feel that bad, but after reading info on vit d, it may be my whole problem.

#8 canon


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Posted 12 September 2008 - 04:09 PM


It is wonderful news that your lab work is good. My sister has low Vit d and has to take a hefty dose of it, not sure if its daily or weekly.

Sorry I don't know what your symptoms were/are but I do know that labs don't always reflect a true picture of autoimmune problems especially if your symptoms made you seek medical attention in the first place. The diseases are terrible and symptoms need to be monitored. I don't want to scare you or anything but if you have symptoms follow up on them until you get an answer or 2. Pain or feeling sick is not normal.

Take care,

A happy heart is good medicine.