Mispronouncing or mispeaking your words
Posted 03 September 2008 - 12:53 PM
Posted 03 September 2008 - 01:40 PM
I don't even have Sclero and tonight I said to Gareth, "Come and get the milk out of the cupboard and pour the glasses!!!" I have no excuse for my mixed up words!!!
Take care, Everyone.
Posted 03 September 2008 - 01:54 PM
Posted 03 September 2008 - 02:13 PM
When I was at work I spoke to Co directors, Judges, legal experts, irrate people and difficult staff and I never had a problem knowing exactly what to say and how to say it.
I know I am out of practice however I think the stress of having a chronic, unpredictable illness is the main cause. The brain always has one beady eye on the sclero and stresses about it.
I know that meds can wreak havoc also but for me I think it's just living with this disease.
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Posted 03 September 2008 - 03:39 PM
This disease does do strange things, but we live very busy lives and on top of it all we try to multitask. That can make things even harder on our brains. We are juggling a lot to do and a lot to think about. I am not so sure that we are all that different than anyone else when it comes to memories. Everyone I know has those lapses. We are all very sensitive to it because we are all on meds. have a disease and are dealing with changes in our health from day to day There may well be some neurological changes in all of us from time to time. Our meds may make us tired or our reactions slower. But some of this stuff is just normal. If these changes are drastic or sudden then indeed we need to pursue them. If they are very upsetting see the doctor But also give yourself a break, we all have some trouble with words and memory sometimes.
Chocolate, It isn't just for breakfast anymore!
Posted 03 September 2008 - 11:57 PM
I love it, "mental pause" . A lot better sounding then "senior moment". I totally agree with you in that this is just a normal occurrence. I think we're just so preoccupied with so many things, it's just a minor overload for the minute. Actually I think it's quite funny. I got a glass of water from the fridge, put the bottle back and for no apparent reason went over to the microwave and set it for one minute ; go figure. I don't let these little things bother me. What irritates me is when I have a beverage in my hand and then go looking for something else, placing the glass down, it could take days before I find it again and always in the weirdest places!
To all, relax...it's normal.
It is what it is...........
Posted 04 September 2008 - 10:04 AM
Posted 04 September 2008 - 10:17 AM
Posted 04 September 2008 - 12:31 PM
I did call my neurologist and got an appointment for the 25th. I'm also going to take her a screen print of the page I found on the site about sclero and the brain just in case she's not familiar with neurological issues with sclero. I saw her back in '05 while in the midst of trying to get a diagnosis, but I don't remember what I was seeing her for specifically. I do remember her being puzzled as to what I had and she asked me to let her know once I found out. I remember her trying to do a nerve conduction test. My skin was so tight that she couldn't stimulate my nerves at all.
Posted 05 September 2008 - 09:31 AM
Posted 05 September 2008 - 10:14 AM
Posted 05 September 2008 - 11:13 AM
Posted 05 September 2008 - 11:33 AM
I can definitely relate to this subject. It's happens so much I've lost track. I will take a cup to the kitchen, stop in my bedroom to get something but can't remember what I was supposed to get. After leaving the room and going to my next task, I'll remember. This never happened pre-scleroderma. Sometimes in the middle of a conversation I can't think of the word I'm trying to use. If I'm talking to a friend or family member, it's okay. But if I'm talking to someone else, it's a little embarrassing. I used to be very organized, great with details and a multi-tasker. The forgetfulness and bad memory started after I developed scleroderma. I am sure medications, like cyclophosphamide and prednisone have made their contribution to this lovely mix.
I've realized that it's the more important things that get remembered. I usually laugh off the memory loss with the old saying that goes "Oh well it must have been a lie." I haven't done anything serious like leave the dog out all night, or ice cream in the car on a hot day , so I guess it's not too bad!
Posted 05 September 2008 - 02:13 PM
My words getting mixed started about two years ago. It got really bad at one point and I have three teen boys and they would notice. I was soo frustrated, I would just go into my room and cry.. I blamed it on the fibro. It did get a lot better, but if I get run down it acts up. I know when I need to rest.
Hope it gets better for you.
Posted 06 September 2008 - 04:08 AM
Ozzy - this happens almost daily for me and I don't feel necessarily feel run down when it happens (although I'll pay closer attention to see if there is any correlation). It has gotten the best of me at times because I have always been a quick thinker. I'll have a conversation with a frined and my whole side of the conversdation is a bunch of jumbled and tumbled words. I just usually start speaking slower or end the conversation altogether. I'll have to keep Tru's thoughts to "relax" my mind when it happens. I also tell myself and others "it is what it is" when talking about and dealing with the affects of this disease, but I haven't taken it to heart yet when it comes to this matter.
Posted 06 September 2008 - 07:40 AM
Now if we could only get our politicians to quit misthinking AND quit misspeaking!!!!!
Posted 06 March 2009 - 05:22 PM
Posted 06 March 2009 - 05:53 PM
This sort of thing used to be called dysphasia which meant an impairment of speech (not the same as a speech defect) and/or understanding speech. I've never read anything about it being connected to scleroderma, has anyone else? I mean apart from brain fog.
I used to read aloud to my kids all the time and I'm wondering if I started reading stories aloud and recording for my grandson would help. At the very least it would give me a great excuse for re-reading some of our favorite children's books!
Warm huts, um, hugs,
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Posted 07 March 2009 - 02:31 AM
I was 39 when my general practitioner started blaming my problems on possible early menopause! I knew he was wrong.
I drive my daughter crazy with my problems! I have to watch and re-watch segments of movies, right after they happen! She now takes away the remote. I have to read and re-read parts of books until the words finally soak in! I have really tough problems with new recipes, too, constantly leaving out key ingredients (the lemon in a lemon meringue pie or the yeast in a yeast bread), going back over and over looking at the recipe, thinking, "was that Tablespoon or Teaspoon," looking again, then going back to my cooking and thinking, "Now what was that again, Tablespoon or Teaspoon." The spelling thing really gets to me, starting each word with the second letter, then having to backtrack to insert the first letter. I try to talk as little as possible, because sometimes the confused looks on people's faces say to me, "Wow, is she drunk?" Hahaha! I don't even drink!
I used to be VERY worried about all of these things, but have since calmed down as they seem to be very "normal" with these diseases!
((Many, many hugs!!))
Posted 07 March 2009 - 11:09 AM
A lot of you know how my fingers tend to get "tangled up" when I type?! Well, my tongue does the same thing when I talk !!!
For those who have never experienced this, I liken it to when eating ice cream or chewing on ice and your tongue gets cold? Same effect!
Why does this happen? I can only surmise that like the rest of you, it could be the meds, lack of rest, the Scleroderma.
I know this much, I don't dwell on it as much as I did in the beginning !