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Mispronouncing or mispeaking your words


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#21 betty32506

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Posted 07 March 2009 - 06:07 PM

:wacko: To All these comments I can say "me too". Been there done that. My biggest frustration is loosing things. I have something in my hands and 30 seconds later I have no idea where it is. A few things, like car keys, I have made myself a rule to never let go of except it is in a specific place. That helps some.
I guess misery loves company as I have enjoyed reading these posts.
Betty
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#22 Penny

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Posted 08 March 2009 - 09:34 AM

I often forget what I am saying in the middle of saying it, wander rooms in search of what I had wandered in there for and found myself sitting in the bedroom holding something like a screwdriver and thinking to myself , "Why am I holding a screwdriver"?

That and what I call 'word locking', where you know what word you want to use, you could spell it., you could draw it, why you could give an interpretive dance symbolizing it but for the life of you, you can't say it! I will end up stuttering at times trying to force that word out (just how hard can it be to say "door-knob??) and will end up just pointing and grunting, then getting mad and just saying "you know exactly what I mean, the thingy with the thing!"

I think it is just the native language of Sclerodermia, we understand us perfectly! :lol:

Penny

#23 Wohali

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Posted 10 March 2009 - 06:57 AM

I do the same things and I can't blame it on old age because I won't even be 40 for a few more months. I never gave it any thought it was sclero related. I also have a TBI and ABI injuries from repeated concussions and near drowning as a child so I just blame all my goofiness on that. :lol:

I constantly forget things especially with cooking. Like last night I completely forgot to put fries in the oven so I had only a hamburger. I often forget to turn the oven on and waste 30 minutes waiting for the food to cook when the oven isn't turned on. Last weekend I decided to make pancakes from scratch and decided I knew everything by memory so I didn't need to follow the recipe. I ended up putting things in the wrong order so the batter turned out like glue. I do stupid things like hide stuff from myself, have found the toilet paper in the fridge. Once I was convinced I had actually tossed my wallet away in the garbage so I dug around in the dumpster looking for it finally gave up came inside and eventually found my wallet in a bag of laundry and why I put it there I couldn't remember. :huh:

My first thought would be to blame it on medication but we all aren't taking the same meds. Like many have mentioned taking things like steriods or cellcept but I don't take those on a regular basis, so what's my excuse? Maybe its lack of sleep because I don't sleep well now for years. But then again I have the brain injury which I blame everything on. Like I was dizzy yesterday at PT and the therapist wanted to know why. I said oh I have these spells throughout my life, its probably just the brain injury. I've been run through a battery of tests twice for the dizziness and they never come up with an answer.

#24 Wohali

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Posted 10 March 2009 - 07:01 AM

Oh and I forgot to even mention the mispronouncing part. I notice when I reread my emails I often type in the wrong word, sometimes things that rhyme with what I meant to say. Recently I made mom angry telling her "I'm coming to visit in March" she says I said but I swear I said "April" which is what I meant. So we got into an argument over that one. Its bad when family starts noticing I am getting weird. <_<

#25 Guest_delk_*

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Posted 10 March 2009 - 07:46 AM

TOTALLY! And I don't think it's a memory thing; it feels more like my lips don't do what I'm telling them to do. I too read Do Gogs Do to my son. I'm thinking it's the skin tightening, like when I can't close my mouth to chew or drink and food spills out. (yuck)

#26 Guest_delk_*

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Posted 10 March 2009 - 07:46 AM

TOTALLY! And I don't think it's a memory thing; it feels more like my lips don't do what I'm telling them to do. I too read Do Gogs Do to my son. I'm thinking it's the skin tightening, like when I can't close my mouth to chew or drink and food spills out. (yuch)

#27 Wohali

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Posted 10 March 2009 - 05:10 PM

I talked to a new neuropsych today about getting reevaluated for my cognitive difficulties. We talked about everything under the sun mind you since he was kind enough to talk 1.5 hrs to me over the phone. He told me the thing with saying the wrong word is a sign of brain damage. For me I've had so many concussions they know I have TBI. But for others you might want to research if Sclero does damage the brain or it may even be the medications. Or maybe you boinked your head in the past too many times like I did. I do know from another neuropsych she said that certain infections, fibromyalgia and certain medications can cause brain damage so its not all physical injury that can cause it. Course if its meds or fibro causing it then it would be an ABI (acquired brain injury) not a TBI. It helps to use the right term when researching as ABI's affect different regions specifically.

#28 jaxs

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Posted 11 March 2009 - 01:34 AM

Yeah I totally know where you're coming from. I do exactly the same and can't pronounce words at times even though I'm told how to say them. It doesn't roll off my tongue as the same sounds. haha! I also forget where I'm going and where I am at times, then other times I'm ok. I haven't experienced anything like this before I was diagnosed so I just put it down to scleroderma. When it happens it can happen for days or weeks then just stops and then I'm normal again. :rolleyes: Well, I try to be. hahaha

Hugs fom jaxsx!
live life for today and not for tomorrow

#29 mando621

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Posted 11 March 2009 - 02:53 AM

Hi,

I was reading through all these entries, and it is me in all of them too. I even mentioned to the doctor about 5 years ago that my mouth doesn't form the words correctly. She sent me to a neurologist who couldn't find anything wrong.

My students told me that I sound funny last semester. I find that I now have a slightly funny accent that doesn't have anything to do with where I've lived. My top lip doesn't move like it should when I'm talking and it causes some sounds to come out wrong.

I've had what I call "Spooner-isms" for so long that saying things mixed up is normal for me. Things like "Yew Nork" for New York, mixing up the first letter of words is a common mistake which became "Spooner-isms" because of a man named Spooner who did it all the time. I have noticed that I am saying the wrong words rather than just mixing them up at times, but that doesn't worry me as much as not being able to form the words correctly. I can't tell you how many times I call the cat my daughter's name or the other way around.

I was visiting with a person here that also is dealing with sclero in the form of morphea. She was talking just like me, her top lip wasn't moving right when she said things. I even told her that she sounds just like me. I was at the GI doctor and he noticed the top lip seemed frozen and remarked that I was talking "funny". Still, no one has actually come out and said that this is scleroderma, or that that is a symptom of scleroderma.

Mando

#30 Penny

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Posted 11 March 2009 - 04:40 AM

Mando,

I have another "Spooner-ism" for you... 'toin coss', it is supposed to be 'coin toss' but never comes out right for me.

My Mother (who has SLE) has her own as well... she keeps hanging poor Murial on the wall and now she will be painting a huge Murial in the basement on the wall when they redecorate there later this spring. We have tried to tell her it is 'mural' but she just can't say that word.

#31 Wohali

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Posted 13 March 2009 - 08:25 PM

Penny,

Are you sure she really understands that Murial isn't the correct word? Someone who misheard something may swear they are repeating the word correctly. Maybe she doesn't know its really mural. For the longest time I thought it was mouse meat pie not mince meat pie. And now that I need to wear hearing aids I won't even say all the things I mishear when I have my HA's removed and am watching tv. I actually am shocked at what I apparently mishear or else they are getting really crude with what is said on tv. :huh:

To all,

Just out of curiousity has anyone else had a neuropsychological evaluation to see if they truly have cognitive impairment?

#32 jefa

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Posted 13 March 2009 - 10:41 PM

My mother and several of her relatives call those wall pictures murials. In fact they would define murial as a 'pixture' that takes up the whole wall.

I also have problems combining parts of words. I don't know how many times I have said mastly, then corrected myself by saying monly -- instead of mostly and mainly.
Warm wishes,
Jefa

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#33 mando621

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Posted 16 March 2009 - 02:59 AM

Penny,

HA! I read Toin Coss and didn't even think it was strange! I actually put it together as Coin Toss in my head as I read it and had to go back to see what had been wrong.

I think it is sometimes the brain moving too fast for eyes and mouth. I have so many of these I can't even think of them. It is funny in class, I find myself having to slow down my talking at times or I would come out with tons more.

Two more weeks until I see the specialist in Madison at the University to see what might be causing my trouble swallowing.

Mando.

#34 lizzie

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Posted 16 March 2009 - 08:22 AM

I have only just noticed this thread - strange as is a big one!

As part of my job I quite often have to do presentations, and I have found that I have more problems getting the words out than I used to. I put this down to my mouth getting smaller. I also find that speaking for any length of time is tiring for my mouth and also my voice. My typing has become less consistent as well - I have assumed that is due to less sensation in my fingers.


P.S. In our house we also call murals, murials. This in homage to Hilda Ogden a TV character in a long running British soap - Coronation Street, who use to call a big picture on her wall a murial.

Lizzie

#35 debonair susie

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Posted 16 March 2009 - 10:13 AM

Lizzie,

You KNOW MY typing abilities re:Sunday night CHAT!lol

Anyway, I have the same trouble as you, in that talking really tires my voice, as well.
My jaw, tongue and mouth tend to get sore too.

Amazing too, as I never USED to have this trouble (Pre-Scleroderma).
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#36 luvbnmom3

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Posted 30 March 2009 - 03:04 AM

This saying things wrong is a newer symptom for me, so new that at this point when I say something wrong (seems like I just don't pronounce things correctly, I throw in an "r" I think or something) anyway, right now when it happens, I don't miss a beat. I keep right on talking like it didn't happen (because I'm not sure where it came from, I'm thinking, that was weird ), only I am feeling embarrassed about it now because I'm starting to realize that it isn't a once in a while thing.

Everyone mispronounces stuff once in while, but I am doing this often and it is bothersome because I've always been quick and had witty things to say, and fast. Now I go to say something funny or whatever and I mess it up because I slurred words into each other or because I mispronounced one. My kids think it is hilarious and will mock the word I say wrong. Gotta love 'em, they help me see the humor!